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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Itchy Mouth
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6 posts in this topic

Hi there

Wasn't sure where to put this but just lately, about last week, I have found myself itching roof of mouth with tongue - very itchy. I have had this in the past but had forgotten all about it. Now it's back.

Have been having some chocolate lately (which I can't eat) so although no gluten ingredients, guess I'm getting cc'd.

Battled candida for ten years in the past (thought my celiac was candida :wacko: ) but now I'm wondering.

Not wishing to muddy the waters with another theory but anyone else get this itchy mouth?

(PS. Get itchy inner ears sometimes too but believe this to be associated with thyroid).

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Yes, definitely allergy symptom. I get that with many of my food allergies. It is often the first symptom when I develop a new one. I have a chocolate allergy but there are other ingredients in chocolate that can be allergens as well, soy and dairy. You should consider reporting it to an allergist. Look for one who is used to running large panels for foods and belives in elimination even if you don't have anaphylaxis. Many mainstream allergist don't really bother with foods and won't recommend elimination/avoidance unless someone has a severe reaction. I find that I get big payoff by avoiding my "milder" food allergies.

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Think you could be right.

Have noticed today itchy lumps back of roof of mouth and these are where the itch is coming from. Also some itchy face around mouth.

Well, I shouldn't be eating choc anyway as have big issues with soy - don't know what I'm thinking this week :blink: . (Just rubbed my face then)!

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Think you could be right.

Have noticed today itchy lumps back of roof of mouth and these are where the itch is coming from. Also some itchy face around mouth.

Well, I shouldn't be eating choc anyway as have big issues with soy - don't know what I'm thinking this week :blink: . (Just rubbed my face then)!

I have an unfriendly soy allergy. There are chocolates with no soy out there. I could have no soy, no dairy and had to watch the sugar carefully for a while and I still found a couple options...until I ended up allergic to the chocolate itself. I have been abe to gain back a few foods after long avoidance but my allergist has a protocol I follow for re-introduction and a different protocol for foods that are riskier for me. I am currently enjoying a little chocolate again-soy and dairy-free ;) on an occasional basis, after maybe a year avoidance.

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Wanna know something funny? My allergy to tomatos mainly shows up as burning on my head neck and sholders, like a really bad sunburn without the redness. Though i once had it turn part of my tounge numb. Took it to my allergist and he said yep (along with the positive skin test, one of the biggest hives he's seen on it)

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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
    • Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables.  As for the candida, I've been using coconut oil and am seeing a medical herbalist for this and leaky gut. It's only been a few weeks but I've noticed an improvement all round.
    • What did you drink and where did you drink it?   NOTE if you drink something at a bar using their glasses your asking for trouble BEER IS EVERYWHERE in most bars and a CC hell.   If it was at home and a non grain based liqour then I would be really concerned that it might just be alcohol. I personally can not really drink much of anything any more. I love rum, and I cook with it sometimes in sautes. I also have rum extract/butter rum extract/and rum emulsion I use in shakes, homemade keto pudding/ mixed into dishes. and even add some to drink to give it a rum flavor lol.
    • I can only think of two things, 1 something you put on your potato was contaminated like the butter container could have crumbs in it or something like that as mentioned before, and you could be having a reaction to dairy or what ever was put in it.......IF it was just plain potato and you reacted with bloating and cramping you might have a carb issues, tad rare and most associated with additional auto immune diseases but could be in which case a diet of fats and protein would be your answer much like it is for me now days. What all have you eaten in the privous 8 hours including beverages, condiments, spices and foods?
    • They are gluten-free.  Did you use butter that might have gluten crumbs on it?  For me , it takes more than 2 hours to feel the effect of gluten- maybe something you ate before?  Maybe  stomach virus?
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