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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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doalltheyoga

Newly Gluten Free, Still Having Problems?

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Hi :)

I recently had a blood test done, no results yet.

The blood test won't tell me if I have celiacs (of course, according to my doctor, since I react pretty soon after ingesting gluten and all my vital levels were wonky she does suspect celiacs), but it will tell me if I have some of the 96 allergies I was tested for.

I've been gluten free off and on for about a year. This all started after I began birth control before getting married in 2010. This September, things started getting bad. Weight gain, bloating, nausea.. as well as eczema flair ups, hair loss, insomnia, body aches, severe constipation. the list goes on..

I thought I was pregnant, because I stopped the birth control thinking it was that. Nope, not pregnant.

I've cut out gluten and dairy (suspecting a whey allergy..) and I've been very strict.. new seasonings for food, condiments, stopped drinking coffee for goodness sake!! (can't take coffee without a little cream!!)

anyways, a week into it and I'm really not feeling that great.

My stomach feels torn up.. like I have a knife stuck and twisting in my stomach! It goes away if I don't eat for a while, but as soon as I eat something it's back.

I'm taking L-glutamine and aloe pills..sucking down the peppermint tea!!.. a friend of mine who has celiacs suggested Leaky Gut..

I'm feeling hopeless :( anybody have some ideas??

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Any blood tests for celiac at this point will probably come back negative seeing as you've been off and on it.

But it could be.

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Are you sure there is no cross contamination? Did you totally clean out your kitchen? Get rid of anything that might have gluten on/in it? Wooden cutting board? Toaster? Tub of butter or margarine? Peanut butter, jelly, condiments? Do you have a shared kitchen?

And even if you did do these things, a week isn't a very long time. It can take a while for the damage to heal. Just try to keep your diet as clean as possible and for the time being eat only whole foods such as plain meat, fish, vegetables, fruits, brown rice, etc.

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Are you sure there is no cross contamination? Did you totally clean out your kitchen? Get rid of anything that might have gluten on/in it? Wooden cutting board? Toaster? Tub of butter or margarine? Peanut butter, jelly, condiments? Do you have a shared kitchen?

And even if you did do these things, a week isn't a very long time. It can take a while for the damage to heal. Just try to keep your diet as clean as possible and for the time being eat only whole foods such as plain meat, fish, vegetables, fruits, brown rice, etc.

I share a kitchen with my husband. But we're very careful to not CC my food; Separate pans, utensils, counters.

I don't really eat PB, bread or jelly, and I bought all gluten-free condiments. I ate at Applebees on Sunday, but this pain is in my intestines. I know I could just be healing, so maybe is part of the process...

I eat a pretty whole foods diet, so I guess I'm doing all I can :)

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    • They have all given you good advice. Like Ennis_Tx said this is not medical advice. Just some observations. Ennis_Tx mentioned already a good B-complex. But people who have Perncious Anemia low B-12 have "Pens and Needles' feeling in their extremities. Mine was much more pronounced when sleeping. . . while sleeping my nerve ending would go to sleep. This would wake me from my sleep.  I would shake them awake/loose much like a leg that had fallen asleep while awake.  We have all felt that feeling before except the whole side of body's nerve ending would tingle/fall asleep enough to wake me from my sleep. Once taking a homocysteine tablet (B6,b12 and folic acid) tablet call FABB for the abbreviated ingredients under doctor's supervision this "pens and needles' went away. This also happened in my finger and toe tips while awake as if I had pinched a nerve in my back. These sensations are now in remission. Also if you think it is Rynaud's then try Niacin or Niacinamide.  It is a natural vasodialotor and the 'warm sensation" people take when using Niacin especially in a work out supplement is Niacin they add to enhance athletic performance for body builders.. . . because this opens capillaries approx. 10 % more allowing more air into the muscles thus improving their work out. This flushing goes away after a couple days of using Niacin.  The Niacinamide form does not flush the way the Niacin form does but provides the same benefit. Both Niacinamide and Magnesium each lower blood pressure approx. 10% each this way.  But if BP is a real problem for you  take the Homocysteine tablet mentioned above or just Folic Acid by itself. My BP is now normal after taking Folic Acid because it controls' how/what triggers constriction in our blood vessels thus effectively controlling BP. These are some times that I have used to improve my circulation. *** again this is not medical advice just things that have helped me with similar issues.  I hope this is helpful. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
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