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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Hello,

So I have a bit of a story as to why im here. Several years back I was in the military and underwent a series of emotional and physical stresses I would label as severe. During the middle of these experiences I became very sick with stomach issues. This led to lots of other things, bad troubles sleeping, stomach discomfort, diahrea, severe fatigue, cloudy thoughts... The doctors in the Navy had a hayday experimenting with all sorts of possibilities as to what was wrong with me. I dropped like 40 pounds after several months of this. Eventually the doctors were baffled to a point they discharged me ( I assume out of fear for whatever reason) honorably. I became so fed up with doctors over the next year and trying to figure out what was wrong with me. May i add that i had a very horrible diet in my life for the whole extent of this...Living on all sorts of unhealthy combinations... I have always been a huge bread fanatic over the course of my life... Either way this all led to me dealing with these symptoms constantly for years. I was so fed up with doctors not finding out whats wrong that i took it upon myself to try and manage. Medicines and therapies did not help. Just recently over the past few months I resorted to trying to find dietary reasons for my problems.... It has essentially led me here... I have spent the past 2 days strictly gluten free with nothing but rice, plain chicken, hemp oil, and a couple other small things to keep myself fed... I am noticing a much greater tolerance to my meals with almost no nausea after my meals.... The difference was felt oddly sooner then I thought would be... This would be the short story of what led me here... I wanted to ask a community such as this if I may be onto the right thing here... I have a couple distant but blood related family members with celiacs so I thought i would try to see if this community could help me figure out what to do from here and if i am on the right track... Sorry for the long intro

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I think you've found the right community! Yes, it sounds as though you may very well have solved your medical mystery--many of us have similar stories to tell. Very few (if any) of us are fans of doctors as a result of many, many years of misdiagnoses and indifference on their part. Before you go much further with the diet, though, you should probably get tested for celiac by way of the full celiac panel. Do you have a good doctor at this time? Once you've been gluten free for a while, your blood tests will come out negative, so you should get tested right away.

If, however, you don't have health insurance, you may just wish to continue to eat a gluten-free diet and read the information on this forum. You won't have an official diagnosis, but you'll feel a LOT better!

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imo you should get tested before you continue with the diet. This requires you to be on gluten.

When, and if you go in, ask for the full celiac panel.

Only reason i'm suggesting this is if you go back on it now it will be less severe then if you wish to get an official dx later and have to do a gluten challenge for... three months i believe.

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I appreciate the responses... I am not on health insurance as of this moment... I have moved back from over seas and still establishing myself back in my home state. I am looking into my options for at least some sort of cheaper testing method. I am not exactly concerned about a certified diagnosis. I just want to feel better. After 4 years of what i have gone through symptom wise if gluten free is the answer im prepared to do it no questions asked... I dont care about knowing whats wrong so much as i do getting better if you get me. I am underweight and hate it... could barely get myself to eat one meal a day for years. and now so quickly im seeing improvement on myself so i felt like this would be a good community to aquaint me with changes. I find forums very helpful. . . and as i sure you get alot on here.... im loaded with food questions and google doesnt always spit out comforting answers when it regards to food.

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Hi Andrei,

Welcome to the forum! I posted some thread links that would be good reading for you. Getting better on the gluten-free diet is a good reason to stay on it. It is pretty common for people to have kind of a rollercoaster progress for the beginning of the gluten-free diet. So you may find yourself getting sick and then getting better getting sick again etc. Your body needs some time to heal and the bacteria changes in your gut can result in some issues. Some people even have withdrawl symptoms from gluten. Try to avoid processed foods for a while and stick with whole foods. In other words nothing in boxes or pre-made meals. Cooking from scratch is much safer to start out, and you don't need to spend lots of time reading labels in the store.

People also report being more sensitive to small amounts of gluten after being gluten-free for a while. So being careful to avoid traces can be important. You should get a new toaster, and colander. Stainless steel or cast iron pots and pans are ok if scrubbed thurougly. Scratched teflon pans and plastic and wooden utensils should be replaced, as they are difficulty to clean adequattly.

