• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

3 Day Delay?
0

12 posts in this topic

Hi All

So, I've been pretty diligent lately, cooking at home, taking digestive enzymes at every meal (which has been a huge help!), and eat out maybe once a week and somewhere I trust. Been doing generally better, though when I do have trouble it's always a question of: was it gluten? milk? soy? something else completely?

Anyway, last week I ate out 3 times, and while I ate at places I trusted and asked all the questions, there's always a possibility of getting CC'd. I ate out last on Saturday. Anyway, felt fine until tueday afternoon when I got a wicked headache, almost migraine-like (don't want to call it that, but it could be), and yesterday morning I woke up very sluggish, stomach pains, worst D I've had in a while, managed to have a shower but couldn't stomach breakfast because of the nausea. Anyway, I stayed home, slept for another 3 hours, and felt better by mid-afternoon.

As we always ask ourselves, what did I eat? I'm starting to suspect I have about a 2-3 day delay on a reaction, especially since it might be to very small amounts of cross contamination, made worse if accumulated over a period of time. I did eat a very small amount of tzaziki (dairy) inadvertently. (Ironic that this happened just after getting out of my endoscopy...)

I guess I wanted to complain (I hate missing work just cause my stomach is being stupid!) but also to ask if this makes sense. Can you time the delay on when you get cc'd to when you react? Or does it sound like it could be something else I'm eating (corn? nightshades?)

Anyway, put in your two-cents. I'm feeling a lot better today at least, and will continue to be even more careful.

Thanks

Peg

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I typically can feel the reaction in my muscles in my back/shoulders before I feel them in my gut. My gut takes about 2-3 days to catch up right now. As for it being other items, I don't know. I haven't narrowed mine down to anything (maybe because I'm in denial about any other possible causes! ha), but I'm sure it's not out of the realm of possibilities.

0

Share this post


Link to post
Share on other sites

In the beginning it's really hard to figure it out. I would get an almost immediate headache at one point, flu symptoms later. "Ball in stomac" feeling 24 hours....

Finally, it has settled into a severe stomach cramp @ 24 hours, then reflux for almost 2 weeks.

I did trigger an AI attack (so to speak) last winter by being too careless, too often, too close together (eating out, drinking alcohol that I didn't screen - flavored vodka). That was a few months of generally feeling like crap. Don't go there.

0

Share this post


Link to post
Share on other sites

I get slammed with a belly ache and, often, "C" after i eat out. My acid reflux acts up and i can't think straight. Lasts for a couple of days (it could be worse lol)

0

Share this post


Link to post
Share on other sites

Is there any chance that you may have had a stomach flu? It's going around right now.....so just a thought.

1

Share this post


Link to post
Share on other sites
Ads by Google:


For me it is a 3 day delay for most of my symptoms. This is especially the case for the stomach issues. I do get some neuro issues within 24 hours so then I get to have a couple of days of knowing what is coming, no fun. :(

When I was diagnosed my doctor told me to challenge suspect items for a week before trying anything else as it can take up to a week for the reaction to happen.

0

Share this post


Link to post
Share on other sites

Wow, This is my first time on this forum and every symptom I have finally makes sense!! I was just thinking today why do I not react right away to certain foods (gluten). Now , reading these posts , all my questioning has been answered. I'm also at 2-3 days.

0

Share this post


Link to post
Share on other sites

Back when I was trying to figure out why I was sick I did a gluten challenge. I had been off gluten a couple of weeks. I had Friday off so I started eating gluten on Thursday knowing I'd wake up deathly ill on Friday. I felt fine! I continued to eat gluten through the weekend. Then I woke up Monday morning and BAM, I spent 12 hours vomiting. I haven't had gluten since!

0

Share this post


Link to post
Share on other sites

  1. Why is there a delay for the onset of symptoms? I get the swollen lids with goop, heart races/ iregular heartbeat, major brain fog, terrible digestive issues, skin etc. ... basically cant leave the house.
  2. Pauliewog, I too have not been eating any gluten then had about 2 full days of gluten foods starting Tuesday& Wednesday , and yesterday morning it hit me hard. Today I'm feeling much better but still not fully recovered.

0

Share this post


Link to post
Share on other sites

I dint know why, but the nd I saw yesterday had a name for it. I'll have to write it down next visit...delayed "something" response.

It is real "medically"....

0

Share this post


Link to post
Share on other sites

Stomach pain in 20 minutes - feel like I've eaten a brick - literally! Rapid heart beat and big hot flush. Can trigger a migraine.

Next day often wake with symptoms of a bad cold which goes in a couple of hours then get the shakes and need to eat.

Through all this terrible nausea and the big C for 2-3 days. Can have to concentrate on not being sick.

Can get really upset, depressed, pessimistic, etc, etc.

Well worth avoiding gluten.

In the past, had trouble making cake/bread go down - perhaps my body was trying to tell me something - must be a very slow learner :blink: .

0

Share this post


Link to post
Share on other sites

Well, looks like I'm not the only one.

