• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Myths About Gluten In Everyday Non Edible Objects?
0

60 posts in this topic

There is no scientific evidence to back this but I find it interesting that when I have used products with gluten, they cause problems . Not typical problems found when ingesting gluten, but other issues... For example....

Suntan lotion w G = very red sun burn, gluten-free= nice tan

Hand and body lotion w G= sticky skin, gluten-free lotion= soft, silky skin

Shampoo w G= frizzy hair, GFshampoo =soft, silky hair

G mascara= red, itchy eyes, lash breakage, gluten-free mascara = long, lush eyelashes

G eye shadow = red eyes, loses color, gluten-free eyeshadow = clear eyes, longer lasting

Make up w G = pimples, gluten-free make up, clear skin

G soap = dry flaky skin or sticky residue, gluten-free soap normal skin

G laundry soap = itchy clothes or sheets

Does anyone else see weird reactions similar to these?

Yes!!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'm glad to hear someone else has issues with red eyes when wearing mascara or eye shadow with gluten. I was told this couldn't happen, but I knew something was going on. Yes, I agree, it probably won't cause celiac problems, but it definitely causes a reaction in me. I didn't know that about hair products, but I do have frizzy hair, so I will be trying a new shampoo and conditioner. Something else that happened with me, that I've been told isn't possible since it isn't ingested, is, before being diagnosed with a bad gluten sensitivity, I worked in a pizza parlor that the dough was made with High Gluten flour. I'd come to work and within 30 minutes, I'd be tired, stuffy and just not feeling well, even though I felt fine coming in. I told everyone I was allergic to the place. Sadly, I really was. Has anyone else experienced anything similar. I do know that when I eat gluten by mistake, within 2 days I am miserable with cramping, sharp pains (internal porcupines), bloating and heart burn (this usually shows up first-within minutes to an hour). This will go on for several days.

0

Share this post


Link to post
Share on other sites

I do have frizzy hair, so I will be trying a new shampoo and conditioner.

I also have frizzy hair. My leave in conditioner contained wheat so I stopped using it and my hair frizzed out worse then ever. I had a gluten free lotion that was working, and it looked a lot like the leave in conditioner so I tried it and it works well, FWIW.

0

Share this post


Link to post
Share on other sites

I'm glad to hear someone else has issues with red eyes when wearing mascara or eye shadow with gluten. I was told this couldn't happen, but I knew something was going on. Yes, I agree, it probably won't cause celiac problems, but it definitely causes a reaction in me. I didn't know that about hair products, but I do have frizzy hair, so I will be trying a new shampoo and conditioner. Something else that happened with me, that I've been told isn't possible since it isn't ingested, is, before being diagnosed with a bad gluten sensitivity, I worked in a pizza parlor that the dough was made with High Gluten flour. I'd come to work and within 30 minutes, I'd be tired, stuffy and just not feeling well, even though I felt fine coming in. I told everyone I was allergic to the place. Sadly, I really was. Has anyone else experienced anything similar. I do know that when I eat gluten by mistake, within 2 days I am miserable with cramping, sharp pains (internal porcupines), bloating and heart burn (this usually shows up first-within minutes to an hour). This will go on for several days.

Working in a pizza parlor or a bakery or anywhere else where there is a lot of airborn flour will cause a Celiac reaction. Celiac's cannot have these kinds of jobs unless they want to remain sick. You are essentially breathing it in and anything that goes down your nose and throat, or even just sits in your mouth and throat for that matter, is already in your GI tract.

There's no mystery to that.

You can certainly have a reaction with your eyes if you use eye shadow or mascara with a wheat component but it is most likely an topical allergic reaction, not a celiac one. I have Sjogren's Syndrome and I have problems with my eyes from time to time because they are dry and I have allergies which directly affect my eyes but it isn't because I wear eye shadow.

I can wake up with reddened eyes after having NOT worn eye make-up so it's the allergies that are troublesome. Most concerns about gluten in make-up can come from the use of tocopherols, which is Vitamin E, and it can be derived from wheat germ oil. Most reputable celiac organizations reagrd it a non-issue because they are so highly refined and the amounts used are miniscule.

1

Share this post


Link to post
Share on other sites

"    "DH is very erratic. Since the skin may not be rid of IgA deposits for more than 2 years after starting a gluten-free diet, flare- ups occur without obvious gluten ingestion. It may take patients a substantial amount of time to erase years of IgA buildup in the skin."    "

 

Sorry haven't read this thread in awhile and I see there's new responses, but if I can get IgA antibodies deposting to/leaving through my skin, and these are what cause DH flare-ups,  why would they not react to topical gluten?