If corn doesn't bother you then Mission brand corn tortillas are a good sub for bread. Warm them up a ilttle so they bend without breaking. Rice cakes and peanut butter are ok except for Quaker brand is somtimes a problem. Eggs and meats, nuts and fruit and veggies are good food choices.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

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I appreciate the response with tips on this. I am getting well aquainted with eggs, rice, corn chips, and I am bulking up on some chicken and potatoes.. I will probably stay pretty strict on that for a while... Each meal im noticing more and more of a tolerance without that fatiguing nausea afterwords. Im glad I love to do experimental cooking... I was feeling a bit bummed out earlier but then i sat down to see what kind of items i have to get creative with and im surprised to say the least. I may have to do a gluten challenge later because I cannot afford the healthcare or tests as of now... I just want to put some weight back on and feel better.... a formal diagnosis is not of high concern... Once again i truly do appreciate the info :) tons to learn here for me.

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I essentially started researching on my own to find out what was making me feel so badly. I first feared fibromyalgia because my sister has it, but my symptoms varied too much to think it was that. I found celiac symptoms to almost mirror how I was feeling and after a lot of research I went gluten-free. I did it wrong because I should have gotten tested first, but you're without insurance and have been run through the wringer. At that point I would tend to agree with your method to do the gluten-free thing and if you feel better as a result, stick with it and accept it as if it were diagnosed. Obviously a diagnosis is the proper way to go for many reasons, but if you're unable or unwilling, you've taken the right next step. I would, however, get tested for vitamin/mineral levels to know what needs supplementation, even if it costs you out of your pocket to do so.

I felt like a new man after 2 days and most every symptom was completely gone by 4 days gluten-free. Only my sinus issues lingered longer, but they also lingered longer after being glutened so I assume that's normal for my body. Best of luck to you!!

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Yep, lots of reading is good Andrei, Here are some more threads for when you run out of reading.

The short temper thread is about some of the mental affects of gluten, which sometimes surprises people that don't understand that diet can affect our brains. The cheating thread is a topic that comes up now and again, as people womder how strict they really need to be.

The microwave bread thread might fit with your experimkenting. Easy and quick too.

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

http://www.nature.com/ajg/journal/vaop/ncurrent/full/ajg2012236a.html

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These threads have been amazing!!!! You guys are awesome.... So if you are still following my thread i have achieved 72 hours gluten free.... I would like to quote " I feel like a new man". I have a smile on my face that i have not had in years and a full belly that is not taunting me with pain. While i wear myself out kinda of easy there is no doubt I have gone the proper route. My wife is still currently in Bulgaria. When I make my next trip out there in the spring I will go through a proper diagnosis there. The medical costs are practically free for citizens and residents there and the doctors are wonderful. The doctors are lawfully allow to recommend and prescribe homeopathic remedies there as well. I feel I will get much more reliable answers from a doctor that is not paid to tell me one thing without leeway. But yes 72 hours and I just have a feeling I cant describe... Familiar but long since felt. It is quite nice. I long to have the energy to keep up with my 18 month old baby boy... This is very important to me and will motivate me to keep with this diet. I am getting ready to do my first gluten-free grocery visit in a few days... But as a symptom question I would like to ask... would loose stool and random flashes of fatigue be normal along with some brain fog on my detoxing.... I am so lightweight and small that I feel I will detox fairly quickly... 5' 10" and 128 pounds.... if that matters...THANKS AGAIN GUYS!!! The links are great

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P.S ...... with the comment about the short temper.... FOR MY ENTIRE LIFE I have been the most gleeful full of life person people knew... Till I got sick 4 years ago and this irritability came about me that was surreal. It wasnt me... I couldnt convince others as to why I was becoming like this... Like a grouch with no desire to see light anywhere. It greatly affected my relationships in my life and really cut down on my self esteem... I knew inside that it was not who i was and how i really felt... Its like i was involuntarily being an ass to people... I am starting to feel like its the fact i was living in gut pain and nausea for so long and possibly the gluten... I have been so overwhelmingly happy today...I didnt expect such quick energy and mood changes... But each day is better

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Hi Andrei,

Congrats on the 72 hours! You are on your way! I do want to caution you about testing though. If you are going to get tested, it is much better to do that right now. If you wait until later you will need to start eating gluten again for possibly up to 3 months before the antibodies build up enough to show on a test. Even then they may not be detected. The antibodies are mostly in the gut/intestine where they do their work. So if you plan to get tested it is much better to do it right away.

One of the classic signs of celiac disese is called failure to thrive in children. It is when children are slow to grow. These children may have bloated stomachs and poor digestion. Celiac causes damage to the gut and that inhibits absorption of vitamins and minerals the body needs to grow. So children with untreated celiac are ofen shorter and thinner than others.

I had unexplained short temper myself. I became very impatient for a period while I was still eating gluten. Very different from my usual self. Celiac can also cause depression and anxiety.

