• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Eating Disorder & Celiac Disease?
0

7 posts in this topic

I was diagnosed 15 yrs ago with fibromyalgia. Was told then there was no help for it - I just had to learn to "live with it".

In 2008 I had a heart attack (or so I was told by emerg. doctors at hospital. Spent 2 days & $30,000 for them to say they didn't know what caused it & here were some meds - & oh, I couldn't have a follow up because I owed the cardiologist too much money! Needless to say I had no insurance!)

After 2 yrs of going from doctor to doctor & getting sicker & sicker I finally found a clinic in 2010 that diagnosed celiac disease, hashimotos & rheumatoid arthritis. I went on a gluten free diet & brain based therapy that this clinic specializes in. I felt so much better (with some ups & downs) that I swore I wouldn't touch gluten ever again. Since then, I've also had to go off casein, which is a little harder & caffeine which is almost impossible!

My problem is - I don't cook. I live alone, work a swing shift full time plus run a cat sanctuary with 22 cats, so my time & energy are very limited. I never really learned how to cook so I almost always ate out. With my diet however, even watching for gluten, I suspect I was getting small amounts all along.

The last couple of months I have started to cheat on the diet in increasingly large amounts. I will of course feel awful & then beat myself up terribly for being so stupid. Everyone tells me that I'm the only one who can do this (stay on the diet) but all this does is make me feel more & more alone. There is no local support group that I can turn to & my family is 1000 miles away. Intellectually, I know I have to stay on the diet & I even want to, but emotionally I'm getting more & more rebellious & now I'm starting to get scared.

I've begun to wonder just lately whether this is in some way related to an eating disorder? At the clinic we traced my symptoms to see how long I had been sick & I realized they had started around 15 or 16 yrs of age (& I'm now 53) - my whole life has basically been about the avoidance of food. Before I went on the gluten free diet I was down to only eating once a day & my immune system was so messed up it didn't matter what I ate - I felt terrible. If I could have stopped eating altogether I would have. Now I'm told that if I only eat certain things - I will feel terrific, but am I still having some emotional backlash against eating?

This is really difficult to exlain coherently, so if anyone else out there has experienced this or know what I'm talking about, could you perhaps let me know? I'm beginning to think I'm just nuts. Am getting really tired of the struggle.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


(hugs) I'm sorry to hear you are having a hard time now. I have a harder time making the effort to cook well when I don't feel well, and then when I don't eat well I don't feel well.... a really bad cycle. :(

I have read about a link to eating disorders with celiac. In fact, my cousin who was diagnosed 10 years ago in her 30's suffered through anorexia as a teen and young adult; I've often wondered if there was a link there but I haven't asked her... I didn't want to pry.

I know personally, my eating was affected by the celiac. I used to overeat on occassion...not sure if it could be classified as a binge but it was way too much but I usually had a stomach when I ate so overeating was just another stomach ache. :unsure: My portion size has shrunk since going gluten-free.

Do you have your Hashi's under control? As you know, that can cause fatigue and depression if you don't have enough Free T4s or T3s. You might want to check and see if your TSH is near a 1 and if your Free T3 and FT4 are in the upper end of the normal range for your labs... that seems to be the best spot for many Hashi patients. It might make it easier for you to comply with the diet...

You probably know this, but you need to learn how to cook a few things so you are eating better. Pre prepared foods and resturant foods are not as good for you, and cost so much more too.

Eggs are a great food. I make a egg bake a couple of times a week and it's wonderful leftovers. i fry up a few veggies (peppers, onions, spinach or whatever appeals to me) so the bottom of my fry pan has about an 1" of cooked veggies. Then i beat 8-12 eggs with some water or salsa or coconut milk and put it on the burner on low. Once the edges are solid I put it in the oven at 300-350F for 10 minutes. I then turn off the oven and let it sit longer until the middle is set and starting to turn a golden colour. It takes half an hour, and when it's done I have 3-5 meals to put in the fridge.

