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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Fear Of Food

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I've gone through a minor form of this - mostly post-glutening - where I just don't want to eat anything for a few weeks and it's all I can do to eat a meal or a few snacks a day. It's not the same level as what your experiencing, but I can sympathize with what you're going through. If you have less of a problem with liquids, I'd recommend smoothies and maybe broths or more drinkable liquid soups - like tomato or pureed squash - as many have done above.

I also have a more unorthodox suggestion - I have no idea what state you live in or what your views are on the matter - but, if it's an option where you live, you might want to consider talking to your doc about medical marijuana. I make the suggestion because it can increase appetite and lower anxiety levels. It did wonders for a friend of mine who had lost her appetite and was suffering nausea due to chemotherapy - and also had the side benefit of helping her deal better with her cancer diagnoses.

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I can see that. At my worst i would only eat chex, apples with peanutbuter, a veggie of some sort, and chicken broth cooked rice. :( Its not fun. I slowly expanded outward. Now my diet has a bit more variety i think :)

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I've gone through a minor form of this - mostly post-glutening - where I just don't want to eat anything for a few weeks and it's all I can do to eat a meal or a few snacks a day. It's not the same level as what your experiencing, but I can sympathize with what you're going through. If you have less of a problem with liquids, I'd recommend smoothies and maybe broths or more drinkable liquid soups - like tomato or pureed squash - as many have done above.

I also have a more unorthodox suggestion - I have no idea what state you live in or what your views are on the matter - but, if it's an option where you live, you might want to consider talking to your doc about medical marijuana. I make the suggestion because it can increase appetite and lower anxiety levels. It did wonders for a friend of mine who had lost her appetite and was suffering nausea due to chemotherapy - and also had the side benefit of helping her deal better with her cancer diagnoses.

I second this suggestion whole-heartedly. Of course, I would NEVER suggest that someone do something ILLEGAL...... not me, no sir. But weed works, baby. Makes you hungry and you don't have anxiety about eating either. Just have food ready beforehand that's safe.

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I second this suggestion whole-heartedly. Of course, I would NEVER suggest that someone do something ILLEGAL...... not me, no sir. But weed works, baby. Makes you hungry and you don't have anxiety about eating either. Just have food ready beforehand that's safe.

I was thinking along the same lines. Chemo patients benefit from medicinal marijuana, however, some people get more depressed and anxious from it.

Proceed with caution.

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I was thinking along the same lines. Chemo patients benefit from medicinal marijuana, however, some people get more depressed and anxious from it.

Proceed with caution.

^ She has a point. (She usually does....)

:D

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Have you tried theraphy animals? They can be very helpful. My own toy poodle, for example, knows when something is wrong and tries to calm us down by doing very silly thing (despite her age of 14). Sometimes those who cannot talk are the ones that are the most helpful.

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I hope you're doing better. Have you tried pudding? I made a huge batch of rice pudding last night and it's something I find really soothing. I don't have the same fear of foods but prior to diagnosis I had to force myself to eat and found texture is a big issue. I also think there is something soothing about those soft textures. Right now you need to baby yourself and literal baby food might help.

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That's interesting. My therapist said I was controlling this because everything else was out of my control.

So then you gave yourself a max you had to eat and that would put you back in control because the disease doesn't get what it wants either, correct?

Correct, since most food issues such as this are a control issue. I just switched what I controlled. I started at 500/day then each week added another 100/day until I was at 1200.

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Thanks all for the great suggestions and advice. I'm gonna use the timer idea. I think with the two bite rule I will fill little baggies with the food. Then I can just grab one. Ive started the smoothie with protein powder. Hubs is gonna make me batches of soup starting with chicken and rice today. I feel full just typing this.

I found out yesterday that they got all the cancer in my leg but it has already gone to the lymph nodes in the groin. Plan is to remove all the nodes on the left side groin area and the interferon treatment which lasts a year. I've read that alot of the patient's going thru are not able to finish the treatment because of the side effects. I think all of your suggestions are gonna be invaluable during that treatment.

Thank you all again. You are the ones who keep me motivated and focused on my health. I appreciate every one of you!

Be Well

Colleen

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Just take one step at a time. We're here for you.

When will they do the lymph nodes, Colleen?

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Just take one step at a time. We're here for you.

When will they do the lymph nodes, Colleen?

They are going to schedule the surgery and call me with the appointment. I will see a different oncologist for the interferon treatment, they will call with that appointment time also.

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Have you tried theraphy animals? They can be very helpful. My own toy poodle, for example, knows when something is wrong and tries to calm us down by doing very silly thing (despite her age of 14). Sometimes those who cannot talk are the ones that are the most helpful.

I have two toy yorkies. The oldest on knows me like a book. If I am in serious distress he even barks so hubs knows. I agree, some dogs are totally connected to you. My little guy is the best.

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Oh good :)

They help so much when you need to talk to someone who won't judge you and whatnot. I often, when i'm at home, kidnap my little one and take her upstairs to lay down with me. She gives me the most funny looks when i start talking to her lol.

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Hi Collen,

You may actually be full when eating small amounts of food. It could be your stomach has shrunk some from not eating a lot of food. That would make you feel full sooner than normal as your stomach is actually smaller. That can change though if you eat larger mwals regularly. Stretch that sucker back out! Another thing that can make you feel full is having a lot of gas in your stomach. That can really make it hard to eat and make you feel full in just a few bites, or even one. If you are gassy peppermint tea can help to get it out.

Please take some time and watch this TED talk video by William Li. He talks about anti-angiogenesis and cancer treatment. It turns out some foods we eat have potent anti-angiogenesis effects in the body.

http://www.ted.com/t...william_li.html

There is also a non-profit org set up to help people learn to eat cancer fighting foods, called Eat to Defeat Cancer.

http://www.eattodefeat.org/

http://www.eattodefeat.org/evidence

Um, about the therapist, I am a little skeptical of her/his opinion. What else would they say after all? Of course they are going to say it is a psych problem. It could be you are having a perfectly normal aversion to something that makes you feel bad sometimes. Eating. That is not a strange thing at all for peolpe with digestrive disease, and makes perfect sense. When you are sick and feel bad after eating, it is natural and normal to somewhat avoid that situation. Nobody likes being sick. I bet your therapist would do the same darn thing if they got sick when eating food.

You are trying to find a way around the situaiton, to fix it,. and that is good. You know you need to do something and that is a healthy attitude. High calorie foods are a good choice to help you out until your stomach gets better. I agree with eliminating the sodas, as they are mostly sugar and can cause you to have blood sugar swings, especially if you are not eating much protein. Protein helps even out your blood sugar levels and is important to include in your diet..

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gluten-free,

Great links, definitely helpful. Also, I am starting to turn my thinking around. Looking at it like a treatment for cancer. This diagnosis has really opened my eyes to the benefit of diet and exercise to lengthen survival rates. And I'm all for that.

Dicussing my issue with you guys after trying to ignore it has helped so much. I can't thank everyone enough.

Sending Chakra energies to all, Colleen

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That's great Colleen. Plenty of those foods could be a big help. Their diet is not gluten-free, so watch out for that, But mostly they reccommend whole food items. Yep, pack in some anti-angiogenesis foods every day if you can. Eat to get well, and feel full too. Not a bad plan at all. :)

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