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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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gstewart88

Possible Coeliac

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Hi there,

I am new to this forum and just wanting to ask a few questions :)

I have had long term tummy troubles since getting a bad gastroenteritis as a teenager (now 23y) - intermittent diarrhoea/loose stools, chronic nausea usually after eating, epigastric and pelvic pain, fatigue, gas and 2 episodes of iron def. anaemia.

I have been tested for gliaden, antiendomysial antibodies and tissue transglutaminase and all came back neg. I have also had 3 positive faecal occult blood tests, raised faecal calprotectin and raised CRP.

I had a colonoscopy last year with biopsies and Dr said it was mild Crohns disease. Since moving to a new job I have a new specialist and he isn't convinced it is Crohns after all.

I have recently had another colonoscopy and gastroscopy - the Dr said everything looked normal but the biopsy results still have to come back.

So... my questions are can you have negative blood work but still have coeliacs disease?

Where do others with diagnosed coeliacs get pain? All through abdomen or specific places?

Im starting to get a bit fed up with all this!

Thanks for any help :)

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There are quite a few poeple around here who were diagnosed with the biopsy (I'm not one); it's not that unusual.

I tend to get the pain in my stomach area first (just south of my ribs) and then the bloat is more of a generalized belly area thing. Everyone presents differently though; for instance I had chronic C rather than diarrhea. It really varies.

Have you considered that you have Non-celiac Gluten Intolerance (NCGI)? It's about twice as common as celiac disease, and sufferers have exactly the same range of symptoms as celiacs except for the GI damage. Some researchers are starting to think NCGI is linked to latent celiac disease. The treatment is still the same: gluten-free diet for life.

I do hope you feel better soon and find some answers... That's a long time to feel unwell.

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Welcome!

Yes, you can still have Celiac Disease with all negative tests. Getting diagnosed with Celiac Disease with all negative tests is not often possible.

There are all types of abdominal pain and digestive problems associated with Celiac Disease. Your symptoms are consistent with either Celiac or NCGI.

If all tests are negative, the best next step is to remove ALL gluten for at least three months (six is better) to monitor symptom improvement/resolution. Elimination of gluten is often the best test for Celiac Disease and the only test for Non-Celiac Gluten Intolerance. As Nicole mentioned only remedy for each is the same - remove all gluten.

Just checking to make sure you've had all necessary blood tests before removing gluten. Did you have a Total IgA or IgG based tests - tTG or Demiated Gliadin Peptide (DGP)?

I hope you are feeling better very soon :)

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