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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Do You Deal With The Anger Of Accidental Glutening?
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8 posts in this topic

I have had the worst time with accidental glutening. Im feeling so sick and now Im feeling overwhelmed with anger. Im feeling like gluten is hiden everywhere and its out to get me. I know this is not a logical thought but I can help it. How do you cope with getting glutened from things that should not have gluten in them?

Im also feeling resentful when I see other people eating some of my favorite pre celiac foods. Is this a normal phase of coping?

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I brush it off and keep on going. Whats the point of getting angery?

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I was angry when I got glutened, but I'm only "mostly sure" where it happened so I can't even point a finger and say "That was it!" It's tough because you're sick and may not even know the source (but you sure know the cause!).

For the other part, I think of people who may be without sight or missing a limb and how they must feel when they see me moving about and appearing perfectly normal to them. I try to keep it real and always understand that, no matter how bad I may think it is, or how badly I wish I could have that favorite food, if this is my fate then I am very fortunate to have been handed something I can manage. Feeling how you feel is very natural and it takes a lot of effort to be tempted constantly with what amounts to poison for our systems.

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I do understand you!!!!!

I've had a roller coaster of a time dealing with this for five months now, and mostly have accepted that this is just one of life's tests. But for for some reason, this week in particular I've been wanting to rant "When will this freakin' diarrhea end?!!!!" Sigh.

It's okay to vent your frustration now and then. Of course, after that, we just have to pick up and keep going.

How I deal with the anger is I gripe and complain to my boyfriend for awhile and then remind myself that my doc was first looking for ovarian cancer, and thank God he found this instead.

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I so get it! I too would see people eating gluten and not understand why it was effecting me and not them, ugh! But you know once you get used to the diet, get used to asking waiters and waitresses all the needed questions the diet becomes part of your evry day life and that resentment kind of goes away. We learn there are so many more foods to eat, much healthier foods infact! I normally don't even eat gluten-free breads or cakes. The other day I made some rolls and had a half of one and reaized while eating it I really don't miss bread in my diet at all!!

Accidentally glutening? We have all done it. All I can say is learn and forgive yourself rather than kick yourself. I normally go to pretty much liquids to pass it as quickly as possible. I also take activated charcoal tabs which I have found help a great deal for me!

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When I read posts like yours from someone who has just adopted a gluten-free diet, I'm reminded of how oftentimes it is assumed that hidden gluten was the culprit when, in fact, your gut is still in the healing stage and may be reacting to other foods because it is mis-identifying those foods as containing gluten. I have seen countless posts where newbies have complained of how a gluten-free frozen meal or a gluten-free bread made them feel glutened and how they had fired off letters of complaint....but, really, when you first start out, your body can be very confused and may react negatively to many foods. If you're sure that gluten was the culprit, then have your angry moment and move on; however, if you constantly feel as though you've encounted "hidden" gluten where there should not have been, you may consider looking into whether or not you are currently sensitive to other foods. Once your immune system settles down, you can reintroduce any "trouble" foods...and it's quite possible that you'll be able to tolerate them. Foods to consider are dairy, soy, nightshade vegetables, other grains (even rice), and the gums in gluten-free products.

I hope you can get to the bottom of your hidden-gluten mystery and that you feel better soon....

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Thank you! Its so great to know that other people understand what Im going through.

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I find my problem is that I tend to have a problem of being on an emotional rollar coaster when I get glutened. It makes it harder for me to deal with things like the physical reaction to getting glutened. When I get glutened I can end up crying at the drop of a hat. It actually hits before the digestsive problems do. It is learning how to deal with the stress and anger that is important. For me it is easier if I realize that the anger is being triggered by the glutening. That makes me reevaluate whether my anger is justified and be able to respond in a more reasonable way.

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