• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ack! Is This A Wheat Allergy Too?
0

19 posts in this topic

For various reasons, doc and I decided I should do a mini-gluten challenge, part of figuring out why I still have major problems with D. So I carefully planned it out and last night had a few Trader Joe's dim sum in which I was sure the only ingredient that would bother me was the wheat.

Immediately my eyes, lips and face swelled up and my eyes got insanely itchy and watery. My face is still swollen the next day.

(Other results: My joint pain was off the hook this morning after improving during 3 months gluten free. The gastro symptoms are also there, but no worse than they've been with no gluten — which is to say, bad, but not stay-home-from-work bad.)

My doc has already diagnosed me as gluten sensitive/intolerant, but does this mean I have a wheat allergy in addition to that? My understanding is that the runny eyes and swelling are allergy symptoms, not intolerance symptoms.

I just plain feel like crap and am glad it's over. Not doing this ever again, I hope!

ps. I had the same swollen face reaction a month or two back when I accidentally ate so-called tomato paste that contained "wheat gluten."

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


From what I understand, medical professionals many times do not truly understand Celiac or gluten intolerance and "intolerance" can certainly be an allergy.

I'm sorry to hear that your doctor recommended you intentionally gluten yourself. I hope your symptoms subside quickly.

0

Share this post


Link to post
Share on other sites

It's not possible to tell, because the dim sum could have contained so many different ingredients. But don't eat that, again, and you'd better start carrying benedryl antihistamine with you.

0

Share this post


Link to post
Share on other sites

I would also reccomend getting a epi pen just in case to have on hand.

1

Share this post


Link to post
Share on other sites

Skittles, my poor doc went along with me on this, it was my idea... I wanted to be totally sure my chronic D is caused by gluten and not something else because 1) I still have the D after 3 months gluten-free and 2) I couldn't have a biopsy for financial reasons and because I have a bad duodenal ulcer that's too irritated for a 'scope. I had mixed blood results and was diagnosed from symptoms, elimination diet, low lymphocytes, elevated anti-gliadin IgA, and borderline ttg.

I'm sure the other dim sum ingredients weren't the problem — I've had all of them (pork, corn starch, etc) with no issues.

Yeah, carrying benedryl and epi-pen sound like good ideas.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Three months on a gluten-free diet might not be long enough to clear up the D. I had D issues for 18 months--and I was very strict about following the diet and didn't have issues with other foods. However, what helped me was taking L-glutamine. That's what finally cleared it up.

2

Share this post


Link to post
Share on other sites

Thank you rosetapper... I knew I had to give it some time, but wow, 18 months. I will try the L-glutamine right away.

0

Share this post


Link to post
Share on other sites

Yeah, carrying benedryl and epi-pen sound like good ideas.

I ended up with anaphylactic reactions to seeds after I removed them during a very strict elimination diet along with a host of different reactions to many other foods. Allergy type symptoms are nothing to mess with as they often become worse with each accidental exposure. Call or email your primary to explain the reaction you experienced. Mine ordered epi pens immediately.

I also had follow up allergy testing for all my intolerances - I am neither IgE or IgG allergic to any of my intolerant foods - doesn't make the reactions any less severe, so yes you can have allergic type reaction to an intolerance.

2

Share this post


Link to post
Share on other sites

Hi,

If you decide to do another food allergy test for some reason, be sure to do it at the doctor's office. That way if you have a severe reaction and can't breathe, they can try to save your life. That would be good, eh? My ex had her son tested for wheat alergies at the doctor's office and he had a bad reaction that was unexpected. They were able to take care of him but it wasn't looking too good for a while. The doctor did not expect the severe reaction that happened. But being in the doctor's office probably saved his life.

0

Share this post


Link to post
Share on other sites

Wow, GottaSki and GFinDC, those are super scary stories!

I am emailing my doc today to share the results... and trust me, I don't plan on EVER eating wheat again. I got my answer, which was all I needed.

Whether I have other issues contributing to the D or not, I now know without a doubt that wheat and/or gluten is indeed a serious problem for me.

0

Share this post


Link to post
Share on other sites

Wow, GottaSki and GFinDC, those are super scary stories!

I am emailing my doc today to share the results... and trust me, I don't plan on EVER eating wheat again. I got my answer, which was all I needed.

Whether I have other issues contributing to the D or not, I now know without a doubt that wheat and/or gluten is indeed a serious problem for me.

It was very scary...

While I have not had to use the epi-pen yet - I do feel better knowing they are available and that my family knows how to use them.

I avoid seeds as I would gluten so no problems thus far. I do use benedryl for more mild reactions I have had to other intolerances.

Bottom line is now that I am aware of my potential problem foods and prepared for possible reactions -- I am no longer scared.

0

Share this post


Link to post
Share on other sites

Yep, scary stuff. You can avoid if you know the allergen is present, but you may not always know. So being prepared ahead of time is important. Carrying an EPI-pen and a med alert card is a good idea. You may not be able to help yourself, so it is important to let others know what to do.

http://www.foodallergy.org/section/tips-for-managing-food-allergies

0

Share this post


Link to post
Share on other sites

Wow, thanks for the info and link, very informative. I did once have an anaphylactic reaction once to tetracyclene in the doc's office, so they gave me epinephrine right there. I didn't know till now that means you can be more likely to react to other things, too.

