• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

3 Day Delay?
0

12 posts in this topic

Hi All

So, I've been pretty diligent lately, cooking at home, taking digestive enzymes at every meal (which has been a huge help!), and eat out maybe once a week and somewhere I trust. Been doing generally better, though when I do have trouble it's always a question of: was it gluten? milk? soy? something else completely?

Anyway, last week I ate out 3 times, and while I ate at places I trusted and asked all the questions, there's always a possibility of getting CC'd. I ate out last on Saturday. Anyway, felt fine until tueday afternoon when I got a wicked headache, almost migraine-like (don't want to call it that, but it could be), and yesterday morning I woke up very sluggish, stomach pains, worst D I've had in a while, managed to have a shower but couldn't stomach breakfast because of the nausea. Anyway, I stayed home, slept for another 3 hours, and felt better by mid-afternoon.

As we always ask ourselves, what did I eat? I'm starting to suspect I have about a 2-3 day delay on a reaction, especially since it might be to very small amounts of cross contamination, made worse if accumulated over a period of time. I did eat a very small amount of tzaziki (dairy) inadvertently. (Ironic that this happened just after getting out of my endoscopy...)

I guess I wanted to complain (I hate missing work just cause my stomach is being stupid!) but also to ask if this makes sense. Can you time the delay on when you get cc'd to when you react? Or does it sound like it could be something else I'm eating (corn? nightshades?)

Anyway, put in your two-cents. I'm feeling a lot better today at least, and will continue to be even more careful.

Thanks

Peg

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I typically can feel the reaction in my muscles in my back/shoulders before I feel them in my gut. My gut takes about 2-3 days to catch up right now. As for it being other items, I don't know. I haven't narrowed mine down to anything (maybe because I'm in denial about any other possible causes! ha), but I'm sure it's not out of the realm of possibilities.

0

Share this post


Link to post
Share on other sites

In the beginning it's really hard to figure it out. I would get an almost immediate headache at one point, flu symptoms later. "Ball in stomac" feeling 24 hours....

Finally, it has settled into a severe stomach cramp @ 24 hours, then reflux for almost 2 weeks.

I did trigger an AI attack (so to speak) last winter by being too careless, too often, too close together (eating out, drinking alcohol that I didn't screen - flavored vodka). That was a few months of generally feeling like crap. Don't go there.

0

Share this post


Link to post
Share on other sites

I get slammed with a belly ache and, often, "C" after i eat out. My acid reflux acts up and i can't think straight. Lasts for a couple of days (it could be worse lol)

0

Share this post


Link to post
Share on other sites

Is there any chance that you may have had a stomach flu? It's going around right now.....so just a thought.

1

Share this post


Link to post
Share on other sites
Ads by Google:


For me it is a 3 day delay for most of my symptoms. This is especially the case for the stomach issues. I do get some neuro issues within 24 hours so then I get to have a couple of days of knowing what is coming, no fun. :(

When I was diagnosed my doctor told me to challenge suspect items for a week before trying anything else as it can take up to a week for the reaction to happen.

0

Share this post


Link to post
Share on other sites

Wow, This is my first time on this forum and every symptom I have finally makes sense!! I was just thinking today why do I not react right away to certain foods (gluten). Now , reading these posts , all my questioning has been answered. I'm also at 2-3 days.

0

Share this post


Link to post
Share on other sites

Back when I was trying to figure out why I was sick I did a gluten challenge. I had been off gluten a couple of weeks. I had Friday off so I started eating gluten on Thursday knowing I'd wake up deathly ill on Friday. I felt fine! I continued to eat gluten through the weekend. Then I woke up Monday morning and BAM, I spent 12 hours vomiting. I haven't had gluten since!

0

Share this post


Link to post
Share on other sites

  1. Why is there a delay for the onset of symptoms? I get the swollen lids with goop, heart races/ iregular heartbeat, major brain fog, terrible digestive issues, skin etc. ... basically cant leave the house.
  2. Pauliewog, I too have not been eating any gluten then had about 2 full days of gluten foods starting Tuesday& Wednesday , and yesterday morning it hit me hard. Today I'm feeling much better but still not fully recovered.

0

Share this post


Link to post
Share on other sites

I dint know why, but the nd I saw yesterday had a name for it. I'll have to write it down next visit...delayed "something" response.

It is real "medically"....

0

Share this post


Link to post
Share on other sites

Stomach pain in 20 minutes - feel like I've eaten a brick - literally! Rapid heart beat and big hot flush. Can trigger a migraine.

Next day often wake with symptoms of a bad cold which goes in a couple of hours then get the shakes and need to eat.

Through all this terrible nausea and the big C for 2-3 days. Can have to concentrate on not being sick.

Can get really upset, depressed, pessimistic, etc, etc.

Well worth avoiding gluten.

In the past, had trouble making cake/bread go down - perhaps my body was trying to tell me something - must be a very slow learner :blink: .

0

Share this post


Link to post
Share on other sites

Well, looks like I'm not the only one.

It's actually pretty amazing I haven't gotten the flu yet this year, since it seems to keep going around my office. But no, no stomach flu. i felt nauseus, but no vomiting (I've got a pretty strong stomach for being nauseous so often).

I think realizing that it does take 2-3 days to kick in for me might be a sign that most of my mystery issues have been gluten cc related in the end. Maybe there is nothing else hurting me? Maybe I just need to be super extra careful. I am definitely getting more sensitive to cc though. Ergh

The big test will be the end of the month when I'm in the UK for a week. 3 days of that I'll be cooking for myself, thank goodness, but hopefully I won't get attacked by something beforehand (likely to be milk, rather than gluten, actually).

