• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
mommyto2kids

How Did You Come To Realize You Had A Dairy Issue?

Rate this topic

Recommended Posts

My dh and I are wondering if we should cut out dairy and are wondering what led to your decision if you have cut it out. Please explain your symptoms that led to your decision. Thanks so much. :)

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


For me it was the bloated belly, all i could wear was sweat paints or a bathing suit. (elastic wastband) It was very painful an unsightly. GFINDC yep ole hosehead recommended i try an give up dairy. I did give up dairy an it went completly away!!! Now even a trace amount of dairy an it comes back within 5-10 mins. extremly painful for 3-4 hours just with a trace amount of dairy. If you think dairy might be giving you a problem try an give it up for a month, when you try an reintroduce it i recommend only use a teaspoon an see what happens.

Share this post


Link to post
Share on other sites

I've had it my entire life, but I know when I consume milk or ice cream that there will be a lot of payback in the form of diarrhea, stomach pain, bloating and internal hemorrhoids. Sometimes even a bit of oily stool. It's rough, it hurts and it's never worth it.

I switched to Lactaid milk and I take a dietary enzyme (lactase) - 2 pills of 9,000 units each - when eating cheese or other dairy. I drink the milk nightly (well, it's Lactaid and Hershey's syrup) and that helps because the lactose is removed. The cheeses seem to be fine with the enzyme.

Lactose intolerance is fine with an enzyme for many with intolerance like myself. They're cheap as well. Target brand Up & Up pack of 12 was less than $3. Worthy investment for lactose intolerance.

Share this post


Link to post
Share on other sites

Dairy was the toughest for me to figure out. I removed it once shortly after gluten and did not notice a difference so added it back in.

Much later I removed it along with many other foods during a strict elimination diet for several months. When I trialed each dairy item separately I was able to tolerate butter, some cheese and cooking with milk/cream. Was not able to tolerate yogurt at all. When I completed the elimination and added butter, cheese and milk back into my cooking on a regular basis I became consistently bloated -- removed those items and bloating went away.

I remain hopeful that I will get dairy back once my stubborn digestive system heals.

Share this post


Link to post
Share on other sites
Ads by Google:


..GFINDC yep ole hosehead recommended i try an give up dairy...

:D Hah Hah Dave, you caught me! :) We hoseheads have to stick together I guess. :)

My lactose intolerance started after a virus went around. After i got over the virus I got bloated and D every time I ate dairy. Stupid virus hit most everyone in the office but I don't remember anyone else having that happen. That was 7 years before gluten-free.

I did use lactase for quite a while and it helped. Lactase is the enzyme that breaks down dairy sugar in the gut. After going gluten-free I thot things would improve and they did. But I still had symptoms and finally cut diary out completely. Cow dairy has a protein called casein in it and lactase doesn't do anything for that. So if you are intolerant to casein you just have to stop eating it. I've tried it a few times the past several years. Things start not too bad but get worse every day. Gut pain, C, D etc. I start getting bloody stool after 3 days or so and wise up. So I don't think dairy likes me much.

Share this post


Link to post
Share on other sites

My problems with dairy started about 10 years before I stopped eating dairy. My arms developed itchy red bumps. Then more. Then it started on my tummy. It kept getting worse, not better, so I finally realized it was something I was consuming daily. The bit of milk in my morning cappuccino was the culprit. For a while I could still tolerate ice cream but that soon stopped. I went off dairy for years. Then I started with little bits of dairy (meals at others' houses, for example) and took lactaid. That seemed to help.

Once becoming gluten free I started eating more dairy, mostly in the form of yogurt and with lactaid, as I thought it would help heal my guts. The itchy rash came back. So I'm back to dairy free, though if there's absolutely nothing else to eat that is the one from my list that I can tolerate a bit of, as in, better dairy than the 3 day misery called gluten, or the migraine headache called corn, of the headache stomach ache called soy. The stomach ache from nightshades isn't so bad either, but probably not conducive to healing.