0

Share this post


Link to post
Share on other sites
Ads by Google:


" I have Sjogren's Syndrome and I have problems with my eyes from time to time because they are dry and I have allergies which directly affect my eyes"

 

Sorry for double post but this is a completely different topic, but I feel like I should say that you should make sure you're getting enough vitamin A. If you delve a little into vitamin A deficieny-related eye issues, what you have described does seem to fit that critera. I mean, this is obviuosly a symptom a sjorgen's too, and I'm sure you've got other symptoms and been tested, but it still might be worth looking into vit A levels.

0

Share this post


Link to post
Share on other sites

" I have Sjogren's Syndrome and I have problems with my eyes from time to time because they are dry and I have allergies which directly affect my eyes"

 

Sorry for double post but this is a completely different topic, but I feel like I should say that you should make sure you're getting enough vitamin A. If you delve a little into vitamin A deficieny-related eye issues, what you have described does seem to fit that critera. I mean, this is obviuosly a symptom a sjorgen's too, and I'm sure you've got other symptoms and been tested, but it still might be worth looking into vit A levels.

Thanks for the tip but I know I no longer have deficiencies.  I have been tested and do have Sjogren's and have all the classic symptoms.  Once you trigger for it, it isn't going away.  Having dry eye really affects allergies.  It has gotten much better since going gluten-free but during allergy season, all bets are off.    :(

0

Share this post


Link to post
Share on other sites

"    "DH is very erratic. Since the skin may not be rid of IgA deposits for more than 2 years after starting a gluten-free diet, flare- ups occur without obvious gluten ingestion. It may take patients a substantial amount of time to erase years of IgA buildup in the skin."    "

 

Sorry haven't read this thread in awhile and I see there's new responses, but if I can get IgA antibodies deposting to/leaving through my skin, and these are what cause DH flare-ups,  why would they not react to topical gluten?

Because DH is caused by the internal reaction to gluten and the aggravation to your immune system.  If you are getting reactions topically, then you may just have super sensitive skin, which makes sense for those with the skin version of Celiac.  Or you may be reacting to something else in the products you are using.  I would think that anyone with DH may most certainly have other skin sensitivities.

0

Share this post


Link to post
Share on other sites

Because DH is caused by the internal reaction to gluten and the aggravation to your immune system.  If you are getting reactions topically, then you may just have super sensitive skin, which makes sense for those with the skin version of Celiac.  Or you may be reacting to something else in the products you are using.  I would think that anyone with DH may most certainly have other skin sensitivities.

 

 Doesn't IgA need gluten to react to your own body, dh or villous damage or neuronal damge? I'm under the impression that IgA in the skin wouldn't do anything negative unless it reacted with/got reacted by gluten.

0

Share this post


Link to post
Share on other sites

I just wanted to put my hat in here since this seems to apply heavily to my situation. :)

 

I have to have gluten free shampoo, conditioner, body wash, chap stick, etc. It wasn't all at once, but started in college for me with my severity hitting a new peak. I am extremely sensitive to gluten/wheat. When I speak to newly diagnoised Celiacs I do express caution because of my own issues. I had a shampoo that had wheat germ in it. As things progressed I began to have "shaking episodes" as the neuro guys put it, or awake seizures. I also began to get rashes on my skin on my upper arms as well.

 

My celiac has progressively gotten worse over the 13+ years I have had it.  Now, I also have to say that I cheated severely for a couple years in my high school years, which I think has affected my severity. I get tested almost constantly and travel to many specialists. I am one of the more rare severe celiacs that have to watch everything.

 

Basically, for "new" celiacs I wouldn't worry about it up front. Just keep it in the back of your mind that if you do not adhere to the diet and doctor recommendations there are possible severe consequences. I was dumb enough not to listen and have to live with what I did as well as my loving supportive husband.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,797
    • Total Posts
      932,501
  • Member Statistics

    • Total Members
      64,282
    • Most Online
      3,093

    Newest Member
    lyoncallies
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Michael and welcome The celiac diagnosis process can be a little confusing. Some time ago I tried to put together some info and links that may be of help:    The key point would be to stay on gluten until you and your doctors are satisfied that celiac has been excluded. In your case that may include another test with a more complete panel as CyclingLady says above. If you go gluten free independently during this time you risk invalidating the results and adding to uncertainty. The second suggestion would be that should you succeed in eliminating celiac as a diagnosis then you have nothing to lose from trying the gluten free diet. I tested negative on blood and endoscopy, but removing gluten resolved or greatly improved a whole load of symptoms including anxiety, depression and that feeling of not being right that you outline above.  I say greatly improved because I can still suffer from anxiety or depression, as anyone can, but if I do, they're nowhere near as severe as they were when I was consuming gluten.  In the meantime, one thing you could do is to keep a food journal to see if you can track any relation between what you eat and how you feel. It's good practice for if you later try the gluten free diet and you never know what you may learn.  This is a good site full of friendly help and advice. I hope you get the help you need  
    • “I was coming here before I was diagnosed with celiac disease, but after, it was one of the few places I could go to since they had gluten-free items,” ... View the full article
    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
  • Upcoming Events