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,797
    • Total Posts
      932,506
  • Member Statistics

    • Total Members
      64,282
    • Most Online
      3,093

    Newest Member
    lyoncallies
    Joined
  • Popular Now

  • Topics

  • Posts

    • Certainly seems likely if those levels dropped due to gluten removal. I am just curious, when you had the scope eventually, were you eating it?  Are you feeling any better? 
    • 1. Double checked your antibodies? 2. Those of us with celiac have issues with some nutrients for various reasons, being either we can not absorb enough of them from our foods due to damage to intestines or the new gluten-free foods you changed to are non fortified and do not contain the nutrients you which is especially true if you eat a bunch of processed gluten-free foods. A combination of both of these can lead to extreme fatigues. I found taking Magnesium, and B-Vtitamin supplementation helps (Liquid Health Stress & Energy along with Neurological support same company, Liquid version is easy to absorb and no pills). Look into KAL Nutritional Yeast also, I use it to make condiment cheese sauces, toppings, blend it with egg whites. it contains many nutrients we are lacking and is a great supplement/food to have in your diet. 3, Look into what cycling lady mentioned, this could also be a issues. 4. Had your blood sugar checked?
    • I'm going to play Captain NCGS to Posterboy's Professor Pellagra (No doubt the Marvel and DC Cinematic Universes will soon be bidding for our services) and say that regardless of the blood test results, this: is exhibit one. You have a reaction to the gluten free diet. That doesn't necessarily eliminate fodmaps or issues with other components of wheat, but it's at least suggestive and the main reason I think you need to get back on it and give it a longer go. In fact, as I hinted at in the previous post, I'd be doing my 'goodbye gluten' top 10 croissant and bagel bucket list because I don't think you should go back to it simply based on exhibit one. It's messing with you in a way that it shouldn't. I had sciatic back pain for 20 years which I attributed to a disk injury. It was left sided and when bad travelled down my left leg following the sciatic nerve. I had all the scans, treatments, exercises etc. Nothing really worked and it was at times intensely debilitating.  Drum roll... Gluten free diet cured it. My new theory is that gluten related inflammation was localised in that area and it caused the pressure on the nerve. Now why there and not elsewhere? No idea, but it could be inflammation causing your pain? I went for several diabetes tests because I would suddenly become very weak, hungry and I would feel unwell. Weak, hot, light headed, on the verge of passing out. The tests were normal but I knew that I seemingly had a blood sugar issue. Another win for the gluten-free diet.  It sorted the tremors in my hand (begone thoughts of early onset parkinsons or ms) and the nerve twitching under my eye and etc etc. well you get the point. I've said above I sometimes wonder if I'm undiagnosed celiac but there are certain aspects of NCGS which seem to fit me and maybe you too. My digestion stomach etc is much better now but I wouldn't have said before all this that it was particularly bad. I read this http://www.bmj.com/content/345/bmj.e7982 and I have a similar experience that neuro symptoms were more apparent than digestive in the 'classic celiac' model. (more of that sort of thing here though I already sent you the Umberto Volta I think. I would be fascinated if you, your brother and myself were to do the gluten challenge and then take this test: http://www.medicaldaily.com/non-celiac-gluten-insensitivity-blood-test-392850 what the result would be. But you know what, unless the scientists put out a call for more volunteers I won't be doing it. In the search for answers, validation, certainty, it's easy to forget the real goal, feeling better. After several years on the gluten-free diet I feel better. I'm no longer thinking that the next bout of chest pain will be my last minutes on earth. I no longer worry about going blind because half my vision has gone grey, I'm not trembling, I don't have cardiac arrythmia, I don't have rheumatic pain, I don't have crippling back ache like I'm 40 years older, I don't get  faint, dizzy and heart pounding when I stand up,  I don't have brain fog, anxiety, depression (well sometimes!), painful stomach cramps, weird white tongue, rashes on my torso, horrible greasy skin on face, horrible dry peeling scalp, sores on my scalp and neck, white spots on my fingernails, I'm not sweating so much I have to douse myself in antiperspirant, I don't have all this and more and I don't have a letter from a doctor saying I have celiac and I don't give a **** about it. I don't have gluten and as the Godfather of soul would say...  I feel good  Feel good IT. You've done as much as anyone could to find an answer. Maybe there's one around the corner or maybe there'll be one in 5 or 10 years when the likes of Marios Hadjivassiliou, Umberto Volta or Alessio Fassano have completed their research. Or maybe not or never. It's in the 'nice to have' than the essential's for me now. Do the diet, note your symptoms, stay connected with your doctor so that if there is anything that sticks around suggestive of other things you're on top of it, but feel good and focus on that and enjoying life.  All the best!    
    • I think he's right. It's a hard burden at times at any age but there will be particular challenges for your daughter as kids don't want to stick out or have to be continually monitoring things like their food. Check out this advert from a UK retailer. Beware it's so sugary it could probably give a diabetic person a sugar crash! Maybe you could do similar? Just get or make a selection of kid friendly foods but don't say anything about it to your daughter, just everyone go in and start filling their plates.  If she asks you if you've done anything for her you just tell her that she can eat everything on the table. At least this would show both that choice is still available to her and that because everyone is eating the same thing that she won't feel like she's being singled out?  
  • Upcoming Events