• Ads by Google:

    Get email alerts Celiac.com E-Newsletter

    Ads by Google:

       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


6 posts in this topic

Recommended Posts

shadowicewolf    166

Alright, so i've had somewhat of a bad day today. Went to class, got to my third one of today, walk in and it smelt like someone had dumped an entire bottle of perfume there. I could feel the start of a major headache/throat ache coming on. Fine, told the professor that i might have to leave because of it (as the classroom has NO ventilation whatsoever). Had to stick it out because the attendence sheet went around whilst i was out of the classroom (i had to go outside for a bit, but left my digital recorder in place). Fine and dandy.

Came back to my apartment after missing the shuttle (ugh) and ate lunch (pb and honey on corn tortillas + some honey on a rice cake (yes i know, carb overload, leave me be)). Went back out to my next class, where i was for about 3 hours. On my walk over to my final course, I felt something strange.

My left side of my face felt as if i had been laying on a heating pad for a while (including the ear). I had also just passed a group of people that smelt like they had drenched themselves in perfume... again.

Its just now starting to go away (after a long shower which helps). I used to get this type of reaction (though more of a burn with it but it would start out like this) when i would eat tomatos. It is NOT a fun feeling (or memory for that matter). I say this because benadryl (should this keep up for another hour or so) is the only thing after an exposure to something. I kid not.

Taking into account that it had been about 4 and a half hours after i ate, I do not believe that is the cause. Every single time i've had an reaction, it was always within the first 30 or so minutes after exposure.

I should also note, such allergies to chemical like things run majorly within my family. For example, my grandmother cannot step into home depot without breaking out in hives. The same goes for being around perfumes and whatnot.

Just thought i'd come on for some ideas.

/end somewhat paranoid rant

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

I understand the sensation you are describing. Happens to me in department stores or if I walk by one of those perfumey stores like Bath &Body or VS.

I can get an immediate, growing crushing headache very quickly. Fresh cool air, and avoiding "migraine" triggers is all I can do. A shower helps. Washing my face in the bathroom helps. Washing my sinuses with a Neti pot helps, too. So does an antihistimine.

It is MUCH LESS SEVERE now gluten-free;however, during allergy season it's much easier to trigger a scent reaction.

Share this post

Link to post
Share on other sites
T.H.    404

Can you have wine at all, or does it make you sick?

I react to the same thing - perfume, big-time, plus store-bought tomatoes, too.

My own reaction has been due to sulfites. They are used as a preservative in the majority of perfumes, which is why I react to those, and they are in a commonly used spray to ripen tomatoes, too.

If wine makes you sick, too, you might want to check out sulfites. If it doesn't, then there is no way it's sulfites, as wine is high in sulfites. However, maybe it would be worth your while to check out common ingredients in perfumes and ingredients in any common sprays or ripening agents used on tomatoes and see if there are any ingredients used in both. Might be able to find out what you react to, you know?

Oh, another possibility? There are a few genetic enzyme deficiencies that can be checked by a geneticist. I do not know the names, but was just talking to someone about this the other day who had a deficiency that wouldn't let her body process certain toxins - some in perfumes - properly. Since so many in your family have this, that might be worth a look, too, if you save up for the tests, you know?

Share this post

Link to post
Share on other sites
Ads by Google:

I can drink wine...though after my wine tasting experience last fall I have a hard time drinking more than one glass of red.

Wine can give me a headache, other times I'm fine. But alcohol in general can make me headachey -especially if its allergy season.

Essential oil scents don't make me sick, and some perfumes are fine...but a "store full" bugs me, as well as spending too much time in the cleaning products line at the grocery store.

And don't get me started in the old guy that wears a bottle of cologne TO THE GYM....

