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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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I have been a little absent from the forum for a while but I thought I would let people know what has been going on. Maybe this will encourage someone. I was getting desperate there for a while. I lost so much weight that my family members started saying I looked frail. I could not eat any foods in the moderate salicylate content category. I was extremely dairy intolerant. I couldnt drink out of plastics or eat anything moist that had been in many plastics without my throat swelling and losing my voice. Nevertheless I hung in there and ate that bland diet and started forcing myself to drink plenty of water out of a stainless steel container bought that does not contain a plastic lining. Drinking two liters of filtered water a day I found that my salicylate and acid sensitivites were going away. I can now eat many spices and I tolerate it well. I am not as sensitive to plastics as I was and can even use regular toothpaste instead of baking soda now.

Not everything is perfect though. I find that if I go too much on the side of carbs and sugars I still bloat up. I do not eat red meat that often. Honestly I do not miss it as it is much harder to digest and I have become accustomed to not having a heavy abdomen anymore. I still do not tolerate corn syrup at all and my body does tolerates only occasional and small amounts of corn starch before my lips and tongue go numb and start burning. Corn Syrup gives me extreme brain fog still and I even stutter if I get fructose comatosed by something I ate because they changed the ingredients and put high fructose corn syrup in it. I am still considering getting a test done for potential candida as I have noticed that I seem to thrive on a mostly low carb diet with lean meats and veggies.

All in all, I cannot complain. I feel very blessed that the biggest diet restriction is behind me now and it did not take a year for that to happen. Hello flavor! It is good to be able to love food again.

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Thanks for the hope! I was wondering where Razzle Dazzle was.

Diana

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Lol just in time for Halloween: " I'mmm BAaack!"

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    • Hello everyone! I have been following the forum for some time now but this is the first time I registered and decided to post as I need advice from someone who has experience with DH. I little bit of history...I was diagnosed with Hashimoto's few years ago. I started following gluten free diet which I realized was not very strict at that time meaning I stopped consuming gluten, wheat, etc. but I did not exclude the foods that were marked as 'possibly cross-contaminated with gluten'. I thought that is not so important at that time. Yet I have seen instant relief in my thyroid symptoms and my antibodies flew down every month. I also stopped consuming dairy at that time. Then, after about 10 months I was craving ice cream soooo much that I told 'ok, I will just have it one time'. Bad decision. Needless to say I ended up consuming ice cream and the wheat cone they put it in many times after that and my antibodies increased, too. At that time I noticed strong headaches, lack of attention, and itchy rash that appeared on my face. I started following strict gluten free diet again, the rash started to clear up veeeeery slowly, and few months later I finally decided to visit a gastro to get tested for celiac disease. Another mistake! She told me I need to introduce gluten again to get correct results. So I did it. I had another flare up and the worst headache ever I got in my life. I added gluten to my diet for 2 weeks only but I felt I could not continue this diet so I called off my next appointment. The gastro told me I could get a DNA test to know if I am career of the HLA DQ genes. I shall note that at that time I have been already tested for food intolerances and gluten came out as positive on that panel. Dairy was fine even though cow products were on the border (and I didn't consume much cow dairy at that time, mostly sheep and goat). I did a test with 23andme and had the results analysed through one of the sites that offer additional dna analysis services. I had one of the genes (DQ 2.2). I started a strict gluten free diet and this time I made sure I did not consume any cross contaminated foods as much as I could. This resulted in slow healing of my face rash and in about 9 months my face has been clean! I couldn't believe it. I was finally able to go our without foundation outside and everyone complemented my clear skin. I never had any specific gastro symptoms I shall say so again I was confused if gluten might be the culpit. I did introduce gluten for few weeks again and finally got blood tests done which, of course, came out negative (doctors said I shall consume gluten at least 2-3 months to get it accumulated). My face was flared up again but I was so confused and I was no longer sure if it is gluten, dairy, else....sigh...I started strict gluten free diet again.  Then, I went to a birthday party two weeks ago and on the next day I woke up with very itchy rash on both on my hands. It basically was a very similar pattern on both hands starting around my wrists and spreading to my elbows. I have very sensitive skin and I first thought this is an allergic reaction but I had no clue to what it might be - I did not change any cosmetics, soaps, other detergents, no new jewelries (I have nickel allergy), clothes...nothing new. Yet I started with the usual anti-allergic treatments to find out the rash didn't disappear nor become much better within few days as it usually happens when I have a true allergy. Instead watery blisters appeared and the itch was awful especially approaching the evening. The blisters were small, then they grouped into larger blisters, those blisters that 'became better' turned into a very red scale marks. Again doctors said it is allergy but it responds very bad to those treatments (almost not at all) and even now, two weeks later I still have some blisters left, my skin still itches and it has very strange red color. The rash is just covering smaller area now (not to my elbows) but it is still there..argh! Anyone who has dealt with DH (Duhring's disease), please, advise does this rash resemble what you get with Duhring's: http://tinyurl.com/yc2g2oep, http://tinyurl.com/y9b5g3vk? I start wondering if I could have been glutened on the birthday dinner and with all the dairy around (iodine!) it might have just been an added extra to provoke the rash. I am sorry for the bad photos, I did my best to take them holding the phone with one hand. I also start wondering if what I had on my face might be related to DH. The rash on my face never had those watery blisters, it was more like hives, very very itchy. I might try to find some old photos of my face rash, too. Shall I seek further diagnosis and speak about DH with my doctor? I am so confused as to how to proceed. I even did a iodine patch test last night but my skin became very red and itchy within few minutes of applying the patch so I had to take it off after an hour. My heart was racing for few hours after that and I can still feel the place the patch was applied to as extremely painful.  
    • I really don't prefer to eat gluten longer.  Every time I eat it, I think, "I'm destroying my villi with every bite".  I'd like to eat it as a little as possible before the blood test.  I received the order for the test in the mail today, so I can that at any time now. 
    •  bummer. I was kind Of invested in finding out what was going to happen with the vegetarian running husband.
    • I can tell you that the head pressure you are speaking about is one of the symptoms I am experiencing now.  And fogginess and dizziness.  I'm going to go as long as I can with my challenge. Im hoping the new GI I'm going to see will work with me. I would like him to do blood work every month to see if levels are changing.  There were so many problems with my daughter's challenge and testing. U of C at the time only recommended a 6 week challenge. And only tTG IgA and total IgA were run. Not a full panel. Well after the biopsy and when insurance wouldn't give us another referral we were told that there was a more extensive panel. By then she was gluten free and we were not going back.  
    • People are able to find a very old topic and add to it (bumping it up to current).  We need to remember to check the dates and realize that these people from 10 years ago may not respond.  Also, remember that product info, ma be even medical info, can change in that amount of time.
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