Celiac is an inherited condition, but not everyone who has the genes will develop celiac. About 30% of the USA population has a celiac gene. But only 1% develop celiac. So your children should be monitored and tested yearly for antibodies. Or at least if they develop symptoms that continue for several months. Celiac is an autoimune condiition and people with celiac have a higher chance of developing another autoimmune condition. Generally it seems like that happens more frequently when people with celiac continue to eat gluten for many years. Usually because they don't know they have celiac. The chance of developing other autoimmune conditions seems to decrease when gluten is removed though.

http://www.celiac.co...-and-Disorders/

It may help to take some extra vitamins during he first 6 months or more. It is good to get tested for vitamin and mineral deficiencies so you know if you need to supplement them.

I hope you stick around and feel free to ask questions. We all started the gluten-free diet at some point and had to learn about it ourselves. So we have an idea what it feels like to start new. :) Congrats again on feeling better, I hope you continue to improve! :D

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Thank you. We will be getting our child tested but as of now our son is 18 months old standing 34 inches tall and weighs 32 pounds... Doctors keep telling us he is the healthiest child they have ever seen. He is always happy and he is past the height weight standards for a 3 year old and not even two haha. It is very nice to see him so healthy. So by the time he is four before school and everything we will get him tested so if need be we can get his diet changed up before he is enrolled in school. As of now he doesnt show the slightest symptoms of anything being wrong. I do understand that i should get tested. But here in the U.S health care is outrageous. I have called every place in my city. I cant get the test for anything under 350 around here. I have played around enough with my diet over the past half year to narrow down what was causing my problems. I do not need a diagnosis to feel better about my decision. I can get a complete diagnosis with endoscopy back overseas for under 100 dollars from the best doctors in the country there. The medical industry does not savagely pillage money from the lower class over there as they do to us here. Like i stated their doctors actually practice homeopathy and are allowed to give all natural suggestions. If something can only be cured by a plant over here doctors are not allowed to tell us that. They are such a profit organization in this country. Sorry to rant about that.... The medical care i get overseas is 1000 times better then what i receive here. If i have to go through the gluten challenge i acknowledge ahead of time that i was pre informed and I am doing so at the risk of terrible pain in the name of a diagnosis....

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It always shocks me how many people here seem to have their doctors overlook celiac. Like what the hell is wrong with the medical community? You don't constantly ignore crohns, ulcerative colitis etc... why do they always look past something so basic? Drives me nuts. Celiacs is MUCH more common than crohn's, I remember reading crohn's was something like 1 in 10,000 and celiac is 1 in 100.

I am in disbelief that you have been overlooked by several doctors for so many years, not once did it cross their minds to test for celiacs... What are they learning in medical school?

Hopefully you found your answer, get the required tests and get back to living a normal life.

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It always shocks me how many people here seem to have their doctors overlook celiac. Like what the hell is wrong with the medical community? You don't constantly ignore crohns, ulcerative colitis etc... why do they always look past something so basic? Drives me nuts. Celiacs is MUCH more common than crohn's, I remember reading crohn's was something like 1 in 10,000 and celiac is 1 in 100.

I am in disbelief that you have been overlooked by several doctors for so many years, not once did it cross their minds to test for celiacs... What are they learning in medical school?

Hopefully you found your answer, get the required tests and get back to living a normal life.

.....follow the money......
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Sounds good Andrei, you do what works best for you of course. I agree, medical care is darned expensive here in the U.S. This forum helps a lot because we can share information on what works for us. Here is a thread on nettle tea and inflammation. So the doctors can't hide things from us forever! :)

http://www.celiac.co...r-inflammation/

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I really appreciate that. Homeopathy seems to be the only medical route i can take... My digestive track has no tolerance for lab created meds. and not sure if its mentioned on here and I will be sure to pass it onto the correct threads. But if anybody here struggles with Insomnia I would highly advise Skull cap or Valerian root as a excellent sleep aid. The valerian even promotes peaceful dreaming. Takes a few days to get working good and doing one week on and off swapping between skull cap and valerian root can really help keep anxiety down as well. Or depending on how many people here are medical marijuana smokers that works great as well. Ill go see what bit of info I can pass along here from my years of trial and error with symptoms. Thank you again :)

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    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
    • https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ ^ I did this a while back where some of us have posted what we take and eat to get our nutrients. Mines changed a bit since then since I can not eat any grains, sugars or fruits.
    • I take 2 Slice of Life gummy multivitamins and drink 2 Ensure high protein per day. Both are gluten free.
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