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now

  • Topics

  • Posts

    • Solid advice. Wish that more people would consider that this might be necessary for some and not entirely paranoid. Could very well be airborne, but most likely culprit is something you're eating. That said, baking, construction/open drywall, farms/animal food and bulk/flour aisles in grocery stores are legitimate worries. I was recently having frustrating problems with random but minor flare-ups, and have eliminated almost all packaged food (even gluten-free) for a bit. It has helped tremendously. I hope that perhaps my sensitivity levels will calm down in a few years, but not being itchy and scabby is worth almost any cumbersome restriction. I think for me the problem has largely been to do with the use of oats in many dedicated factories (even gluten-free oats make me very, very sick). I came to this when lodging a complaint/notifying a company that I'd had an issue with one of their GFCO certified products. I figured that mistakes could happen, and could not imagine anything else I'd eaten that day could be a culprit (had only eaten veggies/rice/meat) so I contacted them to report it. Their response made me quite sure that the lot my food came from was fine from a legal/GFCO gluten-free perspective, but revealed that they make all their gluten-free products on the same line - which include granolas, oat flour etc. When I investigated it a bit more, I realized that many of the gluten-free products that I suspected were causing me problems (but had no real basis for why) were all made by companies that also make lots of gluten-free oat products. Previously, I had only avoided gluten-free products that contained oats as an explicit ingredient, and had never considered that the residues from gluten-free oats could be problematic. Unfortunately, now that gluten-free oats have been legalized in Canada, it is very difficult to find companies that do not use them in some capacity, which is why I axed most of the processed gluten-free stuff. Presumably, because the oats are considered gluten-free, there is no reason to clean the line or employ any allergen food safety practices from the company's perspective. While this may not be a concern outside of those who are super sensitive, it might worth considering if you are still having problems or have a known issue with oats. At the very least, avoiding most processed gluten-free foods (breads/flours/pastas/baked goods) seems to have helped me a lot, even if minor contamination with oats is not the true culprit. I would vouch for mostly sticking with rice, dry beans, root veggies and fresh corn (from the cob) as complex carbohydrate sources for a bit, even though it's a bit inconvenient.   
    • Hi everyone! I'm obviously new to the forums, but I'm also new to the idea of celiac/gluten free/etc.  Lemme give you the Cliff Notes version of my journey: 1992: I'm diagnosed with CFS/ME. It sucks and I'm tired and sick all the time. 2014: I'm still tired and sick all the time, so I decide to become a vegetarian. Maybe that'll help, right? I began getting deathly ill when I ate. Vomiting and diarrhea, everything I eat seems to be a problem.  I go to a doctor who runs a million tests. Nothing turns up. In among those tests is a celiac panel which has this result: no antibody detected and no serological evidence of celiac disease. No cause is ever found. I continue to suffer. Later in 2014: I notice that my stomach issues are triggered every time I eat a raw vegetable. I can eat bread or pasta no problem. Fake chicken? Great. Have a salad? I'm dying. This is a problem, as I'm a vegetarian. I nix the fresh veggies and continue to live my life. 2015: I'm diagnosed with Fibromyalgia. I realize that the problem with vegetables is worse than I thought. I can no longer eat cooked spinach, can't have lettuce on my sandwich, and stealing a single slice of cucumber set my stomach on edge for days. I'm becoming hypersensitive to veggies in food and protecting myself from their evil influence; my stomach thanks me. 2017: After a relative peaceful period, the stomach issues are back, worse. So I go to a new doctor (I've moved) and he recommends a colonoscopy and EGD (no labs). This was done yesterday. The full results will of course have to wait for the biopsies to be examined, but apparently there is scalloping "through the entire duodenum".  Doc told my partner that he believes I have celiac and discharged me with orders to go gluten free. Now I'm sitting here alternately considering drinking alone in the dark and throwing things--I guess I'm wavering between the stages of depression and anger on my trip through grief for my lost favorite foods. But here's where the confusion comes in...everything I'm seeing says that I should give up bread and eat more veggies, but veggies make me sick. Does anyone else have this reaction to vegetables? Meanwhile I'm thinking back to the labs done in 2014 and wondering if its possible to have a negative test and still be positive for celiac? Also, what actually happens if you DON'T go gluten free?
    • Hi Guys, I just thought of giving update on my case. I finally got my EGD done and unfortunately, the conclusion is I have Celiac. There was Villus atrophy and presence of Inflammatory Cells, looks like the atrophy of Villi isn't that worse yet, but of course, I need to get on strict gluten free diet right away. I am planning to see a Dietitian next week to have a healthy gluten free diet plan. Any suggestions from the experts in here are most welcome and appreciated. Thanks  
    • Hi this is my first time commenting but I just had to. I too get chest tightness. I have had it flare up several times with no answers. I was diagnosed with celiac about 6 months ago and am pretty confident this is a glutening symptom for me. Last month it was so bad... Started with random chest pains for a couple days then chest tightness that last for two weeks. I ended up going to the emergency room ( again) because I started worrying about my heart. Felt like my bra was so tight, bloated belly, trapped gas like pain in chest, swollen lump under sternum and no relief. EKG, chest xray and blood tests showed heart was fine. GI said he didn't think it was GI related. I give up on doctors. I've had this before and I'm sure I will again. It's like inflammation in there or something but it makes you anxious and uncomfortable. I truly hope you are okay and I hope it will give you some comfort to know you aren't the only one with this.
    • While I agree that getting more sleep when ill or stressed is a must, many people can easily get by on 6 hours of sleep a night.  Not everyone needs 8 hours of sleep.  Sleep needs, like the gluten-free diet, is different for everyone.  Nursing school can be very tough so it may be hard to get 8 hours every night.  I think the most important thing is to make sure no gluten is getting into your diet at all so you feel well and can manage your schedule better.  Good luck to you!
  • Upcoming Events