• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anemia/vitamin Deficiency Without Villi Damage?
0

11 posts in this topic

If an endoscopy showed no damage to the villi could there still be deficiency problems? I'm wondering if I have celiacs because I have most of the symptoms and having very bad anemia and other vitamin deficiencies but my tests came back ok. Trying to figure out if the cause could still be celiacs without having the villi show damage?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Did you have the blood work for Celiac? Get a copy of the pathology and procedure reports and the blood work (if done). Read it yourself. See how many biposies were taken. It is quite common for a doctor to miss the spots with the damage which is why they should take at least 6 samples of the intestine. See if the doc even read the results. Or even biopsied the correct places.

0

Share this post


Link to post
Share on other sites

I have vitamin deficiancy and anemia but my biospy came back fine. However with my biopsy they only looked at the top part of the intestine and only took a few samples. My blood work also was negative, but Im IGA and IGG deficient.

0

Share this post


Link to post
Share on other sites

My bloodwork was negative. It was my general surgeon, he did a colonoscopy and endoscopy and he only took one sample, so maybe it was incorrect? I don't know if he really knew what he was doing or just took a random sample because I asked about it. He did say everything looked fine to him. I got copy of the results but I need to find them, my husband might have threw them out. grr.

0

Share this post


Link to post
Share on other sites

I have vitamin deficiancy and anemia but my biospy came back fine. However with my biopsy they only looked at the top part of the intestine and only took a few samples. My blood work also was negative, but Im IGA and IGG deficient.

What does that mean to be IGA and IGG deficient? How would I know that? I seem to be deficient on everything else!

1

Share this post


Link to post
Share on other sites
Ads by Google:


It's very common for the biopsies to come back negative even though there is villi damage (according to celiac expert Dr. Alessio Fasano) because either the scope wasn't long enough to reach the damage sections, the surgeon did not biopsy the damaged sections, or the pathologist was either incompetent or unskilled in reading the results. If you B12 anemia, you can take sublingual B12, and if you have iron anemia, you can request to receive iron intravenously (if you're unable to absorb it). Some doctors are unaware that intravenous iron is available, but it is. If you're having difficulties absorbing Vitamin D, Country Life sells Natural Vitamin D, which also contains the proper ratio of Vitamin D and medium-chain triglycerides to help you absorb it. You might also consider taking digestive enzymes and L-glutamine to help heal your gut.

0

Share this post


Link to post
Share on other sites

It's very common for the biopsies to come back negative even though there is villi damage (according to celiac expert Dr. Alessio Fasano) because either the scope wasn't long enough to reach the damage sections, the surgeon did not biopsy the damaged sections, or the pathologist was either incompetent or unskilled in reading the results. If you B12 anemia, you can take sublingual B12, and if you have iron anemia, you can request to receive iron intravenously (if you're unable to absorb it). Some doctors are unaware that intravenous iron is available, but it is. If you're having difficulties absorbing Vitamin D, Country Life sells Natural Vitamin D, which also contains the proper ratio of Vitamin D and medium-chain triglycerides to help you absorb it. You might also consider taking digestive enzymes and L-glutamine to help heal your gut.

Thanks! I am getting b12 shots weekly, they have talked iron infusions but I have not been refered to a hematologist yet, waiting on a pill cam study. My surgeon is convienced I have a bleed or something in part of my intestines they couldn't see, but doesn't think celiacs since my blood test was negative.

0

Share this post


Link to post
Share on other sites

Hi Mars the Red planet,

Yes, you can have celiac damage even if a biopsy doesn't show it. The small intestine is around 20 to 22 feet long, and the endoscopy probe can only reach the first 5 feet or so. There's a lot of unexplored territory there.

0

Share this post


Link to post
Share on other sites

Most sufferers of autoimmune diseases have deficiencies in vitamins and minerals; D, B12, iron and calcium are commonly low in things like hypothyroidism, Lupus and others.

Conversely, you can have AI diseases and have great blood work. I have celiac, ITP, and hashimotos and I have fantastic blood work, cholesterol, iron and my B12 is above the normal range. I was slightly low in D but still well within normal range so I tripled my D supplements.

Non celiac gluten intolerant people have the same symptoms as celiacs as well as many of the same deficiencies.... As far as I can tell, there is no hard and fast rule when it comes to this area... frustrating as that is.

Best wishes.

0

Share this post


Link to post
Share on other sites

The total IGA and Total IGG were part of my celiac panel. It also included the normal ranges. Since I dont make enough IGA the test results are useless since they are based on an IGA reaction.

0

Share this post


Link to post
Share on other sites

Most sufferers of autoimmune diseases have deficiencies in vitamins and minerals; D, B12, iron and calcium are commonly low in things like hypothyroidism, Lupus and others.

Conversely, you can have AI diseases and have great blood work. I have celiac, ITP, and hashimotos and I have fantastic blood work, cholesterol, iron and my B12 is above the normal range. I was slightly low in D but still well within normal range so I tripled my D supplements.

