This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
Subscribe to FREE Celiac.com email alerts
What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
I'm in Okinawa for a week to visit family and for research-related reasons, and despite research on eating gluten-free in Okinawa, things have been unexpected and going wrong from the start. I've been here for 24 hours now and have already ingested at least 3 items with gluten
(I just got over what doctor was pretty sure was refractory celiac and was recovering well even after a big scare with eating barley after mix-up with a specifically prepared meal for an academic banquet). Now after the past 24h appear to be developing severe neurological symptoms. lymph nodes around neck are palpable and neck is extremely painful. Arms are weak and semi-numb on left side, clumsiness, arms and feet are burning in areas, balance issues, myoclonic twitching, visual impairment on left side (have confirmed optic neuritis), brain fog, EXTREME thirst (drinking 3-4 L water and still thirsty), and fibromyalgia -like symptoms. I took prednisone that my doctor gave me but doesn't seem to help much at all. I have contacted my doctor in states but don't think she can do anything until I am back and with lack of understanding for celiac here I don't think going to hospital is a good idea (not to mention have no idea costs with US health insurance),
Stomach is growling but I currently am nauseated, feeling extreme fullness and have absolutely no appetite but will have to force myself to eat something in AM as i have to somehow make a professional research presentation. Is there ANYTHING i can do to lessen symptoms? Has anyone been in Okinawa and able to eat gluten free? I have a small fridge but no stove in this hotel. I am in Naha and can't travel far, especially more so with symptoms. I can't eat fruit (fructose malabsorption), asked relative to boil eggs (she bought store pre-boiled eggs which I am scared to eat despite the lack of the kanji for "mugi" on the label), when I am having neurological symptoms any carbohydrate exacerbates symptoms, and I'm concerned that something like nuts or beans may worsen inflammation and symptoms if there is GI damage
So here's my adderall report.... I take it in the am, after my other melds and coffee. It's the XR version so it lasts all day for me, but the most helpful part is the first 4 hours. It takes a little while to kick in, and then I notice a calming effect. I'm usually very anxious so this is nice. I notice I'm more positive, and feel actually pretty happy, although I've got some major things pressing down on me I feel like I can think about them straight and get them taken care of, instead of panicking. I'm not starving all the time like I usually am. I felt hungry since I started taking my thyroid med and am worried I started gaining a bit of weight due to eating more. Now I don't feel like I need to eat between meals. I'm back to making every bite count towards nutrition. I've been better at taking care of more adult type duties. I'm happy to say that it's been a very good experience so far and I don't feel like I'm taking so much that I get a high from it. A decade or more ago I took double the dose I'm at now and I can tell you I was feeling that super happy high when it first kicked in, and although it felt great, it scared me as that is so on the path to some major addiction issues, you know? I can tell you that the current dose makes me feel like I did in my 20's, and I was pretty kick a$$ then, lol!
Found this article about a 11 year old with celiac who was forced to eat outside after being told he could not bring and eat his own "Safe" food into Shields Tavern. Biggest point was the social impact it had on the kid and the way it was handled.
I think this will bring up a new perspective and in the end perhaps open more restaurants to understanding that some of us have to bring own food to a gathering for our own safety and that ousting us for it is actual discrimination with legal implications. I personally bring my own food when I eat out, I tip big for it if they are understanding and normally order a 1 ingredient side to simplify it with the least chance of contamination. This is something many of us do to meet a compromise and interact in a social environment, and feel normal. While it really depends on person to person and how sensitive/comfortable you are eating out, heading out to accompany and eat with family, friends, and coworkers should be a option, even if we have to bring our own food as a compromise.
On a side note remember not every chain and store are the same, always talk to a manager, or call ahead before bringing in your own food, or eating out with special requirements, dietary restrictions, or extreme food allergies/intolerance.
Lanolin to my knowledge is used in skin based applications only, if your needing D3 the best way is to get a sublingual in a dropper you can use there are many available. I personally use Liquid Health and just add it to a drink once or twice a week. https://www.luckyvitamin.com/p-95099-liquid-health-vitamin-d3-drops-1000-iu-2-03-oz
BTW while your looking Liquid Health also makes a Stress & Energy Supplement, and a Neurological one I swear by. They have many other liquid based formulas if you wish to avoid pills (I already take a bunch anyway for other health issues)