• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

13 Year Old Sick All The Time :(
0

6 posts in this topic

Hi just found you guy's!!!!!!!! I am a single mom my daughter has celiac and type1 diabetes ;( she is sick all the time, I feel like we live at urgrnt care, her doctor just basiclly tells us to deal with it, her diabetes doc is more helpfull but can only see him 3 times a year, living in colorado so blessed to have the barbra davis center for diabetes but they are booked months in advance, my kiddo is hardly ever at school so the school is making it really difficult for me, i feel like we go to urgent care at least 3 times a week just for doctors notes, my income is limited so i can't even aford the fancy gluten free foods ;( I would love any advise on what we can do to get her feeling better we do strict gluten free also have to do sugar free for diabetes, and doctot has her drinking Miralax like crazy, which i am so afraid that this is bad for her,even though she has been gluten free for at least 3 months all the xrays still show that her colon is still not cleared completely please any help would be so gratefull, so tired and sad about this and it's hard when you don't have backup, it's just me and my kiddo, Thank you

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


You don't need to buy all the gluten free (easy to use) items.

Put her on a whole foods diet (meat veggies fruit grain) stay away from processed foods for a while.

Those gluten free goodies are just that, goodies. They do not need to be eaten on a daily basis. You can also learn how to make them yourself.

To avoid cross contamination it is best to replace things that are scratched, that are wooden, that are plastic (colender), and to have a seperate toaster.

Have you checked if her toothpaste is gluten free? What about chapstick? Makeup?

Will she eat prunes or drink the juice? What about a digestive enzyme pill, those help.

Has she been strict? I'm not trying to imply anything but sometimes with children, especially those just starting out, it is very hard on them and sometimes they cheat.

What about the school? Do you have a 504 plan for her? If not, get one. It will help with the absences and whatnot. Since celiac falls under the ADA act (americans with disabilities act) they have to accomodate.

0

Share this post


Link to post
Share on other sites

I think your state will have "homebound" student exemptions too. It is not easy, but all her work is sent to your home with a teacher visit once a week.

Some states are starting more on-line options for PUBLIC school as well as private school options. Connections Academy (make sure you are in the public school option) and K 12 are two cyber schools that I know of. Sometimes public school environments are not for every student with medical conditions, even if there are 504 plans in action.

Some other areas of cross=contamination...

pet foods

cross contaminated baking ingredients (flour dust clouds can contaminate other ingredients)

0

Share this post


Link to post
Share on other sites

In my area you can get fresh produce really cheap at the farmer's markets. I don't know how those guys make a living. It might help for you to keep a gluten free household. Other members of the family can still eat gluten outside the house, but it will cut down on cross contamination possibilities in the house. That helped us.

0

Share this post


Link to post
Share on other sites

Exercise is really good for helping to manage blood sugar. Would she be open to joining an athletic or exercise group? I know the local colleges/community centers around here offer drop-in yoga, pilates, etc. at free or cheap to the public. She could go when she is having a good day, and she could see if it helps her.

Also, laxatives increase the transit time of food in your body, decreasing absoption. Clearing up that end of things will probably cause her to feel a lot better.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Another thought, shared items like butter, peanut butter, mayonaise etc.. My dd kept getting sick and I realized we had all gotten lax, about keeping her items seperate. Although everyone was careful, enough cc was getting into these types of items to cause problems.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,463
    • Total Posts
      930,699
  • Member Statistics

