• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Is Cd Forever?
0

6 posts in this topic

New to all of this and I am wondering if anyone out there feels that our bodies will eventually heal and gluten can once again be tolerated. Please don't laugh if this is an obvious no but I am very curious to know if there are ways to heal the body and stop the response of gluten as an invader. I hear about success with other allergies and wonder what others think. I am currently taking aloe supplements which claim to heal the inside. I guess I am looking for any rays of hope that I won't have to think about food like I have been this last year.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Nicole,

I totally understand your question. It's a reasonable one to ask, too, since you are right that many sensitivities can be "cured." So, the answer to your question is, YES and NO. YES, our bodies will eventually heal the damage gluten has wrought, but NO, we will never be able to eat gluten again without re-inflicting the same damage on ourselves, because we carry a gene that causes our bodies to make antibodies to gluten no matter how little we eat of it.

Many other (non-genetic) food sensitivities are triggered by what is known as a "leaky gut," which allows undigested proteins to pass into the bloodstream. Our bodies then treat them like foreign invaders and produce antibodies against them. celiac disease is NOT a result of this process; rather, it is often a CAUSE of it. celiac disease can cause enough damage to allow the gut to "leak," which is why so many of us have secondary food sensitivities. After our guts heal, those sensitivities should clear up. (Aloe is beneficial in the treatment of leaky gut, at least for some individuals, but neither it nor any other remedy can address the presence of the gene we celiacs carry, unfortunately! :( )

I'm sorry to have to be the bearer of bad tidings, but gluten-free for life is the only way to maximize our chances of remaining in good health! We all have our grieving "phases" where we wish it could just all go away and we could go out to social gatherings without obsessing about the food or bringing our own along. (Like right now, in fact; I just responded to an invitation to my high-school reunion and requested that I be sent a copy of any menu they plan as soon as it is determined, so I can bring along food that is similar--especially for my kids, so they're not tempted to eat gluten. <sigh>) Grief is natural, and it comes in cycles. When I start feeling resentful, though, I deliberately recall how it felt to be constantly depressed, fatigued, and fuzzy-headed. Then I realize that there are worse fates than the gluten-free diet!

Good luck--I hope your grieving period is short!

0

Share this post


Link to post
Share on other sites

Thanks Sarah,

I have not gone gluten-free yet. I am really having trouble getting on the wagon as my doctors think no(allergist, gastro, primary care), my husband thinks no(thinks it is too stressful and no reason), enterolab says absolutely (both gene and gluten/casein sensitivity) and I have an autoimmune disease and thyroid disease both of which can be a result of it. I also suffer from brain fuzzy, stomach aches, skin blisters and the big D though this has been better with the addition of enzymes to my diet. All these things scream at me and yet if only I had some support on the home front. I worry about my kids too and am thinking about ordering a gene test for them. Funny I am going through this phase before I go gluten-free which I really think I am gearing up to. I am scared to get any other diseases. I am slowly integrating gluten free substitutes allowing me to feel good about my choices. The couple of times I have tried going gluten-free I have been stressed and low energy as I was overwhelmed with little time and energy to dedicate to figuring it all out. Brain fog. That is the gluten talking I think.

Thanks for you help.

Nicole

0

Share this post


Link to post
Share on other sites

have you had the "skin blisters" biopsied to find out if it's DH? that'd be an easy, definitive diagnosis...

0

Share this post


Link to post
Share on other sites

The biopsy of the blisters showed Linear IgA bullous dermatosis. I thought it would be DH but nope (Derm thought it pemphigus so I am lucky). I guess before immunoflourescence, they thought both were the same disease. IgA is deposited differently on the basement membrane zone in the diseases, granular in DH and linear in LAD. Supposedly some with LAD respond to a gluten-free diet but it is such a rare disease, drs don't know much about it. They prefer to medicate to suppress the blisters instead of figure the problem. At least with DH, the cause is clear -- not that this helps sufferers in the least. It is just weird to me that the diseases are so strikingly similar yet with LAD they do not think it is diet related (though there are two reports of remission on gluten-free diet). It is also a disease that can be drug induced and once the offending drug is removed, the disease clears up. Children get the disease and it is known as Chronic Bullous Disease of childhood. Go figure.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Yes celiac disease is a lifetime thing, and eating gluten free is the only way-FOR NOW- to prevent further damage. There are several groups of medical reasearchers working on treating celiac disease. They are working on several different areas. One of the GI drs doing research is from Oxford University and is a friend of a woman I know, who does medical research at Oxford.

Celiac diagnosis is MUCH more common in Europe, because they are much more knowledgable about it. Everyone in Italy is tested for it, because it is very common among Italians.

Strict adherance to the gluten free diet is very important, but may not be the only 'cure' in the future. I personally have NO desire for any gluten containig foods anymore, because of how terrible they make me feel. The problem that I am still struggling with is the hugely increased planning time, and lack of freedom for our family to just 'go get something to eat'.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,080
    • Total Posts
      934,212
  • Member Statistics

    • Total Members
      64,682
    • Most Online
      3,093

    Newest Member
    aneta dabrowska
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • I had not heard that. What I had heard is that folic acid supplementation can mask B12 deficiency. Feenejya suggested getting tested for H Pylori, not a bad idea. What you're going through sounds awful, I'm so sorry you're going through this. Please stay in touch, and do take care because chronic diarrhea can present some complications of its own, as you know. Try to replenish fluids and electrolytes.
    • There is also a celiac center at UCLA - Dr Weiss
    • mnburis, I'm concerned about your symptoms, especially the diarrhea being so frequent.  I experienced pellagra after prolonged diarrhea.   The symptoms are diarrhea, dermatitis, dementia and death.  Pellagra is a deficiency of niacin (B 3).  With your vitamin D and B 12 already diagnosed as low, you're very likely to be low in all the other vitamins and minerals as well.  The eight B vitamins are water soluble and need to be replenished every day.  The B vitamins all work together.  All should be supplemented if one is low.  Large doses of B 12 by itself can cause folate deficiency anemia if you're low in folate (B 9) already.  Ask your doctor about other vitamin deficiencies.  The easy ones to test for are D and B12.  Tell your doctor how severe your diarrhea is.  Ask about pellagra.  Here's some more information. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html https://www.dermnetnz.org/topics/pellagra/ I really hope this helps.  
    • thats so exciting! let me know if you need any help with finding gluten-free products or brands when you move here
    • I have had NO breath tests done. Just  blood, stool, colonoscopy and endoscopy. I'm sorry. I'm feeling so discouraged. I just know its going to be put down to IBS. And I personally feel  that IBS is a throw away diagnosis when no one wants to investigate further. 
  • Upcoming Events