• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Do You Miss The Most?
0

41 posts in this topic

Hello Everyone,

I have tested positive on a home Biocard Test and am having a lab test next week. I figure regardless of my blood work results I will be going Gluten Free. Since I have to stay on gluten until all the tests are complete, I might as well treat myself to everything I won't be able to eat after I cut out the gluten.

Is there anything that really doesn't have a comparable gluten free version?

I am just getting a bit nervous I guess.

Thanks!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Phyllo dough as in spanikopitas and such. Get your fill of good flaky pastry. Enjoy a last croissant or two because while there are subs they do not have that buttery deliciousness. Sourdough french bread - chow down on a loaf of that. Those are the things I wish I could still eat :rolleyes:

0

Share this post


Link to post
Share on other sites

I still miss crusty bread and nobake cookies(aka novacks) but I'm also severely gluten free oat intolerant.

0

Share this post


Link to post
Share on other sites

1. Beer. gluten-free beer is ok, but I was a beer snob before and the fact that I can't have a Brewster's stout or two this winter is really disappointing.

2. My grandmother's recipe for sweet dough cinnamon buns. They were absolutely amazing, and it makes me a bit sad I'll never taste her recipe again. I'll miss this the most.

3. Perogies... but I know a good celiac Ukranian who has a gluten-free recipe so I might try it this fall.

4. Convenience. I think I notice this one the most. I can't order a cookie with my coffee, or even some flavoured coffees. Timbits are out. I miss not having to worry about packing gluten-free snacks if I'm running errands with the kids; it was so much easier to order a pizza if running late or buy a burger with fries. Making gluten-free chicken nuggets for my kids is definitely more of a hassle that opening a frozen box up... I'm slowly getting used to not relying on convenience foods but that is the thing, for me, that is the hardest to adjust to.

0

Share this post


Link to post
Share on other sites

2. My grandmother's recipe for sweet dough cinnamon buns. They were absolutely amazing, and it makes me a bit sad I'll never taste her recipe again. I'll miss this the most.

You need to do a search on here for J.N. Bunnie's cinnamon buns. I haven't made them yet but they look (and others have said) they are to die for :D

Okay, here ya go:

I did the search for you. :)

0

Share this post


Link to post
Share on other sites
Ads by Google:


Aw... thanks Neroli! :D I've printed it off and I'll give it a try. :) That was nice of you to do.

... And Company's Coming Gluten Free Cookbook has a yummy looking recipe and starter for sourdough. I'm afraid I don't have the recipe but the picture made my mouth water.

0

Share this post


Link to post
Share on other sites

I really miss Angle Food Cake and every thing you can do with it. :huh:

0

Share this post


Link to post
Share on other sites

I really miss Angle Food Cake and every thing you can do with it. :huh:

Ah, Lisa, our mathematician :lol:

0

Share this post


Link to post
Share on other sites

Ah, Lisa, our mathematician :lol:

:lol: oh my! :lol:

0

Share this post


Link to post
Share on other sites

Glazed Old Fashioned Donut - forgot to have one in the days before going gluten-free - coulda, shoulda - didn't.

Flaky, buttery Croissant --- Ohhhhh

FRESH bread, French or Sourdough - warm with butter --- Ahhhhh

It really is a rare occasion for me to miss any gluten item, but I frequently wish for the ability to go to a restaurant and try whatever their specialty is.

0

Share this post


Link to post
Share on other sites

Rye bread. How I miss a hot delicious loaf of rye! And obviously, there is no gluten-free sub for that!

0

Share this post


Link to post
Share on other sites

Rye bread. How I miss a hot delicious loaf of rye! And obviously, there is no gluten-free sub for that!

And I had the most fantastic, never-fail rye bread recipe :(

0

Share this post


Link to post
Share on other sites

Oh no! I think I will be gaining a few pounds in the next couple of weeks!

I did not even think of the rye bread...

I wonder if my mom could ( and would) make her German Christmas Stollen with a different flour.

Are any gluten-free beers any good?

