• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Did Your Ped Gi Recommend Endoscopy And Colonoscopy?
0

7 posts in this topic

Recommended Posts

Did any of your children have a colonoscopy ordered to rule out Crohns? I've come to terms with my daughter getting an endoscopy but I think a colonoscopy would be a bit traumatic especially if it's likely unneccessary. She's 9.

Background: I'm diagnosed celiac (bloodwork and endoscopy). She had recent bloodwork that showed borderline high ttg. She went through a period of about a month with frequent loose stools but that has largely cleared up but she's still having a lot of exhaustion and emotional highs and lows.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


JNBunnie1    164

So your daughter is not gluten free, has not been diagnosed with Celiac, and when they

do the Celiac test, they also want to rule out Crohn's, is that correct?

Share this post


Link to post
Share on other sites

Correct. She is not yet gluten free. She's not officially diagnosed but all indications point to celiac (family history, slow growth, recent stomach/emotional issues). We decided to move forward with just the endoscopy. Having her go through the prep-work of the colonoscopy right now would be a bit too emotional for her at this time I believe. If she doesn't have positive results once she goes gluten free we'll consult further for other possible causes.

Share this post


Link to post
Share on other sites
megsybeth    5

Hi Christine, My son's four and I did both just because he had to be put under. Probably at your daughter's age it's more of a light sedation so I agree with you that I would just do upper.

Share this post


Link to post
Share on other sites
maitrimama    1

My daughter was older, 15, but based on positive bloodwork and 2 rounds of stool testing they recommended endoscopy and colonoscopy. That was 1 1/2 years ago. The Dx was Celiacs and IBD. She goes back every 3 months and the IBD has been narrowed down to Ulcerative Colitis.

Share this post


Link to post
Share on other sites
Ads by Google:


divamomma    7

My daughter only had the endosopy. No mention of a colonoscopy. Prep for a colonoscopy is not fun! I would just to the endoscopy at this point.

Share this post


Link to post
Share on other sites

Her endoscopy went well today and I feel good about choosing to do just that test. We'll go back in 2 weeks for the biopsy results but we have the green light to go gluten free now.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,861
    • Total Posts
      938,367
  • Member Statistics

    • Total Members
      65,759
    • Most Online
      3,093

    Newest Member
    james burridge
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ok so is this really true?!?! Conventional? Remember, the fecal transplant was first described in the 1950s, but took decades to catch on as a conventional treatment for gut disorders, such as c-dif bacteria, partly because it was seen as crude and somehow objectionable. But it proved to work. Really well. So much so that it's now a fairly conventional treatment.
    • You are super sweet. I'm sorry your extended family isn't great about get togethers and cards. My family is the same. Once my parents died I don't have anyone who really cares about me except for my husband and kids. My parents started getting really weird about stuff as they got older, and my sisters are way older than me and we didn't grow up together, so we aren't close at all. In fact one sister hates me. They didn't even come to our parents funerals. Families pretty much suck so you gotta appreciate whatever you can put together for a support system. I come here every day looking for a smile or laugh, an encouraging word, or an opportunity to give advice. You guys are definitely part of my extended family   for what it's worth I would be up for secret santa.
    • Wow everyone my memory lane stuff just keeps popping up on this forum!!!! Thanks for sharing the post op and Audrey the pic. I had what looked like this on my inner left ankle in my late 20's!  It never got diagnosed at the time. I was seeing Dr's at time early pregnancy and then missed miscarriage.  dr's I had at the time I asked didn't know what it was. Period of time I had some of the worst headaches of my life etc. I didn't know if I had been bitten by a spider (brown recluse not in my area though) , the miscarriage, or picked up something from the hospital during my follow up miscarriage stuff-stirrup /ankle. I don't have a pic of it to share. Dr's didn't know, my mom a nurse didn't know , that left my husband who is a bit more holistic based and helped me on healing it  at home. I am really shocked to see see posts and all too often say wow! That's my .... from whatever decade  I'm newly recognized/diagnosed too so this was 15 years ago! wow if any one has any active pg I wish you comfort and swift healing . Been there but didn't have the puzzle piece until you gave it to me now. so many puzzle pieces....finally .....start making an image since I joined this forum.    
    • I can guarantee you that once you get your weight back up to normal, your period will come back.  You sound really malnourished and if your weight gets too low, your periods will stop.  Don't panic.......I was down to about 92-94 pounds at diagnosis so you will be able to heal if you do the diet correctly and don't cheat. Once you start to feel better and your other problems are under control , you will find it easy to stick to the diet. Nothing beats health!  Good luck to you!
    • As the other's have stated, you most certainly can go on to have additional AI diseases whether or not you are Celiac or NCGS.  Many AI diseases can be figured out without mainstream testing, as you know from your severe symptoms of Sjogren's.  I also have Sjogren's and knew that I did without any doubt because of the severity of my symptoms.  I was later tested with a new PCP and yes, they confirmed what I already knew.  Have you had the blood work for Sjogren's?  Not that it matters because you already know. As Sjogren's really has no treatment other than treating the symptoms, having a confirmed diagnosis doesn't always matter.  Just see the doctors you need to see for the specific problems you have stemming from it and that's all you can really do.  So far, it has worked for me.
  • Upcoming Events