Share this post


Link to post
Share on other sites


Ads by Google:


It became obvious that dairy was bothering me a few months after cutting out gluten. Within about 15 minutes after ingesting dairy, my stomach began to cramp and I became very bloated. Then the diarrhea began. I went off lactose for a few months which helped and re-introduced it. At first it was fine for several months but the last three months or so whenever I ingest dairy the same thing happens nearly immediately. So, now I eat very little cheese (unless it will be worth it to me and then I take Lactaid, i.e. when in Paris recently) and drink/cook with Lactaid milk. I really hoped this would not happen again but it is. :(

Share this post


Link to post
Share on other sites

I was so sick for awhile that I cut gluten and dairy at the same time out of desperation. So when i added dairy back in (for a split second) I realized that dairy was actually what was giving me the severe diarrhea. I think gluten was doing a lot of things to my body, but the dairy was what chained me to the bathroom. My daughter (child) also gets those itchy rashy bumps from dairy. I don't seem to get that.

Share this post


Link to post
Share on other sites

A co-worker suggested it when I would run to the restroom half an hour after eating frozen yogurt. Long before gluten was realized as a problem, I might add.

Share this post


Link to post
Share on other sites


Ads by Google:


I cut out dairy last year after struggling with sinus problems and dizziness. After all the inner-ear tests came back clear and the doctor looked at me like I was nuts, I read that salt and dairy can contribute to sinus problems, so I cut back on salt, then cut out milk (well, milk, then ice cream, then yogurt, then cheese ---i miss cheeeeese!--- and finally anything with dairy in it).

May I note that there's a difference between lactose intolerance, which is a reaction to the sugars in cow's milk, and casein intolerance, which is a problem with the milk protein. Casein is similar in structure to gluten, so one theory is that for people with Celiac, our bodies can think casein is gluten and have a similar reaction to it. Also, unlike lactose that can be removed, casein is in ALL milk products, and in smaller amounts in goat and sheeps milk as well.

i'd say at first you should try lactose free and/or lactose digesting aids and see if that helps. If not, it might be casein and you're going to have to cut dairy completely.

I'm still clinging to hope that I'll be able to go back to eating some cheese eventually. Butter and ice cream I have good substitutes for, but cheese cannot be replaced.

Good luck figuring it out!

Peg

Share this post


Link to post
Share on other sites

I cut out dairy last year after struggling with sinus problems and dizziness. After all the inner-ear tests came back clear and the doctor looked at me like I was nuts, I read that salt and dairy can contribute to sinus problems, so I cut back on salt, then cut out milk (well, milk, then ice cream, then yogurt, then cheese ---i miss cheeeeese!--- and finally anything with dairy in it).

May I note that there's a difference between lactose intolerance, which is a reaction to the sugars in cow's milk, and casein intolerance, which is a problem with the milk protein. Casein is similar in structure to gluten, so one theory is that for people with Celiac, our bodies can think casein is gluten and have a similar reaction to it. Also, unlike lactose that can be removed, casein is in ALL milk products, and in smaller amounts in goat and sheeps milk as well.

i'd say at first you should try lactose free and/or lactose digesting aids and see if that helps. If not, it might be casein and you're going to have to cut dairy completely.

I'm still clinging to hope that I'll be able to go back to eating some cheese eventually. Butter and ice cream I have good substitutes for, but cheese cannot be replaced.

Good luck figuring it out!

Peg

Have you tried Daiya Cheese? I can't eat dairy or soy. Daiya is gluten, dairy, soy free cheese and as good as any regular dairy cheese I've eaten. BTW, I've been dairy free (after dx of IgA mediated casein allergy) since 2004. I've found good replacements for all my former dairy favorites (yogurt, cheese, milk, ice cream, margarine, etc.) I know I can't ever return to eating dairy w/o bad reactions, because I had a few accidental consumption incidents over the past 8 years. Each one was more severe and more lengthy recovery time. If you're doing well w/o dairy, I would not advise returning to eating dairy, unless you really enjoy your reaction symptoms.

