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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

3 Day Delay?
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Pegleg84    50

Hi All

So, I've been pretty diligent lately, cooking at home, taking digestive enzymes at every meal (which has been a huge help!), and eat out maybe once a week and somewhere I trust. Been doing generally better, though when I do have trouble it's always a question of: was it gluten? milk? soy? something else completely?

Anyway, last week I ate out 3 times, and while I ate at places I trusted and asked all the questions, there's always a possibility of getting CC'd. I ate out last on Saturday. Anyway, felt fine until tueday afternoon when I got a wicked headache, almost migraine-like (don't want to call it that, but it could be), and yesterday morning I woke up very sluggish, stomach pains, worst D I've had in a while, managed to have a shower but couldn't stomach breakfast because of the nausea. Anyway, I stayed home, slept for another 3 hours, and felt better by mid-afternoon.

As we always ask ourselves, what did I eat? I'm starting to suspect I have about a 2-3 day delay on a reaction, especially since it might be to very small amounts of cross contamination, made worse if accumulated over a period of time. I did eat a very small amount of tzaziki (dairy) inadvertently. (Ironic that this happened just after getting out of my endoscopy...)

I guess I wanted to complain (I hate missing work just cause my stomach is being stupid!) but also to ask if this makes sense. Can you time the delay on when you get cc'd to when you react? Or does it sound like it could be something else I'm eating (corn? nightshades?)

Anyway, put in your two-cents. I'm feeling a lot better today at least, and will continue to be even more careful.

Thanks

Peg

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BushMommy    0

I typically can feel the reaction in my muscles in my back/shoulders before I feel them in my gut. My gut takes about 2-3 days to catch up right now. As for it being other items, I don't know. I haven't narrowed mine down to anything (maybe because I'm in denial about any other possible causes! ha), but I'm sure it's not out of the realm of possibilities.

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In the beginning it's really hard to figure it out. I would get an almost immediate headache at one point, flu symptoms later. "Ball in stomac" feeling 24 hours....

Finally, it has settled into a severe stomach cramp @ 24 hours, then reflux for almost 2 weeks.

I did trigger an AI attack (so to speak) last winter by being too careless, too often, too close together (eating out, drinking alcohol that I didn't screen - flavored vodka). That was a few months of generally feeling like crap. Don't go there.

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ravenwoodglass    1,214

For me it is a 3 day delay for most of my symptoms. This is especially the case for the stomach issues. I do get some neuro issues within 24 hours so then I get to have a couple of days of knowing what is coming, no fun. :(

When I was diagnosed my doctor told me to challenge suspect items for a week before trying anything else as it can take up to a week for the reaction to happen.

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stefb    0

Wow, This is my first time on this forum and every symptom I have finally makes sense!! I was just thinking today why do I not react right away to certain foods (gluten). Now , reading these posts , all my questioning has been answered. I'm also at 2-3 days.

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Pauliewog    14

Back when I was trying to figure out why I was sick I did a gluten challenge. I had been off gluten a couple of weeks. I had Friday off so I started eating gluten on Thursday knowing I'd wake up deathly ill on Friday. I felt fine! I continued to eat gluten through the weekend. Then I woke up Monday morning and BAM, I spent 12 hours vomiting. I haven't had gluten since!

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stefb    0

  1. Why is there a delay for the onset of symptoms? I get the swollen lids with goop, heart races/ iregular heartbeat, major brain fog, terrible digestive issues, skin etc. ... basically cant leave the house.
  2. Pauliewog, I too have not been eating any gluten then had about 2 full days of gluten foods starting Tuesday& Wednesday , and yesterday morning it hit me hard. Today I'm feeling much better but still not fully recovered.

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Lady Eowyn    14

Stomach pain in 20 minutes - feel like I've eaten a brick - literally! Rapid heart beat and big hot flush. Can trigger a migraine.

Next day often wake with symptoms of a bad cold which goes in a couple of hours then get the shakes and need to eat.

Through all this terrible nausea and the big C for 2-3 days. Can have to concentrate on not being sick.

Can get really upset, depressed, pessimistic, etc, etc.

Well worth avoiding gluten.

In the past, had trouble making cake/bread go down - perhaps my body was trying to tell me something - must be a very slow learner :blink: .

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Pegleg84    50

Well, looks like I'm not the only one.

It's actually pretty amazing I haven't gotten the flu yet this year, since it seems to keep going around my office. But no, no stomach flu. i felt nauseus, but no vomiting (I've got a pretty strong stomach for being nauseous so often).

I think realizing that it does take 2-3 days to kick in for me might be a sign that most of my mystery issues have been gluten cc related in the end. Maybe there is nothing else hurting me? Maybe I just need to be super extra careful. I am definitely getting more sensitive to cc though. Ergh

The big test will be the end of the month when I'm in the UK for a week. 3 days of that I'll be cooking for myself, thank goodness, but hopefully I won't get attacked by something beforehand (likely to be milk, rather than gluten, actually).

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