• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is It Celiac?
0

2 posts in this topic

I'm a 22 year old female and have been suffering from a variety of symptoms including nausea, diarrhea, constipation, bloating, mucus in stool, abdominal pain, gas, minor weight loss, anxiety, hair loss, and a tingling feeling in my toes. I had a variety of tests done including an ultra sound, stool test for parasites/bacteria, colonoscopy and endoscopy.

Everything came back normal except with the colonoscopy/endoscopy. With that they found some polyps (turned out to be benign) and inflammation. The pathologist suggested I get a celiac blood panel done based on the biopsy. So, I'm going to do that soon. (I've had some previous more general blood work done and the only thing they found from that was that my red blood cell count was slightly low at 3.9, but it was so slightly that it was deemed insignificant.) Now I'm waiting to get the celiac blood panel to more specifically look at that as a possibility.

Anyways, pardon my ignorance here :unsure:, but there's something I'm slightly confused about. I've heard that a biopsy is sort of the gold standard for confirming celiac disease. If the already did a biopsy, wouldn't that show for sure whether or not it was celiac disease? The doctor still seems unsure/unconvinced so I'm really not sure what to make of the situation. I know the test will eventually show what's going on, but I'm just curious if what I'm describing even sounds like celiac or maybe just a gluten sensitivty or something else even?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


The pathologist suggested I get a celiac blood panel done based on the biopsy.

YES Ashleigh! And welcome!!!!

Get a hold of your pathology report and bring it here. It may indeed, offer a diagnosis. Your symptoms surely support it.

But, please continue to eat gluten, if you can tolerate it, until your blood work.

If you can't, a positive dietary response can be a piece of the puzzle as well.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,790
    • Total Posts
      932,446
  • Member Statistics

    • Total Members
      64,271
    • Most Online
      3,093

    Newest Member
    bhglitzgeek
    Joined
  • Popular Now

  • Topics

  • Posts

    • One of the toughest things about purging gluten from your diet is the change in taste you'll undoubtedly experience. Since gluten-free breads are baked without the benefit of the almost magical baking properties of gluten, finding a practical – and tasty – substitute can certainly be ae a challenge. View the full article
    • Your spleen is on your left side, and is part of your lymphatic system (deals with fighting infections etc.). So not surprising or unreasonable for there to be some pain here due to swelling in response to gluten exposure. I also get this as well. When I first starting having severe symptoms, I actually thought I had mono because of this. Now I only get it if glutened. As a side tip, I'd say avoid any pizza from a restaurant, even if they proclaim it to be gluten-free. All of their toppings, sauces and surfaces are likely highly contaminated from making and preparing the regular pizza bases. Hope you feel better!
    • Omg that sounds divine! Thank you!
    • @Jmg For sure. I think whatever one's consensus is on the validity of gluten causing problems for those diagnosed with NCGS, one has to admit that these people do have a real problem, even if it's one we don't fully understand. Articles like this do a disservice to that fact, which as you say is nuanced. There are also other autoimmune diseases that seem to respond to the GFD for reasons that we don't understand either. It's also problematic as from reading that one-line asterisk on celiac disease, people come down very hard on people who lack a formal diagnosis, not realizing that this is the majority of those with celiac disease. I'm in this camp and so I avoid providing the more nuanced "various doctors I have seen are about 99% sure that I have celiac disease, but I don't have a positive biopsy/blood because the gluten challenge would kill me." If I tell people that I am not taken seriously, despite the fact that many serious medical conditions are diagnosed purely on the basis of described symptoms and response to specific medications for that disease.
    • Boarshead all natural uncured ham and Boarshead muenster with lettuce and tomato on Canyon Bakehouse deli rye. Dip in italian dressing. Egg salad with Land O'Lakes american cheese on CB plain bagel. Tuna fish with lettuce on white bread. Italian hoagie on Schar baguette. Ham and LOL american cheese, lettuce on white bread. Steak, mozzarella cheese, lettuce, tomato on baguette. Dip in italian dressing. Cold batter dipped chicken wings and salad. Tuna salad - tuna, mayonnaise, Barilla macaroni, celery, onion, egg, italian dressing.
  • Upcoming Events