0

Share this post


Link to post
Share on other sites

You are quite welcome Gatita. There is something called cross-reactivity with allergies that you may be affected by also. Cross-reactivity is when the allergic reaction kicks off to other foods besides the main allergen. Be wel! :)

0

Share this post


Link to post
Share on other sites

Thanks. Here's something interesting. I accidentally did my own at-home allergy skin scratch test for wheat!

I decided since I had that allergic reaction to throw out a bag of stale bread my (now gluten-free) housemate had been saving to make bread crumbs.

My forearm got accidentally scratched a little by the stale, rough bread... and guess what, the scratched area is still red and raised seven hours later. (No other reactions, thank goodness).

Guess I won't have to spend money on that test! :)

1

Share this post


Link to post
Share on other sites

Ha Ha, that's great test! :)

0

Share this post


Link to post
Share on other sites

I think I'm going to add this to the "things doctors say" thread. I emailed my doc about the allergic reaction and concerns about my constant diarrhea since June. Another doc was filling in for mine, and she wrote back today saying, "Sounds like you're getting better."

Arrgghh!!!

0

Share this post


Link to post
Share on other sites

I think I'm going to add this to the "things doctors say" thread. I emailed my doc about the allergic reaction and concerns about my constant diarrhea since June. Another doc was filling in for mine, and she wrote back today saying, "Sounds like you're getting better."

Arrgghh!!!

Well gee, as long as you are getting better constant D... :D

0

Share this post


Link to post
Share on other sites

I think I'm going to add this to the "things doctors say" thread. I emailed my doc about the allergic reaction and concerns about my constant diarrhea since June. Another doc was filling in for mine, and she wrote back today saying, "Sounds like you're getting better."

Arrgghh!!!

Oh Goodness...do make sure you talk to your doctor once s/he returns.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,396
    • Total Posts
      930,323
  • Member Statistics

    • Total Members
      63,813
    • Most Online
      3,093

    Newest Member
    AnemiaJen
    Joined
  • Popular Now

  • Topics

  • Posts

    • I agree with Ennis.  It sounds like she is getting access to gluten way too often to expect healing.   I had some pretty severe patches of intestinal damage when I was diagnosed.  Anemia was my symptom and I had no gut issues then.  So, just because she injests gluten and does not have some major symptoms right away, does not mean she is not building up antibodies.  Have those antibodies been re-tested to see if they are in the normal ranges now?  Missing patches of damage in the small intestine is possible.  Heck, the small intestine is the size of a tennis court (goggle it).  So easy to miss.  Also, your GI should have taken more than four samples?  How many were taken? (Forgive me, if I have forgotten.) Cross contamination in your house is real, especially if you have kids in the house.  Member Jebby, a preemie doctor who has celiac disease, was not getting well.  Turns out her four small and adorable children were glutening her.  She made her house gluten free.  Just something to consider.   You mentioned she had access to gluten at a party.  So, does that mean she caves in and eats it?  She needs to become a stakeholder in this diet.  
    • I think that if you soaked in the paddle in vinegar and scrubbed it a few times, you will be fine.  But if in doubt, just set the mixer aside for a while until your family's health has improved.  In the meantime, use your arm to mix dough!  My grandma never had a mixer!   I bought a bunch of new stuff because I had been married for 25 years when diagnosed.  It was time for new things!   Everyone is different in their response to gluten.  Science has given us a good estimate, but we know that nothing is "one size fits all".  You just have to figure out what is best for you and your family.   My anemia resolved within months of being gluten free (ferritin levels).  I still have Thalassemia, but it is mild and my body has adapted.  It is most likely the one reason that I never made the Olympic team!  😆 BTW, family and friends are not allowed to bring in gluten into our house with the exception of beer.  They can contribute to a potluck by bringing beverages, uncut fruit and veggies, new condiments, tableware, and ice cream ......etc.
    • Thank you so much. It's so nice to have such friendly and helpful people to talk to while I await my answers.  I had an interesting experience yesterday... I ate a bowl of Kraft mac n cheese... then passed out for 4 hours and woke up vomiting. I've had a lot of experiences like that after eating over the past 2 years, but I never put those pieces together because celiac disease was totally off my radar. Just found it very interesting.  I've been pushing down lots of gluten-y foods just to make sure my tests will come out right. So tired of waiting! Really, if this isn't the answer to my 40 lb mysterious weight loss, fatigue, and painful gas/bloating... then what's left? Cancer doesn't seem likely in a 33 year old, but I am really scared.  Thanks for helping me through this. Anyone who stumbles accross this place is lucky to find such supportive and kind, helpful people!
    • Hello and welcome I don't have an answer, like you I'm eating rice in processed foods as well as a side dish so I'm also wondering if I'm eating too much. If the rice is in a product like flour there's no way to tell how its prepared etc However for this: You can pre soak and rinse the rice in advance and change the way you cook it to reduce your exposure by up to 80% Details: http://www.bbc.co.uk/programmes/articles/2F1MDzyW55pg97Tdpp7gqLN/should-i-be-concerned-about-arsenic-in-my-rice    
    • I use almond, and coconut a lot now my bakery used to use oat and almond blends. We never used rice, or starches as our goal was to keep it low glycemic. Now days we are transitioning to cut out oats. I started having....ok I omitted and gave in after being in denial a similar reaction to oats (10% of celiacs do if I recall) over a year ago. Anyway as for flour blends premade avoiding rice and grains try simple mills at https://www.simplemills.com/collections/all I have composed a huge list of various gluten-free goods here, even recently updated with grain free, and pizza section https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
  • Upcoming Events