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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Egg/soya Reaction
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CR5442    13

Hi everyone. Just wanted to find out if it is normal to suddenly start reacting very distinctly to Soya flour and Eggs? I've been gluten free for a year and 4 months and suddenly started to get tingling lips, itchy face and body and water retention from these two foods. Is there a similarity between soya/egg proteins to gluten. Are there any other foods that are similar that I might want to steer clear of?

Also, does adrenal fatigue get worse with these reactions?

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shadowicewolf    166

Dear, that sounds more like an allergic reaction then it sounds like a gluten one. Please be careful.

It sounds as if you just stumbled upon an allergic reaction. I had a similar experience with tomatos....

At any rate, any reaction like that causes the body to be fatigued.

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Tingling and itching certainly can be a sign of allergic reaction. Might be worth checking with a doctor and asking about epipens, or to at least know what to do if you ever had an anaphylactic reaction.

My son has nut allergy and we carry epipens now.

Not sure on your other questions, good luck

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CR5442    13

Thanks all. I've never had a full on reaction but they do seem to be getting worse/more defined. My chest starts to close up and I have to drink water until I've washed the histamine out of my system. The NHS are very reluctant to run any kind of tests right now. I've only just been allowed to have another general panel of bloods taken... will be interesting to see what they come out with.

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Sometimes the NHS will give epipens without testing, or give them while you wait for testing I think.

They should act if you chest is closing up and severity is increasing.

It seems to really vary by region what they will do in the way of testing. The anaphylaxis campaign have some good info, or allergy uk. Helpline as well as online.

Dont be afraid to call an ambulance if you need to. They were great with my son.

Good luck :)

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Pegleg84    50

That does sound like an allergy. You should get it checked out.

But even if it's not, soy intolerance is common in Celiacs, one of those nasty extras we tend to develop. I haven't been able to eat soy for almost a year. Eggs also bother me, mostly in that if I eat them they seem to leave me feeling shaky and still hungry an hour or so later so what's the point. I think I just have trouble processing them. I think they're still fine in baked goods and such, but haven't tested that theory too heavily (am turning to vegan alternatives now that I have a non-egg eating vegetarian man to deal with. Banana's work quite nicely.)

Hope you figure out what's wrong and feel better soon!

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GottaSki    459

I agree that you should persue getting epi pens immediately. I have tested negative for all food allergies yet my allergy-like reactions to many of my intolerant foods have escalated to anaphylaxis.

I was able to obtain epi pens without an appt. I think most docs would rather error on the side of caution in cases of escalating allergic reactions.

Good luck - stay safe!

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