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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Possible Dh? (Pics)
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5 posts in this topic

Good afternoon all :)

I am sure this is a stretch, but wondering if anyone could take a few moments and look at my pics to see if they believe I may be in the middle of a DH outbreak. With the swelling involved, I was assuming they were bites, however this has happened multiple times over the past two months and will be very random in nature as to when it appears. I can not pinpoint any specific cause...I only know it is unbearably itchy and inflamed when it occurs. The itch is so intense that I rotate hydracortisone and benadryl with minimal effect on the problem. If I itch the areas/rub the areas the swelling seemed to extend further out in the initial inflammation period. These most recent pics were taken starting Friday, Saturday, Sunday, and today Monday to show the progression. Once inflammation goes down you can see the smaller blisters that are fluid filled. I will get the small blisters on other areas of my body, not just wrist area. This has happened on lower face/chin, above knee/upper leg, and arm. I seem to always have areas sporadically that will be blisters that break open with the clear fluid. They will last quite some time and always leave a scar. The scar starts out a purple-ish red and then over time will fade a bit.

I have been food-allergy tested and am told I have 28 food allergies, but I cannot seem to figure out how one would eliminate that many foods, so I haven't eliminated any foods at this point. My allergist basically gave me an epi-pen, told me to not eat the offending foods, and sent me on my way to figure it all out. This is my second round of testing ( a year later ) which confirmed the allergies. He basically told me to avoid all vegetables (Beans/Peas were high allergen), Wheat, Corn, Rye, Barley, Soy, Potato, Tomato, Carrrots, Celery, Cinnamon, essentially all nuts...etc. Meats & dairy were A-OK but I am lactose intolerant.

Soooo....the pics:

This is right when it started:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2887_zps43d40646.jpg.html?o=9

Itchy/inflamed if even touched:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2914_zpsa5e221ae.jpg.html?o=6

Another pic...after inflamation started to go down:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2918_zps51e64e0f.jpg.html?o=4

After shower (super itchy in shower):

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2958_zps08ceb624.jpg.html?o=3

In daylight, inflammation going down and you can now see the blisters:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2961_zpse70bb7c3.jpg.html?o=1

Today the inflammation is much less, but blisters are noticeable:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2967_zps51c0950d.jpg.html?o=1&newest=1

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2971_zpsc705ae1a.jpg.html?o=0&newest=1

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I stopped trying to Id DH visually, so in really if no help.

Of you have a reaction to gluten or iodine (meaning it makes your rash worse) its a good hint it's DH.

I'm sure some here will say it looks like DH, others will say no.

DH usually has a 2 week (or so) life, and tends to itch more at particular times of day (later into evening). The sores usually swell and fill at night, drain, repeat for almost a week then start drying up. But as sure as I just said that, someone will disagree with me.

If you think it's DH, try going gluten-free and perhaps low iodine for a few months. If things improve you'll know you're into something. You could also ask a dermatologist for a biopsy.

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Thanks for the response. I would take te breakouts/itching any day over the severe stomach pain that afflicts me daily. My stomach literally revolts 24/7. It's just mentally exhausting. Was hoping that all if the symptoms together would provide a clue. Going just gluten free has never helped me completely as I have other allergies. Unfortunately I guess I am just one if those people who will be "out of luck" and have to live in pain:/ Hard to accept, but after this long I've given up hope.

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Well, quite frankly, all you can do is try.

Pick a group of foods and avoid them, keep a food diary, and see what happens.

I certainly understand what it is to be in constant pain, and don't wish it on anyone.

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Thanks for the reply. I will do my best. I know people here can't really give me answers without knowing history, test results, etc. Was just a random shot in the dark and a silent prayer for an answer/pain relief. :) My kids deserve me at my best...and I am really trying for them. If they were older I wouldn't be as worried.

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