Share this post


Link to post
Share on other sites

I am one of the rare folks who was born with lactose intolerance -- couldn't even tolerate mother's milk! Parents went crazy until they figured out I could only handle goat's milk. (I was 6 weeks preemie, apparently that goes with being lactose intolerant).

Later it went away, but in recent years it has come to rear its ugly head again (I'm 55). Symptoms are extreme gas and bloating very soon after drinking milk or eating ice cream, most yogurts and some cheeses.

Hard cheeses like cheddar are fine, thank goodness. I love my cheese.

I swear by chewable Lactaid tablets (2 at a time) but I still have a hard time remembering to take them!

Share this post


Link to post
Share on other sites

Burdee, yep, I've had Daiya. It's ok but just not the same. I've used it for pizza and mac-and-cheese(like substance), but mostly it's gone untouched in my fridge.

However, as an experiement, (and also to make sure I won't keel over in the UK next week, where gluten-free is easy, but dairy free is pointless) I had a few small pieces of hard, aged cheese and, aside from a rather mild, temporary headache, I was fine!! No problems later either! YAAY! Of course, I tried a bite of soft cheese and immediately my body said No. No way. So: hard and old, ok for a little bit. No binging. Not often. But now I know it won't kill me. (maybe it is lactose and not casein after all... or maybe all the digestive enzymes and general caution has helped. Either way, it's promising)

Of course, you're going to have to figure out what/how much you're still ok with. I'd say cut it all out for now, and try it again in at least 6 months.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,432
    • Total Posts
      941,232
  • Member Statistics

    • Total Members
      66,360
    • Most Online
      3,093

    Newest Member
    Jen1104
    Joined
  • Popular Now

  • Topics

  • Posts

    • Turkey, vacuum pack it, you can use it later for soups, stews, sandwiches, omelettes etc. Will keep for months in the freezer

      Dressing,
      You can use it in various ways my fun thing to do with it is moisten it back up a bit and load it into a waffle maker these can then be frozen or eaten when ever, dressing and sausage flavored waffles are AWESOME.
      Other leftovers can be put in a icecube tray and froze these cubes can be kept in a bag in the freezer, they are perfect for just putting a few in a bowl and zapping in the microwave later for quick meal, I love stir frying them in with eggs.

      Gravy, Gravy can be frozen in icecube trays, and kept in bags, you can then put these over bread, mash, etc and melt them over them later in the microwave or use in a soup like a stock to add flavor.

      Most Desserts can be frozen but around here I have hardly ever had any last the next week.