No gluten in red wine, right? RIGHT?!

0

Share this post


Link to post
Share on other sites

Red wine is gluten free - and regularly confirmed as such :D

0

Share this post


Link to post
Share on other sites

Red wine is gluten free - and regularly confirmed as such :D

:lol:

0

Share this post


Link to post
Share on other sites

Krispy Kreme donuts, especially the cream filled bismarcks, deep dish pizza, Mcdonalds cheeseburgers on the fly, artisan breads with butter, biscotti ordered with my coffee, breadsticks from Olive Garden, white wedding cake, Entemens cream cheese coffee cake, Fancy chocolates from chocolate speciality stores, going to fancy bakeries and eating my body weight in scrumptious baked goodies. Oh must I go on....... I'm not quite 3 years out, so I am still fairly new and fairly whiney..

...and just when I finally settled into being gluten free and fairly OK with it, I had to give up dairy and am lost again.....It's been 2 months and I am still adjusting...and starving a lot.

0

Share this post


Link to post
Share on other sites

And I had the most fantastic, never-fail rye bread recipe :(

MitziG and Neroli, there is an old post on microwaveable buns that had a recipe for "Rye Buns". I haven't tried it yet but it is here (go to page 7) :

This is what it said:

Rye bun

1 egg

1 tsp molasses

2 tbsp almond meal

2 tbsp golden flax meal

1 tbsp brown rice flour

1/2 tsp baking powder

shake of salt

1/2 tsp caraway seed

Make like the original, mixing the egg with the molasses until well beaten, stirring in rest of ingredients until well mixed, and microwaving for 90 seconds. Then turn out of dish and let cool, slice into 4 rounds and make 2 sandwiches.

Yummy RYE BREAD in 2 minutes!!

I make their basic microwave buns all the time for my boys, I just substitute out the almond meal and add 3/4 tbs coconut flour, plus we skip the cocoa and add cinnamon (in the original recipe). My boys love it.

LOL at Lisa!

Greens is a nice beer, but expensive. Estrella Drauma (sp?) claims to be gluten-free to 3ppm but it is started from barley and it made me react quite badly; others do better with it. I haven't tried any other brands... I'm a beer snob but I only had a dozen beers a year at the most... Alas, all that wasted possible beer drinking time. :rolleyes::P LOL

0

Share this post


Link to post
Share on other sites

The convinence mostly.... but... if i HAVE to make a list:

Crossont rolls

maple glazed doughnuts

egg rolls

Japanese food in general (yes yes i know i can make my own but still)

Red lobsters stuffed mushrooms

french bread

cinnimon life cereal

honey nut cheerios (NOTHING REPLACES THIS...my poor lost self, the stuff of my childhood).

ramen... yes... i said it...

cookie dough ice cream

oatmeal cookie samwiches

my grandmothers gravy

fried chicken (the good kind not the fast food stuffs)

cheeeeesy bread (yet to find a good replacement)

apple fritters...

I could go on...

0

Share this post


Link to post
Share on other sites

Feeling amazingly healthy; like I could conquer the world.

Oh yeah and...

-Devouring an entire NY style pizza with a pint

- Every pasta dish imaginable.

-My favorite: Eggplant Parmesan

-Hot soups in the winter; mainly Pho

...Holy Sh** I think I'm gonna cry

0

Share this post


Link to post
Share on other sites

1. Beer. gluten-free beer is ok, but I was a beer snob before and the fact that I can't have a Brewster's stout or two this winter is really disappointing.

WHAT?!?!?!?! I don't think you are looking in the right places, in fact there are a lot of high end beers available gluten free. Most premium breweries have at least 1 good gluten free beer but they are hard to find in Canada. If I have celiacs I am going to be ordering premium beers in bulk online, they are available everywhere. If I get diagnosed I am going to be drunk for the next month finding which brand appeals to me ;).

