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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Perfumes...
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6 posts in this topic

Alright, so i've had somewhat of a bad day today. Went to class, got to my third one of today, walk in and it smelt like someone had dumped an entire bottle of perfume there. I could feel the start of a major headache/throat ache coming on. Fine, told the professor that i might have to leave because of it (as the classroom has NO ventilation whatsoever). Had to stick it out because the attendence sheet went around whilst i was out of the classroom (i had to go outside for a bit, but left my digital recorder in place). Fine and dandy.

Came back to my apartment after missing the shuttle (ugh) and ate lunch (pb and honey on corn tortillas + some honey on a rice cake (yes i know, carb overload, leave me be)). Went back out to my next class, where i was for about 3 hours. On my walk over to my final course, I felt something strange.

My left side of my face felt as if i had been laying on a heating pad for a while (including the ear). I had also just passed a group of people that smelt like they had drenched themselves in perfume... again.

Its just now starting to go away (after a long shower which helps). I used to get this type of reaction (though more of a burn with it but it would start out like this) when i would eat tomatos. It is NOT a fun feeling (or memory for that matter). I say this because benadryl (should this keep up for another hour or so) is the only thing after an exposure to something. I kid not.

Taking into account that it had been about 4 and a half hours after i ate, I do not believe that is the cause. Every single time i've had an reaction, it was always within the first 30 or so minutes after exposure.

I should also note, such allergies to chemical like things run majorly within my family. For example, my grandmother cannot step into home depot without breaking out in hives. The same goes for being around perfumes and whatnot.

Just thought i'd come on for some ideas.

/end somewhat paranoid rant

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I understand the sensation you are describing. Happens to me in department stores or if I walk by one of those perfumey stores like Bath &Body or VS.

I can get an immediate, growing crushing headache very quickly. Fresh cool air, and avoiding "migraine" triggers is all I can do. A shower helps. Washing my face in the bathroom helps. Washing my sinuses with a Neti pot helps, too. So does an antihistimine.

It is MUCH LESS SEVERE now gluten-free;however, during allergy season it's much easier to trigger a scent reaction.

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glad i'm not alone. This is the first time with the face thing though, so i got spooked :unsure:

Its, i'd say, completely gone now. So strange though <_<

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Can you have wine at all, or does it make you sick?

I react to the same thing - perfume, big-time, plus store-bought tomatoes, too.

My own reaction has been due to sulfites. They are used as a preservative in the majority of perfumes, which is why I react to those, and they are in a commonly used spray to ripen tomatoes, too.

If wine makes you sick, too, you might want to check out sulfites. If it doesn't, then there is no way it's sulfites, as wine is high in sulfites. However, maybe it would be worth your while to check out common ingredients in perfumes and ingredients in any common sprays or ripening agents used on tomatoes and see if there are any ingredients used in both. Might be able to find out what you react to, you know?

Oh, another possibility? There are a few genetic enzyme deficiencies that can be checked by a geneticist. I do not know the names, but was just talking to someone about this the other day who had a deficiency that wouldn't let her body process certain toxins - some in perfumes - properly. Since so many in your family have this, that might be worth a look, too, if you save up for the tests, you know?

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i've never drank wine, but i've had it in food stuff (its been a while though) with no issues.

I'll definently look into it.

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I can drink wine...though after my wine tasting experience last fall I have a hard time drinking more than one glass of red.

Wine can give me a headache, other times I'm fine. But alcohol in general can make me headachey -especially if its allergy season.

Essential oil scents don't make me sick, and some perfumes are fine...but a "store full" bugs me, as well as spending too much time in the cleaning products line at the grocery store.

And don't get me started in the old guy that wears a bottle of cologne TO THE GYM....

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