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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Issues With Caffiene Since Going Gluten Free?
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7 posts in this topic

Has anyone noticed a sensitivity to caffiene since going gluten free?

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I personally have not, but then again I don't drink a lot of coffee or soda.

Caffeine is a known irritant to the GI lining though so it's not surprising.

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Yes, I had to give it up years ago. I gave up tea then too, but have recently been able to reintroduce tea.

Varies a lot for people though.

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I used to have a cup of coffee everyday. Used <_<

Caffeine seems not to go well on me either, although I could have it in my first months gluten-free. Coffee, Coke, black tea, you name it.

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I only drank caffeinated drinks before going gluten-free. Coffee all morning and then sweet tea all day, followed by coffee in the evening after dinner, then tea until bedtime. When I went gluten-free I also eliminated coffee and tea. I was strictly drinking water, Lactaid milk and OJ. After 2 weeks or so I reintroduced caffeine, but I only allow myself one cup of coffee per day. I do not drink sweet tea (damaging to my teeth was the main reason I quit that one) so the only other caffeine I may get is from soda, but only then when I eat out.

Here's the interesting part. I do not know what was causing my headaches. I had them every single day for many years. I lived on ibuprofen. What I do not know is if the caffeine had me on the edge of dehydration all the time (was constantly thirsty) or if the celiac (or celiac/caffeine combo) was the cause. Whichever it is, I am not going back to full caffeine because I have had one migraine and zero regular headaches since going gluten-free. And the migraine was noise induced by the flooring guys installing hardwood flooring in my house. So I think I've really had zero headaches in 2 months. That's never happened in my entire life.

Long answer, but caffeine can cause bad stuff in some people, depending on how much is consumed, so trying elimination may answer any concerns you may have about whether it's having any effect on you.

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Wow SMDBill, that's fantastic.

I know some people are really sad (by which I probably mean resistant!) to dropping coffee. It is so long for me I dont really remember. I hope hearing your experience persuades some people to try it.

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Has anyone noticed a sensitivity to caffiene since going gluten free?

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    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
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