• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Aaaaannnnnd Another "rash Pics"
0

Rate this topic

11 posts in this topic

Recommended Posts

Good morning all!

I finally figured out how to get pics here from my phone. Soooo here are my pics if anyone would like to share an opinion.

Ok a little FYI info...

1. Rash didn't start until about 5 years ago, and this is about the 10th time I've had it.

2. These pics are 10 days into the rash, so I know they look very mild but I forgot to take pics at the beginning

3. This particular episode was set off by Ramen noodles, AKA the devils dinner

4. I was hesitant to share the one of my chest- this isn't how they really look- before the picture I was showing my daughter how the little blisters are fluid filled, so popping them- turning them into this blotchy mess for the camera.

5. My head and ears and butt itch the most, yet no rash. Weird.

http://s1355.photobucket.com/albums/q702/nursesrock76/?action=view&current=photo_zps58d15c93.jpg&evt=user_media_share

http://s1355.photobucket.com/albums/q702/nursesrock76/?action=view&current=photo_zpsf8e9f738.png&evt=user_media_share

http://s1355.photobucket.com/albums/q702/nursesrock76/?action=view&current=photo_zps5e00d7a0.png&evt=user_media_share

http://s1355.photobucket.com/albums/q702/nursesrock76/?action=view&current=photo_zps143da8a2.jpg&evt=user_media_share

I hope those links work! I have no idea what I'm doing LOL

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Looks like DH to me. My rash used to look just like this before being gluten free for some time. My guess is that between the wheat noodles and the massive salt hit from the ramen flavouring is what caused this particular outbreak.

I'm also very itchy even where there's no rash. Drives me crazy to say the least.

Share this post


Link to post
Share on other sites

Kmag are your outbreaks pretty much a rare thing now? I'm hoping that since mine are mild they won't come back almost ever after going gluten-free. *crossing fingers*

Share this post


Link to post
Share on other sites

Yup, between the blisters, the photos & the itching; I say it looks like dh.

I hope after gluten-free they almost never or never come back for you but just remember they can. And dh is very, very sensitive to the tiniest amount of gluten. So don't take any chances. Play it really safe otherwise it may go gangbusters on you.

Share this post


Link to post
Share on other sites

If I keep my diet simple and lower iodine then my skin is better. I used to have that red rash you have, but that's gone now and what's left is more like purigo nodularis, but not exactly. The bumps I have will flare and blister if I get cc'd or have too much iodine. I am still terribly itchy in general, but I do believe that I'm slowly healing as it's so much better than before. For the record, I've been gluten-free for 20 months now.

I really hope that once you are gluten-free it'll never come back. I can't see any reason to think otherwise. Good luck!

Share this post


Link to post
Share on other sites
Ads by Google:


Good morning all!

I finally figured out how to get pics here from my phone. Soooo here are my pics if anyone would like to share an opinion.

Ok a little FYI info...

1. Rash didn't start until about 5 years ago, and this is about the 10th time I've had it.

2. These pics are 10 days into the rash, so I know they look very mild but I forgot to take pics at the beginning

3. This particular episode was set off by Ramen noodles, AKA the devils dinner

4. I was hesitant to share the one of my chest- this isn't how they really look- before the picture I was showing my daughter how the little blisters are fluid filled, so popping them- turning them into this blotchy mess for the camera.

5. My head and ears and butt itch the most, yet no rash. Weird.

http://s1355.photobu...ser_media_share

http://s1355.photobu...ser_media_share

http://s1355.photobu...ser_media_share

http://s1355.photobu...ser_media_share

I hope those links work! I have no idea what I'm doing LOL

Your pics link came through. The front view of you is what I looked like all over! My scalp, back, front and butt. I have some lesions around my knees and on my arms too. I am a self diagnosed DH person. I had the scalp and feet breakouts since at least 1999, of and on.

I have been gluten free and on Dapsone for 4 weeks and the improvement is drastic! I still have itchiness but if I shower or take a bath and lotion up, it will subside somewhat. I am also taking Benadryl most everyday. I am using Argan Oil and it is helping with the roughness of my skin. I have even melted the ointment so I can apply it more easily to my scalp.

I broke out all over my body this past March and just knew I could not live without a diagnosis. I have good results with my BS being much better and I have lost 20 lbs in the 4 weeks. My blood test was negative and I am still scheduled to have an endoscopy but even if the results are negative. . . . I will always eat gluten free! When I am going out to eat I check online to see the allergen menu of the restaurant and that has helped me immensely. I don't want my social activities to suffer due to this disease. You can eat out and be safe. I never have like Ramen noodles so I'm safe from that. . . Good luck!