It's actually pretty amazing I haven't gotten the flu yet this year, since it seems to keep going around my office. But no, no stomach flu. i felt nauseus, but no vomiting (I've got a pretty strong stomach for being nauseous so often).

I think realizing that it does take 2-3 days to kick in for me might be a sign that most of my mystery issues have been gluten cc related in the end. Maybe there is nothing else hurting me? Maybe I just need to be super extra careful. I am definitely getting more sensitive to cc though. Ergh

The big test will be the end of the month when I'm in the UK for a week. 3 days of that I'll be cooking for myself, thank goodness, but hopefully I won't get attacked by something beforehand (likely to be milk, rather than gluten, actually).

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,448
    • Total Posts
      930,615
  • Member Statistics

    • Total Members
      63,871
    • Most Online
      3,093

    Newest Member
    Pamela Richey
    Joined
  • Popular Now

  • Topics

  • Posts

    • They are very highly refined and should not contain gluten.   If you aren't ingesting it, it is safe.  You could roll in wheat flour - if you could keep it out of your mouth.   i stay away from stuff with obvious wheat -usually wheat germ oil.  But I know Celiacs that very carefully use hair products with wheat germ oil for thier curly hair.  I just tend to get shampoo in my mouth .
    • That's a very normal reaction believe it or not. I would always tell someone to stay on gluten before testing is done because it's a lot easier staying on it than it is reintroducing it. I felt worse on my challenge than I had before giving it up the first time.  Whilst a definite diagnosis is the aim of many (I tried myself) and has benefits in terms of health monitoring etc there is no treatment other than the gluten-free diet so if you get negative or inconclusive results and can't face the further challenge you could choose to forgo it and just go gluten free.  Either way there will be plenty of support for you here. all the best.
    • Thank you so much. 8-12 weeks! Oh my goodness, I don't think I can do that. I think going gluten-free made my body's defenses go down or something. I felt bad before, but reintroducing it was completely awful! I still feel queezy a few days later. Let's pray it just comes back positive. lol
    • Thanks for the feedback!  Gemini you're very right - surgery was a totally weird recommendation.  My current doctor treated me without hormones because my TSH levels are normal. The doctor found that my Vitamin D levels were severely low and put me on a high dose. They climbed just out of the deficient range. I am very active and frequently outdoors,  and they still only climb out of deficient If i'm on intensive VIitamin D supplementation.  -  In addition, She also suggested I  a modified lower carb diet (I'm at a healthy weight, there was no reduction in calories, just an increase in protein and fat and a reduction in carbs,  a low reduction, slightly above the recommendations for a diabetic), which the doctor recommended for PCOS.  Both of these coincided correlated with a slight reduction in the anti-thyroid antibodies and a slight reduction in nodule size. My TSH levels have remained stable, so it was incorrect to say function, really just a reduction in the level of attack (but the thyroid levels are still high).  The doctor that recommended surgery did so because "you're about to start college and you won't have time for monitoring,  it will eventually fail. If we remove it now, you can just go on Synthroid and you'll never have to deal with the levels being out of whack."  Yeah.... I was 18 then.... I'm now 27, but my Mom just went "NOPE!" and got a second opinion.  This person was fine, but all he did was monitor to make sure the TSH levels stayed ok.  They did, I just have a goiter and several nodules.  The most recent endo. I've seen, who put me on intensive Vitamin D therapy and worked with me on the diet,  felt like she was thorough (again minus completely dismissing the first celiac results. I think the D supplementation and diet were associated with a decrease (but obviously didn't and really couldn't reverse the outcome of the disease) in antibodies and nodule size because my TSH levels have yet to get out of whack. I also wonder if with fewer carbs, I ate less (thought still too much If I'm celiac) gluten, and  that could have been more a factor in the correlation.  Gemini- I'm glad that you have found a good treatment that keeps your levels where they need to be!  I also really appreciate the welcome. Update:  I have a referral to a GI specialist! I don't want to have Celiac... I love to travel, and I'm very social. I live in the US but my family is from Uruguay, South America, so I carry this Latin Cultural thing about loving to share food and seeing it as such a huge part of hospitality and community.  I know that food in social settings gets hard to navigate...But I feel a sense of relief to think that I might have an answer to other health questions and that there is a way that I can stop or at least slow damage.   
    • These can be sourced from various ingredients one being wheat. Please check with the manufacture of your products to figure out if they contain gluten or how they are made....and yes gluten in your makeup, and especially lotion, shower gel, etc is a huge issues. Consider this, gluten contamination can happen from gluten protein residue. How often would you touch your arms, hair, etc or use your hands and touch your food, plate, fork, spoon before putting it in your mouth? Do you bite your nails, sometimes pick up a mint or gum? Hate to say it this way but if you use gluten containing stuff like that shit will happen with cross contamination. Consider changing over to a dedicated gluten-free version of hygiene products and save your self the drama. I use EO products, The Seaweed Co, Savvy Naturals, Hugo Naturals, and Vaseline products products without issues personally.       
  • Upcoming Events