• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

My daughter tested negative for celiac disease after her first blood test. Her symptoms all point to celiacs. I do not want to put her through a biopsy at this point (she is 4). She seems to be reacting favorably to her new diet. I guess I am in denial. It is so difficult to feed a picky 4 yr old who can eat anything. Now throw this into the equation and I just don't know what to feed her. I went to the grocery store and was so discouraged reading the labels. Everything contains wheat. There is a gluten free section, but I am finding that a lot of the items are snacks and not "real food".

How many blood tests have you had before you tested positive? Also, if you are eliminating gluten from your diet, how could the test ever be positive?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


You have to be ON gluten to test the blood for Celiac (except the genetic test but that isn't diagnostic). We did three blood tests because we went to several Dr's but they were all +. Maybe check out Dr. Fasanos five diagnostic points to get an idea of what they look for. A + biopsy OR = blood work is needed for a Celiac dx but there are gluten sensitivities which don't hit all of the marks. If there is an improvement on the diet, stay on it!

Share this post


Link to post
Share on other sites

My kids all tested negative but my oldest son has some sort of food sensitivity so he is now gluten-free and almost milk free. He has less stomach aches and has gained about 2lbs in these couple of weeks that he has been gluten-free. I'm not sure if it coincidence, but he's staying gluten-free so won't be tested again any time soon.

His brothers are also gluten-free and one is very very picky. I let him snack on chex, and he has a slice of gluten-free bread a day, but that is the only processed foods he eats. I have to spend a lot more time cooking (gluten-free pancakes each morning with bee pollen, flax, whey protein added for health, and home made chicken nuggets a fe wtimes a week) but it's worth it.

Best wishes.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,915
    • Total Posts
      943,484
  • Member Statistics

    • Total Members
      67,081
    • Most Online
      3,093

    Newest Member
    Hinder1
    Joined
  • Popular Now

  • Topics

  • Posts

    • I didn't mean my world fell apart because of celiac but because of something else. Finding out about celiac disease actually gave me hope.
    • @PosterboyOne thing is though I never get heartburn. And this only happens when I've consumed something for consecutive days, like I had the bananas and too many nuts. But if PH has something to do with it then maybe when I'm eating more vegetables and broth that's why I usually feel much better, it's more alkaline. On a ph urine test whenever I'm feeling like this I ALWAYS have a reading towards the acidic part. When I feel better it always goes towards the alkaline level and usually in the ideal level. Part of it started when I was under high stress in the first place. A few years ago. I couldn't eat as much/well because I was very worried about things. The realization about celiac came later but basically my world fell apart and I've fought but never felt really okay again. Then at the worst before I knew about celiac disease I was vomitting for days. Now I can eat many more foods but it's still very touchy if I don't strictly eat vegetables, broth, lots of water and small amounts of fats and protein. I'm scared to take anything artificial. I've only recently been able to take very small amounts of probiotics. Is there no way to repair your stomach acid without taking pills? Would going on a strict alkaline diet help?  I read everything you wrote except the link which I don't know if I can concentrate right now. Thank you.
    • I have seen this a few times....run a gluten free bakery....one of my previous customers has the disease, but he gawks at my prices and then goes eats from other stores and consumes gluten products.....I tried offering freebies left over items to get him to switch....been watching him degrade over the past 3 years. He now walks...odd like Frankenstein with locked knees and a wobble and seems be much less active not appearing at this job few days a month now....I do worry about these people. Celiac effects everyone different some violently, others do not see the damage or have grown so use to the issues that they consider them normal. It is a sad thing to see. I have seen improvement in my own body following a strict diet and regime and see major consequences when I trip ......I can not imagine anyone cheating but my reactions are bad with many side effects. Celiac being a AI disease can cause other secondary complications I am all to aware of if  you cheat, mess up.
    • I don't know, it's probably best described as a lot of bile, sometimes yellow, sometimes green (sorry) and a lot of mucus (sorry_) and when I eventually throw it up  (if it gets to that point) it's burning in my throat, so I equate it with acid. Also because of the term "antacid" I think of it as a lot of acid but I guess it's a lot of bile, mucus and I thought the extra stomach acid produced dealing with whatever food I ate. I've done the wrong thing though because now I'm in the pain I was dreading, with swollen eyes and everything and really bad depression now and hopelessness. I keep feeling like it's all futile and too late. That however hard I try I can't figure everything out in time to be well.
    • I'm a scientist to be  (currently a student..) And i know how you feel
  • Upcoming Events