Chicken breasts and fish take aboyt 30 minutes in the oven at 425. Rice is a piece of cake: 1 part rice to 2 parts water, add a gluten-free boullion cube for flavour, bring to a boil, reduce heat to low and cover for 30-45 minutes and it's done. Cook extra of everything for leftovers. Frozen veggies nuked in the microwave are handy when short on time. gluten-free noodles cook just as fast as regular...I hope you'll try to comply with the gluten-free diet. It's not that hard to cook gluten-free.

Get rid of your cheat foods as soon as you can... I think you are on a slippery slope right now. I hope you can scramble off before you slide to the bottom and you have serious intestinal damage again, and possibly aggravate your Hashi's and RA with the inflammation untreated celiac disease causes.

Best wishes. I hope you feel better soon. (hug)

0

Share this post


Link to post
Share on other sites

Hi Katz

I just started a topic about this a couple weeks ago. Do a search ”fear of food". The suggestions I received were great and it is helping me eat more and better. It's very hard but I think once you wrap your head around this thing it will get better. Your commitment to your health is essential. If I can help at all just shoot me a message.

Colleen

0

Share this post


Link to post
Share on other sites

Cooking isn't that hard :)

Get yourself a crockpot toss some meat and veggies in and vala a meal.

0

Share this post


Link to post
Share on other sites

I have never cooked. I was just like you - almost everything I ate came from a restaurant, and when I DID cook it was something like a frozen pizza.

I still am not much of a cook, but I do cook chicken in the oven. I even use disposable pans so I don't have to wash dishes. Then I buy broccoli or cauliflower (fresh). I put some instant rice in a bowl and microwave it, shred some chicken in it, chop the veggies really fine, and throw the whole mess back in the micro for a minute and a half. Sometimes I put some extra sharp white cheddar in it too.

This can be prepared ahead of time and put into individual zop-lock bags in the freezer. When I want to eat I just take a bag out of the freezer and mic it. I often make enough on Sundays to get me through the whole week.

Potatoes and sweet potatoes can go in the oven with the chicken, so those are easy. You can cook a bunch at once and have them in the fridge for whenever you need them. And you can still microwave them to get them hot while you're heating the meat and veggies.

The veggies are the thing that blew my mind. If you mic them with the other stuff, there is no need to steam or cook them first. When they are mixed in with the rice or potato, they cook just fine in the mic. Just chop them really fine.

If cooking is easy you are more likely to eat. I'll never be a great cook, but my meals taste fine to me and they are so easy I don't mind.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi Katz

I am celiac and hashi's too and similar age so undiagnosed celiac for donkey's years.

I too struggled with what I assumed was some kind of eating disorder including seeing psychologists, etc (did no good) and I just lived with it. In hindsight I am sure it is all due to the effects of gluten. Maybe it's due to malnourishment or something.

One of my symptoms of cross contamination is that it kind of triggers me to eat. Pre-gluten-free I could never eat a large meal because it would make me desperate to eat - what kind of sense does that make? :blink:

Also the feeling ill would kind of make me eat more - crazy.

What this leads up to is a vicious cycle as you have mentioned. Feeling poorly/lack of energy, feeling bad about it all and hey ho another snack to try to feel improved.

Well I don't need to tell you - it so doesn't work!!!

You have to make a big effort to eat right - to feel a bit better - to eat right some more.

At least now - 2 years on - I feel so ill at a hint of cc there is no way I can eat gluten but one of my signs is wanting to eat.

Sadly, I can't currently eat lots of other things either :( my digestive system just can't handle it. However, I am travelling hopefully that one day I may get some of them back :rolleyes: .

Would like to add - stick with this forum, it has greatly helped me.

0

Share this post


Link to post
Share on other sites

Hi again!

Have just re-read your post Katz and see you finished with being 'tired of the struggle'.

For me, the 'struggle' has been like part of the learning curve.

A real low for me was finding I couldn't manage processed food, rice or potatoes. That got me super resentful :angry: . If I could eat all the gluten free stuff suggested on the Newbie thread I would spend all day skipping and singing and waving my arms happily.

I got past it (making myself ill from eating it) and I've slowly sorted it out in my mind. Got better at finding other yummy things to eat that I'm ok with. Try not to beat yourself up but do keep at it all the time - don't give up.