Non celiac gluten intolerant people have the same symptoms as celiacs as well as many of the same deficiencies.... As far as I can tell, there is no hard and fast rule when it comes to this area... frustrating as that is.

Best wishes.

Do you have a source for the information that non-celiac gluten intolerance can cause deficiencies, because I've been looking for that info everywhere and haven't been able to find it.

I have symptoms that fit with Hashimoto's and celiac but my celiac panel came back negative as did my thyroid antibodies. The only thing my blood shows is low vitamin d (though I've been taking it for years) and low ferritin. Also I had a low BUN score which when I looked up it said it was either from a low protein diet or malabsorption. I do not have a low protein diet.

I'd love to get some answers! At this point I've been told I have somatization, but I know that's not the case.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,400
    • Total Posts
      930,339
  • Member Statistics

    • Total Members
      63,821
    • Most Online
      3,093

    Newest Member
    Beth1
    Joined
  • Popular Now

  • Topics

  • Posts

    • MelissaNZ,  Has your daughter been checked for vitamin deficiencies??? Vitamin D deficiency symptoms include urinary incontinence, oral candidiasis (thrush), skin rashes, bumps on the backs of arms, joint pain, distended stomach and short stature.  Bones can't grow much without vitamin D.  Vitamin D deficiency causes delayed gastric emptying (food doesn't move through the gastrointestinal tract at a normal speed and the intestines bloat) which explains your daughter's delayed reaction to the cake.   Vitamin A deficiency is also a cause of bumps on the back of the arms. Vitamin A deficiency causes vision problems. Vitamin A and D are both fat soluble vitamins.  Absorption of fats is a problem for Celiacs.  So is absorption of B vitamins and important minerals. B Complex vitamins are water soluble and must be replenished every day. Skin rashes are associated with several B vitamins like niacin (B3), B12, and thiamine (B1).   I went through a period of severe malnutrition prior to diagnosis.  It was not a pleasant experience.  I had symptoms similar to your daughter's, including the incontinence, which resolved on vitamin D supplementation.   Please, please have your daughter tested for vitamin D deficiency.  And have her B vitamins checked as well.  Celiac Disease causes malabsorption.  Malabsorption causes deficiency diseases.  Newly diagnosed Celiacs need to be checked for deficiencies.   I hope this helps.  
    • I will try to make my long story short, I have been searching my whole life for a diagnosis,  I have seen pretty much every doctor possible I even went through a spinal tap recently because they thought I had multiple sclerosis,  when I was younger I was always throwing up and having stomach problems, a couple hospital visits they thought I had appendicitis, I started having a neurological symptoms as well as  anxiety and depression,  The fatigue was just over bearing,  I was having numbness and tingling and muscle spasms all the time eventually started having seizures,  which kind of cycled through and stop happening after a couple months,  and then it dawned upon me my brother has celiac pretty severely, my grandmother also has celiac, my dad does as well, I don't know why I never thought that it could be my issue, for the last week I have   Been gluten-free and steering clear of cross-contamination,  my dizziness is improved my fatigue is improved as well as rashes I was getting on my arms  and sides,  I have no more muscle jerks or spasms, The problem is I have horrible insurance and I cannot afford testing, so I am at least trying to do it an home blood test,  I know it's not very accurate on telling me if I have celiac or not,   But the thought I may never know for sure if I have it is very daunting.  My family keeps telling me you don't need  to spend thousands of dollars to have a doctor tell you you can't eat something you already know you can't. Just was wondering if anybody else has been in my position and seeing if anybody has a vi just was wondering if anybody else has been in my position and seeing if anybody has advice,  I don't want to be known as one of those people who believe they have something and people with the disease frown upon them it's a very scary thing to think about. 
    • ...ON a side note this is quite easy, you can make your own out of any gluten-free Bread mix, I recently started using a coconut flour blend for this.......Most often people associate caraway with Rye Bread so you just add caraway seeds to the dough and a bit more vinegar to sour it a tad and BAM gluten-free Rye Bread knock off. I think Authentic Foods even has a additive to put in bread mixes to make it taste like Rye Bread....Or you can buy it preamade, I have issues with all the other ingredients but as for one of the best gluten-free Breads out the Canyon House makes a Rye like bread https://canyonglutenfree.com/buy-gluten-free-bread-products/Gluten-Free-Rye-Deli-Sandwich-Bread.html  
    • Took me less than a minute, although why did they need our addy and phone?
    • As mentioned before you said she had rashes, have they checked if that is DH? That is a positive sign of celiac and those with the DH manifestation can have problems getting a postive with the gut biopsy.   Here are some links. https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/ https://www.gluten.org/resources/getting-started/dermatitus-herpetiformis/ Please read up on this. She can get the rash tested for the disease if it is DH.
  • Upcoming Events