• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Type Of Doctor?
0

7 posts in this topic

Hi, What type of doctor do you see for your Celiac's? The GI who diagnosed me at the University said that GI doctors don't typically see people who have Celiac's. I kind of basically took it to mean, once you're diagnosed you're on your own - or try to ask questions of your primary, instead.

Thanks,

Kelly

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I see a GI doctor, Kelly. That said, I have found that this forum has been a godsend for information.

0

Share this post


Link to post
Share on other sites

I think it depends on your doctors, how skilled they are, and who you feel comfortable with.

I go to my regular doctor. She referred me to a GI before we knew it was celiac, and he was useless! He referred me on to a cardiologist because he didn't think there was anything he could do for me. I still don't know why he sent me to a cardiologist, and the cardiologist was totally baffled about why I was there too.

Later my doctor called a different GI to ask him for advice on celiac for me, because she isn't too familiar with it. He basically answered all of her questions with "dunno" answers.

If you can find a GI who specializes in celiac, or has significant experience, then go to them. If not, you're better off puzzling it out with a good primary who's willing to do some research.

1

Share this post


Link to post
Share on other sites

I just had a GP. The type who confirm I have celiac and said don't eat gluten. I had to request all my follow-up tests and such; I don't think he knows much about it.

0

Share this post


Link to post
Share on other sites

Kelly,

I am almost a year post-diagnosis. I see a G.I. doctor that specializes in Celiac...but I have to travel 4 hours to see him. My local dr. is also very familiar with Celiac, so she has been able to run follow-up tests.

With that said, I would recommend you find a dr that is at least familiar with Celiac Disease or willing to learn...and find one that is a good listener. You can call your local clinic and ask if any of the doctors work with continuing care for Celiac Disease...or ask around if you know any other local Celiacs. Hopefully you won't need a lot of continuing care. I know my G.I.doctor recommends a follow-up visit one year post-diagnosis...I have been in to see him a few times because I had other issues tagging along with Celiac.

This forum is a great resource to answer questions too...but it is good to get in with a good doctor too.

Good luck!

0

Share this post


Link to post
Share on other sites
Ads by Google:


I have a Chiropractor that is friends with me. She has a gluten intolerance herself, so she knew about the diet. Before we knew I had Celiac, she gave me supplements that pretty much brought me back from the dead. I feel she is so good for me because she really cares about me. She has really enjoyed watching my blood pressure drop, hearing about some high energy days, and having my orhostatic blood pressure form a healthy curve.

I have used an MD off and on to help diagnose issues which have come up. I was hoping she would say that my genetic test was a bunch of phooey. No, she backed it up ans said it was the new gold standard. AND DON't Eat GLUTEN ever again.

0

Share this post


Link to post
Share on other sites

Thanks everyone for your answers. I haven't made an appt, yet, to see my primary care doctor. Basically, because I think she's an idiot and when I'm done with all of this (my oncology stuff), I'm getting a new doctor. When I told her that I was losing all of this weight - dropping from about 120lbs to now 92lbs, she told me that I just wasn't eating enough and I needed to eat a lot more calories than I already was. When my onclogist had me see the dietician at the Cancer Ctr, she told me that I was already eating more than 40% more than I should have to eat based on my weight, height, activity level, age, etc.

And, like you all brought up, I'm learning that not all doctors are familiar with Celiac's. When I went to my neurologist last week for a follow-up for my MS, & told her about the Celiac's - she said, "So then you can't eat whey?"

Thanks again,

Kelly

0

Share this post


Link to post
Share on other sites




Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,388
    • Total Posts
      935,829
  • Member Statistics

    • Total Members
      65,076
    • Most Online
      3,093

    Newest Member
    MayonnaisePlease
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Whitepaw Your question about what was I eating before I fell ill is a good one.  I had given a party the previous month and there was a lot of cake left over and what is more, it was all gluten free because I had made it!  So I was eating maybe a couple of slices a day...  I was taking soluable aspirin when I shouldn't take it, really.  I was also taking iron supplements.   And adding chilli to a lot of my food - normally not a problem.   And I had a huge amount of stress going on having just completed a project and also having tests on a lump on my tongue. Oh yes - and  I ate some marshmallows which may have contained gluten?  And my son had a stomach virus at the time. High fat food + aspirin + iron supplements + chilli + stress+ possible glutening + stomach virus?  = gastritis!! I also ate quite a lot of walnuts the days before it got really bad so maybe they didn't help. I need to be much more careful - it has taught me a lesson. I'm particularly cross with myself about the aspirin and also not checking the marshmallow ingredients as I am usually so careful. I know exactly what you mean about dreading the next meal - last night I had chicken and potato again but added a tiny bit of bolognese and I actually enjoyed the meal, which I think meant it sat easier in my stomach.   I think that there is a psychological element to acute gastritis, too.  I think if one is stressed it can hang around a lot longer.  I have read a few posts from people who found after trying to do all the right things to get better it was going onto medication to help with stress that actually helped them get better in the end.  I can see that - because if I could hear the children fighting, or had a stressful conversation with someone, I could actually feel my stomach react. Anyway - thank you for your help, I am so grateful. And great idea about the food diary.  Perhaps, also, worth making a note about stress factors on a particular day, and what meds one was on.  I think ompremazole was a great way to stop the gnawing pain for me but since I have lowered the dose I have to say that a lot of the bloating and feeling of nausea has gone. I think if I ever get gastritis again I'll stick myself on a gastritis diet first, just for a few days.   If that doesn't help I'll probably check with my doctor but take ompremazole for maybe two to three weeks til the gnawing stops, then taper down.  I hope it won't happen again though!  There is no doubt about it, it is a drug to be taken with caution, but I have to say I have heard some success stories too of people who took it short term and were helped tremendously.  I think tapering off it is probably a good idea, though, because I do have a friend who I think is suffering from rebound at the moment by coming off an inhibitor cold turkey.
    • Well thanks everyone seriously. I'm sure this will get better and I'm thankful this reaction is normal. So guilty when I think of others worse off than me. I will read and read and read until I've taught myself to feel better. And then help others ((((hugs all around)))
    • I'm curious to hear updates on your EC condition.   Thanks
    • @Larkie how are you lips doing now? Have you found something that worked for you yet? I'm curious and eager for updates from anyone who overcame this condition. Thanks
    • The fullness of the Eucharist is found in the wine alone. However, glutenfreewatchdog did an article on the low gluten hosts recently. She tested a single host from the Benedictine sisters and found it to contain 0.0017 mg of gluten. Compare that to the 0.57mg found in a piece of gluten free bread. The amount of gluten you are exposed to is negligible if you take a low gluten host Here's a GOOD article to read.... http://www.catholicnewsagency.com/amp/news/gluten-and-communion-whats-a-celiac-to-do-72220/ And, finally, I would strongly encourage you to review the articles you are posting and using legitimate news sources. The National Catholic Reporter is widely known to be a source of inaccurate Catholic news and most Catholics disregard the information that comes from their paper. The Catholic church is not excluding anyone from receiving Holy Communion. 
  • Upcoming Events