0

Share this post


Link to post
Share on other sites




Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,330
    • Total Posts
      935,520
  • Member Statistics

    • Total Members
      64,991
    • Most Online
      3,093

    Newest Member
    Cz28
    Joined
  • Popular Now

  • Topics

  • Posts

    • I buy the Chex cereals( except wheat). I had recently been buying Puffins from Barbara's bakery but got a very unsatisfactory answer to my question about where they source their oats so I have decided to stop buying them. See below.... "Thank you for your recent email about the oat flour in our Puffins cereal.  We appreciate the time you took to contact our company.

      Approximately 90% of our ingredients are sourced from North America. However obviously there are some crops that do not grow here, and items that are not manufactured here. In those cases, we source from other areas, mainly UK, EU and South America. Regardless of where the supplier is located, we have a very robust Supplier Assurance Program that ensures that we purchase only from approved, high quality suppliers. 

      We thank you again for your comments and hope you continue to enjoy our products.  If, at any time, we can be of further assistance, please don't hesitate to contact us again."
    • Hey guys!  I have been suffering from NCGS for almost a year, and have recently been diagnosed with IBS.  Although I was finally getting used to the gluten free routine, this has been really hard to get used to.  I'm currently having a major flare, so I'm off pretty much all fodmaps (although mainly beans, dairy, nuts, and gluten). Additionally, my stomach can't handle more than a 1/2 cup portion per meal, and even then, I'll occasionally have pain after eating.  Does anybody have simple, fast meals that they could share? As if this isn't restrictive enough, I'm also allergic to eggs, so I'm pretty much living off smoothies, rice, and allergy free chicken sandwiches.  I know this is pretty restrictive, but I thought that if anybody could help, it would be you guys.  Thanks!  Claire 
    • Great advice everyone! So the envirokids gorillla munch by natures path is safe?. As for cinnamon Chex is that ok too? 
    • Alright, so I'm 3 months into being gluten free, And in terms of how I feel, the "best fit" line on the graph would be a very slow incline, which is good, but day to day, I would mark as all over the place. I don't understand. I pretty much do the same things every day, and eat the same things every day at around the same times, even in the same order. I cook all my own food and am super careful about CC. I even have my own pans, cutting boards, even my own sponge for washing my own aforementioned kitchen supplies. What I eat is very limited. I don't even do dairy, grains, or added sugar. (for now) Yesterday I actually felt okay. The brain fog was fairly thin, I felt more based in reality, rather than like I was in the matrix, on drugs, or in a dream. Today I'm back in the matrix again. I can't think, I have anxiety, I'm overly emotional, short fused, angry, and scared of my own shadow. This up and down for no apparent reason stuff seems to be the norm for me. Is this unheard of or somewhat common? It seems like how I feel is completely out of my control, and the disease just does whatever it wants. I know 3 months isn't that long in the usual recovery time frame, but I want to get off this ride. I just need to know if it's normal to be so up and down day to day during the recovery, or if I should give in to my assumed unfounded panic attacks and be worried. As a side note, I'd much rather have the typical gastro issues usually associated with celiac. Blowing chunks and crapping my pants constantly would be way easier for me to deal with than all the neurological problems mine manifested as. Ugh.
    • Ha, Ha!!!!!!  If I wouldn't get in trouble for practicing without a license, I would!     I get it because that is what they did to me for years.  I never had acid reflux but had enough other symptoms that all screamed Celiac but no.........they told me that my severe stomach pain might be acid reflux so take this script and go away. They never even tried to figure it out past the 10 minutes allowed for the appointment. I'll never forget one doctor that I pushed back on and told her I was not there for meds but to find out what was actually wrong and she got so mad she left the room and never came back. All they kept doing was trying to shove pills down my throat.   I am guessing that the procedure is the one where they tighten the sphincter muscle at the entrance to your stomach? I know so many people who had that done because it's become so common to push that if the meds aren't working well. Follow the money........ If acid reflux becomes that bad, then you have to start looking at food, period.
  • Upcoming Events