0

Share this post


Link to post
Share on other sites

No no no! LOL I have yet to find a really good substitute for Brewsters stout... or Guinness? Forget about it! LOL

It could be because I am in Canada that they are harder to find, but that's hard for a Canadian beer snob to admit since (ahem) I don't really like American beer. :P ... Don't hurt me! lol

Greens is good but it still tastes like the homebrews we used to make back in university... I dunno. :huh:

0

Share this post


Link to post
Share on other sites

No no no! LOL I have yet to find a really good substitute for Brewsters stout... or Guinness? Forget about it! LOL

It could be because I am in Canada that they are harder to find, but that's hard for a Canadian beer snob to admit since (ahem) I don't really like American beer. :P ... Don't hurt me! lol

Greens is good but it still tastes like the homebrews we used to make back in university... I dunno. :huh:

I live in Ontario, so my stores are limited to the LCBO and Beer store. The beer store only has 1 gluten free brand and the LCBO has 5, however if you are willing to order online there are some really praised gluten free beers that non celiacs drink for the taste. Will give you a few good ones once I know. Also smirnoff ice is gluten free too.

0

Share this post


Link to post
Share on other sites

I'd also love information on gluten free beer. I was so looking forward to stout season...

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,467
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi! I've just been recently diagnosed as Celiac through the whole biopsy-shebang, and I have a little bit of insight on the whole diagnosis thing and how I was eventually diagnosed, and my advice for you. Brace yourself, this might be a bit long, but it might be worth the read and I promise I will eventually get to the point. If you don't want the huge story, skip to the long line of capital As: I first saw my doctor when I had a few problems swallowing. I've compared it to when you're nervous and you feel like you have a lump in your throat - but after I eat and (sometimes) drink. I just mentioned briefly it to my family doctor when I was addressing another issue, but right away he referred me to a gastroenterologist and ordered a barium swallow x-ray test. The x-ray came back completely normal, and so the g.e. then suspected GERD, put me on acid blockers to see if they would work, no harm done sort of thing. The only thing I got out of the acid blockers were the side effects, so it was back to square 1. The g.e. said that the next test he could do was an upper endoscopy with biopsies. (hint: the celiac test!) Wanting to find a solution to my problems, the endoscopy was scheduled. Pretty painless, I was in and out in a day, but the results took much much longer. Biopsies, or the little pieces of my esophagus, stomach, and small intestine, were sent to the lab, and they came back clean. I didn't really go back to the g.e. for a whole year after that because life became busy, I wasn't prompted to follow up, and I just dismissed the swallowing problems the best I could and went on my way. Now, I've never been huge on the gluten, big bread-y sandwiches or croissants or pies were never foods that I super "enjoyed". I wouldn't feel bad after eating them, I just didn't like the taste of bread so much, but I loved cookies, cake and a lot of other things that do have gluten in them. I lead a lowish gluten life but I wasn't really monitoring it that way. Everything changed when I got really nasty (systemic) poison ivy. My eyes were swollen shut, and the rash was everywhere. I almost went to the hospital, but cooped out at the family doctor's place and got a script for prednisone (a steroid). But, I found that after I had tapered off the steroids, I had magically become lactose intolerant. So back to the family doctor again probably because I broke my toe or something, but we also got to talk about this magical lactose intolerance business (because I love anything dairy and it was indeed devastating). He was surprised as there is literally no correlation between steroids and becoming lactose intolerant. He asked me if I still had the swallowing problems, which I did, and so it was back to the g.e. for round 3. because my family doctor "does not believe in coincidences". Meeting with the G.E., he mainly addressed the swallowing problems telling me that he had done what he could to diagnose with the technology that we had at the highly specialized hospital that we were at, and I would have to travel about 3 hours away to see a different doctor who would do some tests involving the muscles in the esophagus. But right before I was about to leave, we started talking about lactose intolerance. He brought up other foods that I was avoiding (if any), and then the conversation went to gluten. I mentioned that I had an aunt that was gluten-sensitive. He advised that I do the blood test that can show an indication of celiac whenever in the future. I decided to do it that day. At this point in time, I was not eating much gluten because of the fact that it was personal preference. The normal range