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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Costochondritis
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13 posts in this topic

Good afternoon everyone. I was wondering if anyone else has been diagnosed with this? I have a pain in my rib area directly under my left breast. sometimes it is so bad that I can't breathe, move, or anything! I went to urgent care and he said it was Costco and could be related to celiac. I do notice flare ups when I drink beer. Does anyone have insight on this? Thank you for your help.

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The doctor told me that if my son is going to have issues/pains from his celiac it would be in the area up and around where your rib cage ends and your stomach area begins. That high part.....

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Beer is made from wheat.... I hope it is gluten free beer you are drinking.

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That probably explains the possible pains then if you have/suspect celiac. They make some gluten free beer. My husband (also a celiac) say it taste just like regular beer. I can't think of the name right now, but I know Kroger sells it( it is in bottles).

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Hey!

I had costochondritis about 3 years ago. I'd never heard of it before. I started having this weird pain around my ribs on my left side, just under my breast. I thought, that's strange, and figured it would go away until one morning I'm sitting drinking my coffee and STAB! Ooh, it was bad. I managed to get myself to emerg and actually got bumped up the priority list because the pain was right over my heard. Many hours and tests later, the doctor announced it was probably this costochondritis thing, which is an inflamation of the cartiledge between your ribs, and all you can really do is take lots of anti-inflamatories and wait for it to go away.

I've never heard that it could be associated with Celiac. I, of course, always consider that, but I'd just had a mild cold and aparently it can be caused by a virus, though there's no clear-cut explanation for it. Just a weird thing that happens. It's never come back.

That said, bthack, if you have Celiac or are on the gluten-free diet, then eating (or drinking) gluten can increase your chances of getting weird things like this because your immune system is affected.

I miss beer too, but yes, there are several decent gluten-free beers out there, and they're getting better. It's not quite the same, but better than nothing.

Hope you get better soon!

Peg

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Yep, I had this for a few years and always thought it was my duodenal ulcer... then it got really bad this year while they were trying to figure out my GI diagnosis!

It has completely gone away since going gluten-free :) (unlike my other symptoms :( ).

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OMG costochondritis is horrible, for the last year I have had a rib that keeped poping out from inflamation, it was the one pain that put me over the edge. I have spent last few years in pain managment for multipul protruding discs, leg and SI joint pain, when the costochondritis came into the picture I couldn't take it, that's when I realy started searching for answers. I stumbled onto Gluten and casein intolerance back in July, within a week of going gluten casein free the rib pain along with everything else was gone. Also if I happen to accidentally eat gluten that rib pain is the first thing to come back. It's like a warning system. Good luck

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Wow thanks so much you guys for all the responses!!

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Just curious do you have other symptems? Migraines, eye lid twitching?

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Yes I have eye lid twitching, joint pain, constipation, lots of other issues but the worse of all is the costochondritis.

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Wow, it funny how a lot of us have similar symptems, yet my doctor still insists that I don't have a gluten problem because my test was negative, and he stoped there. As in your original coment about beer! I miss good German wheat beer, I can't even tolerate alcohol these days, my eye starts twitching and the rib pain starts. Hopefuly you can try some of the gluten-free beers or Woodchuck hard cider is a good replacment. It's not wheat beer but better than pain.

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Oh yowza! I had something like this...but I was in a car wreck while I had the flu. The combo of the impact of the wreck+coughing for weeks with flu=ripped cartilage on my ribs.

That was some of the worst, annoying, troubling pains out there since it "travels" across the area looking for nerve endings.

I'd never heard it was related to gluten (perhaps mine wasn't). It did go on for YEARS...and once it popped loose and sounded like a freakin' gun shot. Knocked me over like one, too.

I can honestly say if I'd have known it was triggered by gluten I'd have stopped gluten immediately.

It hurts THAT BAD.

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
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    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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