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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Soy Intolerance?
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Good to know, thanks Dave!

Being a cheapskate, I generally go for the canned mackeral myself. But once in a while I try some tuna. I just have to fight the cat off to eat it tho. :)

LOL! Starkist gold can is soy free. Costco Kirkland tuna is soy free and cheaper.

I had no idea I was eating so many things with soy in them. It's shocking to me.

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Yep, they put soy, dairy, and gluten in a whole lot of processed foods. It is very common to find one of those 3 or all of them in processed food-like products. Along of course with food preservatives, (anti-bacterials) food colorings, emulsifiers, stabilizers, fillers, and spitballs. Ok, kidding on the last one. :)

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Well, thanks to this thread and after feeling pretty darn lousy following my tofu dinner the other night, I've decided to try a week soy-free. Since my gut reactions are immediate and quite, um, obvious, I figure I should know right away if that is an issue. I have lactose intolerance and have tested corn, eggs and grains in general but never thought about soy being a problem.

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Has anyone with soy intolerance experienced heart palpitations, and mood changes? I have been off soy for about three months, and after eating some chocolates my students gave me, thinking that a bit of soy lechitin would be a problem, I had racing heartbeat, tremors, and a kind of panic attack (my mother, who was talking to me, said that I sounded and seemed on drugs), followed by the onset of a headache that lasted for about half a day. I tried the experiment again a couple of times, with a smaller quantity, and the same happened heart palpitations, tremors, confusion, and then severe headache and sluggishness. But I never think of tachycardia as a symptom of intolerance, or am I wrong?

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I get severe mood changes with all legumes - peanuts are the worst as far as anger, anxiety, sadness. Peas and beans are like sleeping pills and soy is major abdominal bloating along with melancholy.

Haven't noted tachycardia per se, put I do know that certain foods do cause palpitations and anxiety.

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Has anyone with soy intolerance experienced heart palpitations, and mood changes? I have been off soy for about three months, and after eating some chocolates my students gave me, thinking that a bit of soy lechitin would be a problem, I had racing heartbeat, tremors, and a kind of panic attack (my mother, who was talking to me, said that I sounded and seemed on drugs), followed by the onset of a headache that lasted for about half a day. I tried the experiment again a couple of times, with a smaller quantity, and the same happened heart palpitations, tremors, confusion, and then severe headache and sluggishness. But I never think of tachycardia as a symptom of intolerance, or am I wrong?

For me ,,ingesting soy causes palpitations and anxiety amoung other symptoms ( such as confusion, headache,dizziness ,brain fog,ringing in my ears,constipation, ect......)I feel like my heart is racing ( and my normal heart rate is low )

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Many of my food intolerances have an effect on my heart. Racing heart, arrhythmia, dizzziness, fainting... eventually led to atrial fibrillation because I didn't know what was causing it and it occurred so frequently. Interestingly enough, I can now manage a little soy lecithin as in chocolate :D:D

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soy lecithin as in chocolate :D:D

there's my goal and the trial will be much more fun than edamame was :D

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Wow, thanks... I am afraid I will have to stay away from even that for a while, because my heart beats too weird. My grandmother also died of the complications of an atrial fibrillation (rhyme not intended!) which occurred when she was in her 80s, I think. I am not sure I want to try the experience, even if I am not that old! :P

I was "shipped" straight to a cardiologist with a heart scare and tremors this summer, which happened over a period in which I was living off tofu and soy-based bars (I know, 50 shades of wrong, never gonna do as badly as that ever again), so I wonder if that was a cause. My heartrate now seems back in place, provided that I steer clear of the above, and sugar.

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Well, thanks to this thread and after feeling pretty darn lousy following my tofu dinner the other night, I've decided to try a week soy-free. Since my gut reactions are immediate and quite, um, obvious, I figure I should know right away if that is an issue. I have lactose intolerance and have tested corn, eggs and grains in general but never thought about soy being a problem.

Good luck. Let me know how it goes.

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Wow, thanks... I am afraid I will have to stay away from even that for a while, because my heart beats too weird. My grandmother also died of the complications of an atrial fibrillation (rhyme not intended!) which occurred when she was in her 80s, I think. I am not sure I want to try the experience, even if I am not that old! :P

I was "shipped" straight to a cardiologist with a heart scare and tremors this summer, which happened over a period in which I was living off tofu and soy-based bars (I know, 50 shades of wrong, never gonna do as badly as that ever again), so I wonder if that was a cause. My heartrate now seems back in place, provided that I steer clear of the above, and sugar.

Scary! I'll be curious to know how you feel off of soy.

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My heart rate dropped dramatically. Was it the absence of soy? Was it the resumed cardio? I could barely walk at 4 mph without feeling pain when I was eating that much soy. I am also less "crazy" in general. Was it the absence of soy? Was it the breathing exercises? I am not sure. But when I feel that awful, to be honest, I'm not really that curious. I sort of just want to find the combination of diet/therapy/lifestyle that will make me feel able to live life again. As of now, all my tests came back negative (no endoscopy performed), so I don't have celiac disease. But there is no doubt that my gut is messed up, and since starting the gluten-free diet, I am able to leave the house without having to choose between either fasting or needing a ladies' room at hand. Sorry, TMI!

Eating two truffles made with soy lechitin means pounding palpitations (I can feel them in my stomach) and chest pain; then, if I have consumed more than that, comes GI distress: bloating, and running for the bathroom. Not even coffee does that to me.

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Sorry to bump this up, but I am kind of worried at this point. I have accidentally soyed myself (WHO on earth thinks it's a great idea to put soy in herbal tea???) this morning. I have had palpitations all day, and people talking to me said I was irritable and confused, and at a certain point I felt that my heart was going very fast and then kind of "stopped" (I don't know how to describe it) with two very string thuds. It happened three or four times in the afternoon. And it was almost painful. And I was lying on a sofa, not going around. I could not do much more beside, because the whole room was spinning around me for an hour or so.

Do I need to call my doctor about the heart thing?

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Sorry to bump this up, but I am kind of worried at this point. I have accidentally soyed myself (WHO on earth thinks it's a great idea to put soy in herbal tea???) this morning. I have had palpitations all day, and people talking to me said I was irritable and confused, and at a certain point I felt that my heart was going very fast and then kind of "stopped" (I don't know how to describe it) with two very string thuds. It happened three or four times in the afternoon. And it was almost painful. And I was lying on a sofa, not going around. I could not do much more beside, because the whole room was spinning around me for an hour or so.

Do I need to call my doctor about the heart thing?

YES! When in doubt == Emergency Room - better to error on the side of caution.

We are not doctors on this board...simply other folks with Celiac Disease, NCGI or other food intolerances -- if you are experiencing new serious symptoms, please consult a physician.

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I agree,, when in doubt check it out.

chances are is it "just " the soy but making sure is a good thing.

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Thank you for helping me in my freak out.

I called my doc - apparently it was a case of extrasystole somehow related to the exposure to foods/substances I am reacting to. I have been keeping a diary, and it looks like each accidental exposure makes me react worse and worse.

I am feeling slowly better.

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I am feeling slowly better.

Glad to hear -- hope you are feeling even better now :)

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Yes, tachicardia mostly gone, or gone enough to zumba. Tummy still so so.

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Yes, tachicardia mostly gone, or gone enough to zumba. Tummy still so so.

Good to hear your heart has settled - scary stuff.

Tummy may have ups and downs for a while.

Hang in there :)

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