for values in this test is from 0 to 20. A few weeks later, I learned that I scored a 35. A second upper endoscopy with biopsies was scheduled, but this time I was told to eat a moderate amount of gluten everyday before the procedure. I ate about two slices of bread per day, which is more than I normally would. I was normal for the first two-three weeks of the gluten plus diet, but then I became really sick. I started getting the normal celiac symptoms, like diarrhea and extreme tiredness. Near the end, I had debilitating stomach pain and I was 2 times more asleep than awake each day. I couldn't do the 2 pieces of bread a day some days, but the pain was still there. I knew that I wouldn't ever have to force myself to eat bread for a test ever again. I was called a few days before my endoscopy telling me that a kid in a worse state than me had to take the OR during my time. I forced myself to eat more bread for another month and a half. The day finally came. I was diagnosed celiac, which I have concluded to be initiated by (1) the steroids/poison ivy and (2) the gluten binge fest.  AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA Celiac Disease isn't completely understood yet. Most of the time if you weren't showing symptoms when you were a baby (so your case) it means that celiac was/could be triggered by an event in your life that causes stress on the body (like stress, physical injury, etc.).  The positive result that you got from the blood test doesn't automatically mean celiac, but it could. Here's some options: Talk to your doctor (or a different doctor) or even a specialist gastroenterologist (you can get a referral from a family doctor (general physician)) and see if you can do the blood test again, you have to have some kind of gluten for this to work in advance, so if you don't want to break your gluten-free streak, than don't really invest in this option. If you feel comfortable, you could even ask to do this test under a few scenarios (no gluten (now) and after a gluten binge, compare results). If you do this test and your indication is low off gluten and then high after gluten, I'd probably skip the biopsy. That's a strong enough sign that you don't need to put yourself through the painful-gluten binge. Maybe this is what that first doctor just assumed. But having that test when you haven't had any gluten could make the difference - it acts as a control. Go straight to the biopsy. You could do this, but I'd probably do the blood test first. I went through a lot of stress with the gluten-binge that you have to do to get an accurate result, you would also be breaking your gluten-free diet that may/may not be helping you right now. Do nothing, stay on your gluten free diet hoping that it is helping you. But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.
    • I'm sorry that life is so hard right now. Really.  I can't imagine working 3 jobs and trying to manage this terrible illness.  I think about American society and their obsession with food often.  Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies.  A loaf of gluten-free bread will last me 4-6 months in the freezer.  I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty.   I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated.  Good luck!  
    • Hi!  Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too.  Gall bladder problems are often associated with Celiac Disease.  Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....  
    • That's what I thought!  My father has gluten sensitivity and I almost regret telling the doctor that because I feel that made her jump to conclusions because of that.  He never had the biopsy either.  I feel like doctors think it's just easier to say it's celiac when they show a gluten sensitivity to avoid additional testing, even if that diagnosis doesn't make any sense at all.  My doctor didn't even offer the biopsy, and said the blood work was enough.  Should I seek a third opinion?  I mean, I've been gluten free for 9 months...
    • It will prolong your life....celiac is a autoimmune disease that  causes your own immune system to attack you. The longer your eating gluten the worse it gets, I mean all kinds of other autoimmune disease, food allergies, food intolances. One day you could lose the ablity to eat carbs, or sugars, or become randomly allergic to tomatoes or corn all cause you decided not to be on road to healing I am not kidding here. I am allergic to corn, can not process meats, have another autoimmune disease that makes it so I can not eat dairy or CARBS/SUGARS.   I wish I could go back in time and go on a gluten-free diet a decade ago. Worse that could happen you could develop cancer or other complications and yes we have had this happen to a member before on our forums. Think of it like this your just changing brand here I will give you some links to some gluten-free foods, and how to order them, You can even order alot of them online this should help simplify it for you. I suggest thrive, amazon, or one of hte other links from there, Many you can order from the manufacture. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
  • Upcoming Events