• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Babies With Celiac, What Did You First Notice?
0

9 posts in this topic

Hi guys,

I'm Celiac and wondered what symptoms did you first notice with your Celiac child or baby? I want to keep an eye out for my grandson. Thanks everyone!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My grandson was 18 months when I was finally diagnosed. They had already removed several foods thinking an intolerance was causing severe loose stools and frequently sore tummy from birth.

When I was diagnosed, his Mom removed gluten - within days he had his first solid movement and his stomach aches disappeared within a few weeks. Thankfully, young children heal very quickly.

0

Share this post


Link to post
Share on other sites

Generally, besides stomach upsets and diarrhea/constipation, symptoms can include irritability, blanking out (staring into space), anxiety, clinginess, aggressive behavior, and moodiness/crankiness. This is what is taught at celiac conferences, and my nephew had ALL of these symptoms from a very early age. Also, look for toeing in of his feet once he starts walking--this can be an indication of Vitamin D deficiency.

0

Share this post


Link to post
Share on other sites

OMGoodness...the connections to celiac are continually amazing. I believe I was undiagnosed my entire life for many reasons...but I had never heard the pigeon-toed symptom -- I had to wear corrective shoes for at least eight years because my toes turned in -- boy were they ugly!

0

Share this post


Link to post
Share on other sites

Hello,

My daughter was 3.5 years when I got the confirmed diagnosis.The symptoms that led to me asking for the testing were as previously mentioned,

irritability, moodiness, clinginess, inability to settle and very restless sleeper, dark bags under the eyes (some sort of defficiency?), and always suffering

from some sort of abdominal upset. At 2 years nearly every day without fail she would tell me"mummy,sore tummy" repeadetly. Then, she started getting

these intense muscle cramps in her legs- like little rocks in there! As well as severe joint pain in her hips, knees and ankles.

When I did my research and asked around I realized these could all be direct or indirect symptoms, as you're probably aware, of the flow-on effects on the body.

The joint pain and leg cramp thing is rarely listed as a common complaint- but her paternal aunt has it too- (the reason I was looking out for it like you) and she recollects getting horrible cramps around time of diagnosis too (which was 18 years for her).

Hope this helps :)

0

Share this post


Link to post
Share on other sites
Ads by Google:


Generally, besides stomach upsets and diarrhea/constipation, symptoms can include irritability, blanking out (staring into space), anxiety, clinginess, aggressive behavior, and moodiness/crankiness. This is what is taught at celiac conferences, and my nephew had ALL of these symptoms from a very early age. Also, look for toeing in of his feet once he starts walking--this can be an indication of Vitamin D deficiency.

These are all the symptoms my daughter had! I didn't know about the walking, my daughter does that too. She was very constipated, we had to give her miralax and then she would have awful blowouts. I thought she might be autistic because of the behavior. I wonder about the vitamin d deficiency though...now I'm worried!

0

Share this post


Link to post
Share on other sites

My dd didn't get diagnosed until 11. But she had food issues from birth. I had to avoid all dairy while she nursed. She always had trouble with gas. We had to delay all food until 6 mo. because she just didn't handle it well. She had never had an antibiotic, but had yeast infections from just a few months of age. By age 3 had huge cavities in all her molars despite all our brushing. Stomach aches were a normal part of life. By age 10-11, she was the most miserable, cranky child. I thought my sweet little girl was gone. Turned out she was still hiding inside! At 15, she is a joy!

0

Share this post


Link to post
Share on other sites

Vomiting, dark rings under the eyes, severly dissented stomach, refusal to eat even her "favorite" foods (pasta, pizza, bagels...), failure to thrive are all symptoms we saw intensify up until diagnosis.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,796
    • Total Posts
      932,499
  • Member Statistics

    • Total Members
      64,281
    • Most Online
      3,093

    Newest Member
    Michaeldp
    Joined
  • Popular Now

  • Topics

  • Posts

    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
  • Upcoming Events