Share this post


Link to post
Share on other sites

I can't figure out why I'm so broke out now. My head gets really bad with some on my face sometimes, my back, stomach and butt.

Share this post


Link to post
Share on other sites


Ads by Google:


I can't figure out why I'm so broke out now. My head gets really bad with some on my face sometimes, my back, stomach and butt.

 

 

Sometimes my scalp is horrible, like right now.  I found out a few weeks ago I was eating some veggies that are high in iodine.  Red food coloring has iodine . . . may have to sit down and write/print out a list so I won't forget!  

Share this post


Link to post
Share on other sites

Red food coloring #3 is the one with iodine. Red #40 is fine. That's in the US --- other countries may be different.

Share this post


Link to post
Share on other sites

Hi, I can't really say by looking but I can describe how mine feels. The itch is insane. Given a choice between having sex while eating chocolate cake on a yacht in the Caribbean, and scratching, I'd take scratching every time. If you've ever had a cold sore on a lip, that's kind of how the rash feels and acts.

 

 What I've learned over the years is; Don't scratch. Do not pop them. Don't put anything on them except ice, Betamethasone if you can get the prescription (use a tiny amount, don't coat the area), and rubbing alcohol or something like Everclear to help with the itching. Change your towel and washcloth after each shower. Use the coolest water you can take and NO baths until the rash is completely gone. Do not use neosporin or tea tree oil or anything else that might irritate the skin.

 

 Others here may have had different experiences, these are mine. I no longer use deodorant. I use only Dove soap for sensitive skin and I avoid putting ANYTHING on my skin.

 

 

Share this post


Link to post
Share on other sites


Ads by Google:


 

Hi, I can't really say by looking but I can describe how mine feels. The itch is insane. Given a choice between having sex while eating chocolate cake on a yacht in the Caribbean, and scratching, I'd take scratching every time. If you've ever had a cold sore on a lip, that's kind of how the rash feels and acts.

 

 What I've learned over the years is; Don't scratch. Do not pop them. Don't put anything on them except ice, Betamethasone if you can get the prescription (use a tiny amount, don't coat the area), and rubbing alcohol or something like Everclear to help with the itching. Change your towel and washcloth after each shower. Use the coolest water you can take and NO baths until the rash is completely gone. Do not use neosporin or tea tree oil or anything else that might irritate the skin.

 

 Others here may have had different experiences, these are mine. I no longer use deodorant. I use only Dove soap for sensitive skin and I avoid putting ANYTHING on my skin.

 

 

 

 

 

I'm following your rubbing alcohol treatment. . . I stopped taking Dapsone, I think I had a Dapsone rash in addition to the DH.   :mellow:   I have question.   About the rash . . . is every lesion a blister with fluid?  I'm still trying to track down all I can to present to my doctors.  I have a DH diagnosis but not every lesion had fluid.  I scratched and the skin opened and bled and then it was a hot mess.   I definitely have had blisters with amber fluid and then some that were very small blisters, felt the liquid but they didn't bleed.   Thanks for any help or advice.

 

~  Lyn

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,140
    • Total Posts
      939,875
  • Member Statistics

