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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Worse Tummy Aches Now Gluten Free?
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4 posts in this topic

My 5 year old daughter had an endoscopy just under a month ago (which confirmed celiac). That day we went gluten-free. The first week she was super cranky and we thought maybe it was withdrawal but looked forward to her feeling better... especially her moods. It feels like things have only gotten worse since going gluten-free. How is that possible?

Last night for example she woke up kicking and screaming. Turned out her tummy was hurting so badly, for a while I started worrying it was her appendix. It seems like in the last 2 weeks she has been getting "stingy" tummy aches. At first I thought it could be from milk but I am not so sure. Yesterday she had no milk. She DID have a chili from a restaurant, that was supposed to be gluten free but I suppose there is no guarantee a crump didn't get in there.

Is it possible that after being gluten-free for such a short time her reactions could get worse so quickly? I am not even convinced that she has been 100% gluten-free. We did a big clean out and have made our house gluten-free. Got a new toaster... cleaned all the cupboards etc. However I have found a few things that we missed.

I am feeling really overwhelmed. I thought it would be a lot easier and that we wouldn't be just a couple weeks in and be having these kinds of issues.

I would love and thoughts or feedback. Did anyone go through something similar?

Many Thanks.

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It is possible she was glutened. Another thing to look at is what has increased in her diet? There is a possibility the new thing you have replaced gluten with is a problem. I would keep a detailed food log and symptoms to see if there is a correlation.

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Poor thing, I hope she gets better soon... Personally, I wouldn't eat out for a while.

Hope things improve soon.

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She probably still is. Also, remember, foods that are spicy or heavy on a stomach are not really good when your healing. Stick with things that are on the mild side for a while.

Another thing is she could still be going through withdrawl. Heck, it took me a good two months to get over it.

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