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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Still In Pain
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5 posts in this topic

Hi, I was diagnosed with celiacs about a year and a half ago and have been sticking with the gluten free diet my hardest. I'm only 18 years old but suffer from painful "attacks" which is when I get sharp abdominal pains that bring me to tears. I try everything to avoid these attacks, yet they still come. My dad was also recently diagnosed but does not have as severe symptoms. During the attacks, I get sharp pains not only in my abdominal region but my shoulders sometimes either right or left. I still tend to feel fatigued and get headaches as well. The attacks do not last long but are no fun experience for anybody. Not sure what else to do besides visit the Doctor again?

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Sounds like your gallbladder might be going on ya. Go to the doctor and have a HIDA scan done to check.

It could also be that you are getting CC'd somehow or have developed another issue. A good idea is to keep a food diery and write down everything that you eat. IF you see a connection eliminate the food.

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Hi Chloe & welcome to the forum.

Couple questions:

Was the shoulder pain something that used to happen before gluten-free?

Is the abdominal pain similar to anything pre-gluten-free?

Where you say 'sticking w/ the diet my hardest', does that mean some inevitable cross-contam from eating out or more like occasionally having a little something w/ known gluten?

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I've been gluten free for two years and suffer with those sharp pains also. Still don't know what they are. Will you let me know what you find out?

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You could try to keep a food/symptom journal. You may be able to link those pains with something that you are eating. It could be a certain brand or restaurant meal that has cc, or it could be another food intolerance. It works best if you can keep you diet simple with only one change per week. Produce and plain meats make this process of figuring things out even easier and they don't have so many ingredients or cc possibilities.

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