    • Total Members
      66,128
    • Most Online
      3,093

    Newest Member
    DAVOH
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Sofie! Listen to KarenG.   We both had iron deficiency anemia when we were diagnosed.  Plus, I have Thalassemia which is a genetic anemia on top of the iron deficiency anemia.   Dumping iron into your system is not the solution.  You need to be seriously gluten free.  You are probably unknowingly damaging other parts of your body....like your bones.  Two months after my diagnosis, I fractured my back doing NOTHING!  Think you are just not getting enough oxygen to your brain?  Think again!  It is probably related to celiac disease.  Celiac disease is systemic.  It is not just about villi damage.   But why am I telling a college student this?   You should be researching your autoimmune illness and ensuring that you do not develop Cancer (rare) or another autoimmune disorder like lupus, diabetes, thyroiditis, MS, Crohn’s, or one of the almost 100 other Autoimmune disorders (common).    Get your antibodies down.  Your mild anemia is the least of your problems.  Raising  your ferritin level may help a little, but healing from celiac disease will help you a lot more!    
    • Let my start by giving a brief summary of what I’ve been diagnosed with. Just over the past year I’ve been diagnosed with Celiac, EOE, lactose intolerance, soy allergy, tree nut allergy. Most recently diagnosed with Ulcerative Colitis. The Colitis came 8 months after having found out I had celiac. I have never had problems with gluten in my life. Dairy was something I had to eliminate because of the excrutiating stomach pains I would get from it. But I can have gluten any day and not have a problem.  I was diagnosed with a biopsy and followed by bloodwork. But who’s to say that dairy wasn’t the cause? I just feel like the GI was very quick to jump on the diagnoses without fully understanding my medical history, prescriptions I’ve took in the past ie long term antibiotic use, accutance, and 7 years of constant NSAID use.
    • I think she wants you to be strictly gluten free and heal.  Not give you things to patch up the damage you are causing by not getting your antibodies down and healing.   I am sure  she expected that you would take your diagnosis seriously and eat gluten-free.  4 months after your diagnosis, your antibodies would have gone down better.  But you weren't eating gluten free.  Eat gluten free. Take your supplements.  Read about the correct way to get your iron up - B12, vitamin C, don't take with calcium foods, etc  
    • Hello! I'm hoping to get some advice from y'all about iron IV infusions. First, some background: I was diagnosed with celiac disease at the beginning of June this year (2017).  I had labs done in March and my serum ferritin was 5 ng/mL. Hgb was 11.1, which isn't all that low, but is still flagged as below the normal range. I took 325 mg ferrous gluconate supplements daily for two months, and when my ferritin was rechecked, it was down to 4. The doctor ordered a celiac antibody panel and all of the levels were high. Confirmed with endoscopy at the end of May. A month later, I left for a 2-month study abroad program in France (aka the land of bread and pastries). After returning to the US at the beginning of August, I finally went gluten-free.  At the beginning of September, I returned to my University. Almost immediately, I realized I was really tired and was having a hard time making it through the day without a nap. I finally had a follow-up GI appointment around September 20th with the PA of the doctor who performed my endoscopy (not the same doctor from March). During the appointment, I asked her what we would do if my labs showed an iron-defiency. She told me that we would either do oral supplements or IV infusions, depending on whether or not she thought I'd absorb the supplements. When the lab results came in on the online patient portal, she made no comment on any of the iron-related results, just sent me a message that my antibody levels were still quite high, that I needed to keep up a strict gluten-free diet, and that we would recheck everything in six months. My ferritin was down to 3, Hgb was 10.3, iron saturation 6%, etc.  I was concerned about those results, so I called the PA's nurse and left a voicemail asking what the plan was for getting those levels up and got a portal message back from the PA saying that my hemoglobin was slightly low and will get better over time as I cut out all the gluten in my diet, but that I can start taking supplements if I want to speed up the process. I know that the Hgb still isn't that low, but it seems like the ferritin level is more serious. I went back for an appointment with the doctor who first found the iron-deficiency back in the spring and she seemed a lot more concerned. When I brought up IV iron therapy, she seemed to think it was a good idea. However, she's a primary care physician through my school's clinic, so she can't give me infusions. She called the PA with the intention of finding out whether or not she would change her mind about infusions, and had no luck. Interestingly, the PA's nurse informed her that they don't expect me to be able to absorb the supplements right away, and would consider IV infusions after I've been gluten-free for another six months.  I've done a bit of research on the IV infusions and it seems like I fit the criteria. Based on my antibody levels, I'm clearly not able to absorb iron any better than back in the spring, when the oral supplements did nothing for me. I understand that once my intestines heal more, I'll start being able to absorb iron better and should be able to boost my levels with oral supplements. However, I feel like I need a solution that will help me much sooner. I have a very demanding course load this semester and I'm constantly exhausted. I fall asleep doing homework at least twice a week. My grades are suffering, my mental health is suffering, and my relationships are being tested. I still don't have an explanation for why the PA doesn't think IV infusions are appropriate and I don't understand it. I really don't know what to do next because I'm afraid if I try to talk to the PA again, she'll get annoyed. I know that was super long, so for anyone still reading, thank you for bearing with me!! Now for the questions: 1. Do you think iron IV infusions in the near future would be a reasonable treatment for me? 2. Do you have any advice on how to make them happen? And if you have any other advice that's relevant to my situation, I'd love to hear it!   Thanks so much, Sofie
    • I can tell you that last week, I picked up and delivered 30 boxes of Costco pizza to a hungry marching band.  I lived!  Seriously, just wash your hands after handling.  Ennis is right.  Do not take a big sniff of the boxes in case there is any residual flour.  It took days for my van to air out and I did lay some old beach towels to protect my interior as normally, gluten is not allowed!  
  • Upcoming Events