    • Total Members
      63,887
    • Most Online
      3,093

    Newest Member
    GenieBelle
    Joined
  • Popular Now

  • Topics

  • Posts

    • Check out this page and the advice on rice prep: http://www.bbc.co.uk/programmes/articles/2F1MDzyW55pg97Tdpp7gqLN/should-i-be-concerned-about-arsenic-in-my-rice  
    • Hi Rachel and welcome I think you've found the single best site on the web for help and advice. Hope it's of use to you. I tested negative for celiac so no referral. My experience with NHS however suggests it could be worth phoning your Gastro's office and asking the admin staff there to check on this. Things get overlooked... I would avoid anything with those warnings on. It's a pain in the arse because, for example, it recently appeared on a brand of nuts I like. However having some experience of production and marketing environments that warning will only be going on the pack if someone in the company thinks there's a chance of contamination. There's always other products to choose from so I don't take the chance.  Walkers crisps have given me a reaction, yes even the sodding ready salted ones  It's something to do with their production processes. I think Gary Lineker may dance through the factory each week spreading handfuls of flour for good luck. Whatever, I now avoid them.  My energy levels improved over a few months after the diet. It took longer the second time after my challenge. I was still noticing improvements / weird resolutions of odd symptoms up to 9 months to a year later... Lots of good advice here: All the best! Matt  
    • Ah.... Settles back, dons funny hat, smokes pipe, plays violin, injects heroin etc... I think you need to treat yourself as your own science experiment. If you're ok at home with all of the drinks then you can almost certainly rule out alcohol intolerance and thank your bodies burgeoning super coeliac powers of gluten detection for the reaction. Clearly your powers have grown in the past five years young jedi... In which case maybe there's a drink you can order which would reduce this risk, maybe asking for the bottle and a clean glass, forgoing ice, straws etc, anything to simplify matters and reduce the number of contaminant variables.  One thing I'd avoid would be 'mixers' from the shared line. Not because there's gluten filled drinks going through them, typically its just coke, lemonade and soda water, but because the nozzle sometimes dips into the drink that's being filled. Paranoid? Maybe, but I avoid them now and pay the extra for a bottle.  A word on glasses. Most bars have a dedicated glass washer and they're good, to a point. I've worked behind a bar in the past and the washers are only on for a very short time, they can run up to 35 times an hour... I've seen lipstick on glasses from them and whilst the chances of contamination are probably slight... Now if you're out for a night at different places, it will be very hard to work out where its happening. So my suggestion is to go out to one bar only and pick a decent one. Speak to a bartender or manager, explain to them just what a special snowflake you are   and get one definitely clean glass at the outset then keep it for the evening and just get it refilled. Pick one drink only and stick to it. I'd suggest wine as maybe its easier on the stomach than the bubbly prosecco and you can get the little bottles without any chance of contamination but that may be nonsense See what happens... If you're ok, then you have an answer. You've become more sensitive and your reacting to trace gluten. *removes funny hat, discards pipe, hides syringe...      
    • This seems odd.  No SIGNIFICANT villous blunting.  Was there mild villous blunting?  Increased intraepithelial lymphocytes?
    • Ugg, tell me about I thought I had bad gut bacteria for years. Carbs would just make be bloat and distend, sugars, rice, any kind of grain. Figured out in Feb, it was UC and that the sugars in carbs caused flare ups....I realize I am blessed I can nuts, I eat nut based breads, muffins, cakes etc, using stevia, monk fruit, and xylitol for sweeteners since they do not trigger the flare ups. >.> I am also addicted eating sugar free jams made with extracts, and a universal pectin that reacts with calcium water instead of sugar so I can use monk fruit to sweeten. (Cheaper to make this for my fruit cravings to buying sugar free jams)    I also found a noodle by miracle noodles that is carb free they also make a rice sub...I use them in recreating dishes I used to eat all the time. NOTE the fiber in them is not tolerable to some people. But might look into it as a alternative. I think I did a post not to long ago about different forms of noodles and how to make them or get them for those with similar issues one of hte more intiruging ones is using eggs or egg whites mixed up and cooked on low eat in a pan into a thin sheet then cutting into noodles or using nordic wear microwave plates to make them. .....I recently found you can mix konjac flour, eggwhites, and hemp protein, up pour into one of those plates and cook into a tortilla. check my profile for my food issues lol list is huge, at least you can eat meats?
  • Upcoming Events