      Mashed potatoes, again these can be loaded into icecube trays frozen and kept in bags for quick reheat and use meals. Goes great in soups later to thicken them up. Green beans, after thanksgiving....you might want a new flavor thankfully the green beans can be incorporated into another cuisines using spices, in a soup or stir fried Asian style in coconut secret teriyaki sauces.
      Casserole dishes honestly freeze quite well in may cases, I have not had many survive the next week but often you can top them other other cuisine spices or sauces and fry them up in a skillet or reheat in a bowl for something different.  
    • Appreciate the thorough responses.    The stomach issues have been dreadful the past few weeks and brought hurrendous awakenings.the worst I have slept in a long time. I have had a few gluten foods in all honest. Maybe a mcdonalds twice in 2 months. Which isnt ideal. But I dont seem to feel anything afterwards (terrible excuse I know)  My biggest worries were my memory and cognitive behaviour! I was in London Bridge station and forgot where I was heading for 15 minutes. My memory is terrible, as is the concentration. So its a bit of a battle at the minute and I am flunking in my new job. I feel like as you said, neurologically I have deteriorated. Wit and brain function out the window. Considering I was a pretty switched on person. Balance and diziness at points. (all this on a gluten free diet after 4 months triggered me too my mcdonalds binge) ha ha.  I think the memory was the worst.    As you said about the brit medical side being useless. I think you are correct. I understand its the NHS and free etc. But this is just not considered a worry. Ive considered pulling myself into A and E this past few weeks because of the pain and I know this is the only way anyone will give me a thorough look over. I was also sent for a bone scan ( no reasoning as to why) But from research it seems to be for searching the nutrients in the bone?    Neurological side has been really i think what has been the toughest. My job requires an awful lot of high concentration and memory. Which when I fail at, causes stress, and then I am caught in the vicious cycle! Thanks for the help guys. Nice to meet some fellow people who can relate. I just feel like celiacs seem to know more then the doctors, which shows primitive practice in order to solve it. Once again, I would never know the NHS or doctors. I understand free health care is health care. But how low on the list this is, is a worry.    
    • I get vomiting with large amounts of gluten, and motion control loss, followed by either Diarrhea or constipation for a week was back in June 2016 when I decided to eat at a new place, I was on my floor unable to move vomiting so hard there was blood in it.
      NOW trace amounts I have gotten sense then and confirmed via Nima Gluten sensor then following lab testing have show that for me I get constipation, gas, bloat, and nerve issues with fog and peripherally neuropathy. The vomiting was missing from stuff confirmed at 6ppm, but obvious other nerve and fog issues were apparent (I kept dropping stuff and walking into things, mind kept on wondering and having those what was I doing moments, topped with backed up to hell with painful gas)
      Everyone is a little different and symptoms seem to change and evolve with time and type/form of exposure. I used to get a angry Mr, Hyde rage mode, and weeks of constipation and I used to not have the motor loss issues just brain fog and looping thoughts. It changes

      The cause is mostly due to your antibodies going up and your immune system attacking your own body, where it attacks, how, and to what degree greatly varies and after a exposure it can take weeks to wind down off the response and for the antibodies to go down. Just giving a basic idea here.

      Once you get exposed all you can do is treat the symptoms and wait it out, up supplementation of b vitamins, magnesium etc. Take pepto, or Imodium depending on what you have, teas and bone broths and try to eat easy to digest foods for the next week, Mushed up, blended, purreed, stewed/steamed super soft foods.
    • Hi everyone,  Once again I am here looking for your help. I was diagnosed with Celiac less than a year ago. It took quite a while to find out because I didn't experience any particular symptoms after eating gluten. I was always tired, had memory problems and was frequently ill; sometimes I had gastrointestinal issues, but they came and went.  Last night I went out for dinner, to a Thai place I trust(ed). Later, I could hardly sleep, I had horrible nightmares, those where you can hardly tell apart when you are awake or not. I expected to have high fever but nothing!  Today all my body aches, I am very tired and was nauseated all day. A little bit gasy and bloated as well.. Was I glutened?? Did I already clean my body enough that I now start to react in this fashion? If so, why does that happen?  There is also gastroenteritis going around, that would be the alternative explanation. I thought I excaped it. I also didn't vomit or have diahrrea like the rest.  What do you think?
    • With a positive EMA and a positive tTg, that is a slam dunk for Celiac Disease.  If you read about testing results, the odds are 99% that you have it. You also had very high numbers on your testing so that adds to the diagnosis.  At this point, the biopsy, if you have it done, is to check for the amount of damage, and is not needed for a diagnosis. I declined the biopsy as I was very sick at diagnosis.  The doctor who ran my blood panel said there was no doubt I had it due to the high numbers on my blood work.  I have been gluten-free for 12 years and every single doctor I have ever seen since then, who whined about me not having the biopsy, shut up about it once they saw my initial blood work.  The difference in my health since going gluten free was nothing short of amazing. I am sure you will have the same results, once you go gluten free.
  • Upcoming Events