• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

"it's No Big Deal"
0

Rate this topic

6 posts in this topic

Recommended Posts

2 weeks and my celiac test is STILL not back. I was at my dr today discussing my blood test results (I am SEVERELY iron deficient anemic) and he said that the celiac test is still not back. I asked him if I'll be informed when it does come back and he said if there is anything off he'll call me but not to be worried because celiac is really "no big deal." Seriously?? I'm sick all the time and there COULD be an explanation but "it's no big deal." Idiot.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


2 weeks and my celiac test is STILL not back. I was at my dr today discussing my blood test results (I am SEVERELY iron deficient anemic) and he said that the celiac test is still not back. I asked him if I'll be informed when it does come back and he said if there is anything off he'll call me but not to be worried because celiac is really "no big deal." Seriously?? I'm sick all the time and there COULD be an explanation but "it's no big deal." Idiot.

It took about that long for mine to get back. mind you, i'm not defficant, but still :/

Share this post


Link to post
Share on other sites

What a JERK! Ask him to suffer the way you have suffered! Ask him to go gluten-free and see if it's no big deal! And then take him some literature about celiac crisis and ask him if DYING from celiac is no big deal!

And then fire the #*%@*#*!!!!!

Share this post


Link to post
Share on other sites

Wow that's terrible , I hope you get results soon and I hope your doctor gets celiac disease than he might change his no big deal opinion !

Share this post


Link to post
Share on other sites
Ads by Google:


Agree with bartfull on this one. I had a doctor literally laugh at me for demanding a celiac blood panel. He said: "You're too fat to have celiacs; do you even know what celiacs is?"

Had I not been energy deprived - there would have literally been a physical a** whooping served to his pretentious/condescending a**. I wanted him to feel every ounce of pain that I felt over the years of being misdiagnosed.

If he/she doesn't take you seriously, fire him - no questions asked! Don't be afraid to tell him/her why you're severing them as your health care provider.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,099
    • Total Posts
      939,643
  • Member Statistics

    • Total Members
      66,075
    • Most Online
      3,093

    Newest Member
    Iowastatejake
    Joined
  • Popular Now

  • Topics

  • Posts

    • I would not fret.   Has she improved?  That is what counts.  In my research, celiac experts have published studies that indicate that the DGP is a better indication of dietary compliance.  Some say the TTG is useful.  Some say that the celiac tests should only be used for diagnostic reasons and not compliance.  The reality is that not much research has been done to check for dietary compliance.  They are focusing on a cure or better treatment (medication).  Heck, they are just trying to get more celiacs identified (80% of celiac don’t even know they have it).   I think you are all doing a great job.  Her TTG came down and that is good news!  
    • My daughter's TTG levels were elevated for 2 years, then she hit 14 (<15 is negative), then went back up to 24.  Her EMA is negative.  I just saw the article "Can Undetectable Negative Tissue Transglutaminase IgA antibodies Predict Mucosal Healing in Treated Celiac Disease Patients?" and am all worried again about her.  Does this mean she's not healing?  We are above super strict, gluten free household, keep her in a bubble and don't know why her TTG is elevated.  Her doctor is not concerned, so I am trying not to be, but I want me little girl to be healthy! Anyone else have any thoughts on this?  Thanks!
    • Everyone here has had great advice!  Celiac has made me a stronger person in standing up for myself and my family.  I HAVE protect my children as their mother, so I must stand up and do what is best for them.  We travel to visit family often, and while we get lots of questions and people who don't get it, I bring our own pots/pans, utensils, cutting board, etc.  Meal planning is a must when we're away and we've invested in a nice Yeti cooler that practically lives in our trunk.  We bring our own ham, sweet potatoes, green beans, etc to holiday functions even when family has insisted what they are making is safe.  It's just easier for me to relax and enjoy family when I know my kids have safe foods to eat.   Good luck!  The first times traveling are really hard, but you'll soon get into a groove.
    • All drugs, including over-the-counter, can have serious side effects (I am not talking about gluten exposures).  Each individual must decide (with a doctor’s input) what is best for them.  I think we have become a little too careless and dependent on easy access drugs.    Some have been around forever (like aspirin) but that does not make them safe.  I take antihistamines.  Safe?  Who knows?   But living with hives can be unbearable.  I am willing to take the risk!   Just be careful and follow the instructions on the bottle.   @LilyR  Look for the cause if your symptoms.  Sounds like you might be getting some gluten into your diet.  When that happens to me, I make a good homemade stew or soup.  I eat it morning, noon and night.  You should  eat anything that is easy to digest.  For example, cooked fruits and veggies vs. raw.  Salad can be hard to digest when your small intestine is inflamed.  Avoid processed foods.  Sure they are gluten free, but you might have an intolerance to a preservative or additive.  Gradually, go back to the regular gluten free diet when you feel better.  
    • My go-to is 8" tortillas made from rice (we buy them 6/bag in the co-op freezer). I use them as wraps for salads and leftovers. Saturday night I put two together with some olive oil between them to make a crunchy pizza crust. Since I can't have tomatoes, my sauce is basil pesto. Since I can't have cheese, I have a couple of sliced meatballs (homemade from my freezer), with mushrooms and kale or spinach.  It's not really pizza but if your diet is as limited as mine is, it's pure bliss! I can't have eggs, corn, soy, or mollusks in addition to the others mentioned above. Another favorite is soup from stock made from whatever meat or bones we had during the week.  And finally, Enjoy Life brand makes a good all-purpose baking mix which I use to microwave "Cake in a Mug" for myself once/ month as a treat. Enjoy Life makes mini chocolate chips i include and some nuts if I have any on hand. 
  • Upcoming Events