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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Hello, I will go by Tio (no not the Spanish meaning) I am 25. For as long as I can remember I have been a very sick child, and was always diagnosed as IBS, Depression, and just standard year round allergies. Actually had a Celiac Panel done back in Aug 2011 it came back negative because the doctor said I was not showing signs of malnutrition from the blood test and I was made to fast before the test (not sure why because even the pathologies was surprised doc said to fast and told me that fasting before a celiac test defeats the purpose because the food needs to be in the body to show up). That aside I believed the doctor saying it was just depression as many previous doctors have said it was. Till two weeks ago my Mom got back from a vacation with some friends and one of the ladies she went with had all the same symptoms as me and she had many blood tests come back negative because they always had her fast before them. So finally I started a gluten free diet about two weeks ago seems to be almost a 180 flip from how I felt before. I have so many symptoms, but some seem to be different from most I have read. Some of mine are within minutes after eating gluten I start coughing because my allergies start acting up start stuffing up and hard time breathing, never been able to sleep for a very long time started having to take sleeping pills back in Aug, anxiety, bloating, and then all the stomach discomfort and diarrhea.

So now here I am because as far as I know I am the only one in my family that has this problem though now that I look back some on my Father's side of the family could have had this was just never diagnosed, both my father's parents died from colon cancer, and cousin has Crohn's that has now turned into Colon cancer.

So any tips would be very helpful, specially with label reading. So far I just go into the grocery store with the mind set if I can't read the label I won't buy it. So all I buy is meat, veggies, fruit, potatoes and rice. It just gets confusing when it comes to the shampoos and all that.

~Tio~

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Actually, you're right about those labels-simply walk by them and buy natural, whole foods. When you start to go gluten free, it's much better to eat whole foods: fruits, vegetables, dairy, meat, nuts, etc. After a few months, you can feel free to buy certified gluten-free crackers, breads, and other processed foods. Don't bother with the labels--just buy the foods that say that they're certified gluten free.

As for shampoos, Desert Essence Organics' line of shampoos and creme rinses are all gluten free.

Tio, it appears that you're one of us....

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Hi Tio!

Welcome to the board. I am glad you were able to find out for yourself what is bothering you despite unreliable experiences with the healthcare system. So many of us have experienced similar troubles. As far as advice goes, you are probably doing the best thing by eating fresh fruit and vegetables to start out with. I wish I had done that because I had other sensitivities surface when I went gluten free and couldn't figure out what it was. Besides that, eating whole foods cuts down on risk for cross contamination. When you verge into buying processed gluten free foods, do yourself a favor and only buy things that are certified gluten free or made specifically in a facility that avoids top allergens or gluten.

Shampoo is kinda debatable I suppose; it is impossible to avoid traces of gluten running down into your mouth, so I personally think it is best to have that gluten free too. Hand soap, I use dawn with no problems that I can see. I use plain shea and cocoa butter lotions.

Well that's a start I hope. You will learn how sensitive you are and what brands you can trust and not trust, but just in case you do not know, most of us seem to become more sensitive as our immune systems recover and strebgthen. Do not be shocked or mislead if that happens to you.

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I hope I am okay with the shampoos and conditioner I have, I don't see gluten or wheat on the label. Its nice that my mom is being helpful also, she is keeping gluten free snacks in her house for when I come to visit and started cooking gluten free meals that I can eat when I am there. As far as all the whole foods that was not so hard for me, my mom and I have always been cooking from scratch people, and I was never really a person that ate out much. I also can't stand fast food. It is just I have always been the bread and pasta lover... But if this is what it takes for me to feel better then its what I must do to stay well.

Do have a question, as far as vitamins go the one I normally take has wheat in it, and mom always tells me that since I only take one a day its not a big deal since the last time I was at the grocery store all the gluten free vitamins were not as complete as the one I currently take. So is my mom wrong and its worth changing? If so any good complete brands out there?

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Yes, your mom is wrong--you canNOT take a multi-vitamin with wheat in it. Absolutely not! You should get your vitamin/mineral levels tested and take only those nutrients that you're deficient in. With a whole-foods diet, you should be able to get most of what you need from your food. If you're unable to absorb any nutrients, your tests should show you which ones you need to supplement.

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The blood test that was taken said all I needed was iron, because I don't really eat red meat, and all other levels were normal. Looks like that is going in the bag of gluten items to take to her house :)

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I dont think you quite understand how serious the condition is. It can take just a small breadcrumb to cause damage to your body This is not like a simple allergy. Autoimmunity is a whole different thing. if you continue to expose yourself to purposeful glutening as well as cross contamination from kitchen surfaces that have handled gluten, you could be looking at developing other problems. Take it from me, it is not worth it. Many of us learned that lesson the hard way, including those who were self-diagnosed.

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    • Does he run a lot? On hard ground? My ferritin started at 74 and is now 20. My rbc count was normal but showed mild anemia after an 18 hour fast.   I initially also thought it might be due to malabsorption, and it may be, although my gut doesn't show a ton of damage. Coincidentally I started running around  all of this, with A 6 month break in between, and have also recently read that Runners Who log a lot of miles generally are pretty low on ferritin if they don't supplement.  I only do between 6-15 Miles per week.  I eAt a mixed green salad about 5 times a week, red meat a couple times a week, and then a lot of other high iron foods.  lamb stew is a tremendous source of iron, as well as mussels. I am a big fan of garden lights chocolate zucchini muffins as well each mini muffin contains 20% of the daily value.  I Like to eat Two for breakfast with my coffee.  if he stopped eating gluten about a month ago you might still be able to get the blood test done. I'm sure you have read by now that you need to be eating gluten to be tested.  antibody start falling Right away but for some people it takes a long time.   I'm not a doctor but I would think that if you have enough damage to mal absorb iron then it would take a lot longer than just 4 weeks for you to  fix that kind of damage And reabsorb it again.    did they order a total iron binding capacity?  and was the iron panel done while fasting? You don't really need to fast for a ferritin but serum Iron can easily be elevated With food.  Although symptoms vary depending on the individual I have read quite a bit online that When ferritin drops below 40 people can start getting symptomaTic.  so you are likely correct that his feeling better is related to his ferritin level increasing.  giving up gluten means giving up certain nutrients as well. So if he's already vegetarian he needs to really pay close attention to what nutrients he might be missing in his diet now if he's giving up whole grains.  
    • Thank you! I will look into it! 
    • You would honestly think that after you body goes nuts attacking your insides trying to kill the gluten after 2 days of food poisoning yourself with it the damn antibodies would show up in insane levels in your blood Life is not that easy though.
    • Some days I have 3 pieces of bread, other days I just can't handle more than 1.  I had to take a day of gluten rest after the first week.  I felt too aweful. Now I'm almost done with week 2 and I feel like I need another break.  Just so hard to do something to yourself that you know will hurt.  They just don't know how much and for how long.  There was a recent study that looked at gluten challenges in folks actually diagnosed with celiac and some took months to have elevated antibodies.   Just one day at a time.  I hope things go well for you. 
    • Thank you for replying. I think you are right- why take the chance of reinfecting myself with gluten exposure again when ive been trying so hard to rid it from my life?  I just read some interesting articles on Sjogrens Syndrome and gluten sensitivity and that they are related so that may answer one of my questions. Your symptoms took over a year to resolve?! Holy moly.. I fear that is going to be my issue too. Are you feeling better now?  
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