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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free Only Restaurant Yay!
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35 posts in this topic

Chattanooga, Tennessee is getting it's very first completely gluten free restaurant called Crave. I am so excited! Anybody else have a gluten free only restaurant near you?

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Yes ---and I am there quite a bit. The owners, Sherry Lynn and Howie Birch, are like my family now.

Incredible people. She has celiac and since her DX , she has dedicated herself to helping others.

Strictly gluten free restaurant and bakery called Sherry Lynn's in Latham, NY.

I drive an hour and half round trip, but who cares? :) Totally worth it.

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Sort of... half an hour or so away is a gluten free bakery. Mostly they have cupcakes (by far the best I've had in my entire life, better than any gluteny crap), brownies, cookies, breads, and cakes. But, in addition to that they do pizza, soups, sandwiches and have a small dining area. I never go without getting an arepa. For a while I was going every month but it's just too far to be up there much lately. I will certainly be making a trip for Christmas and my birthday though!

I've heard rumors of many gluten free restaurants up in Salt Lake as well. Okay, many may be a relative term. But a few.

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Chattanooga, Tennessee is getting it's very first completely gluten free restaurant called Crave. I am so excited! Anybody else have a gluten free only restaurant near you?

We have one here, it's Italian and a bit pricy for my budget but it was so great to go and have no fear! I will probably go about once a year. I was really nervous at first but I got over it. :)

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Still waiting for one to open in LA! (I'm not counting the raw food restaurants because we're on the gluten-free diet for my 2 year old daughter's sake so those raw food places won't cut it). We go to the gluten-free bakery about once a week for fresh bread and cupcakes. Wish they'd sell sandwiches too.

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Yes ---and I am there quite a bit. The owners, Sherry Lynn and Howie Birch, are like my family now.

Incredible people. She has celiac and since her DX , she has dedicated herself to helping others.

Strictly gluten free restaurant and bakery called Sherry Lynn's in Latham, NY.

I drive an hour and half round trip, but who cares? :) Totally worth it.

I've driven 2:15 each way to get to abused by Howie so take that!

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Its Ok , and probably helpful to others to mention the names and cities of these restaraunts. As long as you don't own them!

Addy - Are you talking about Eleanor's? We haven't been to Utah to ski lately. I soooo want to try that place.

http://www.eleanorsbakeshop.com/

I have been to Mariposa in Oakland (they have one in the Ferry Bldg in San Fran) They have some sandwiches, pizza, quiches.

http://www.mariposabaking.com/pages/oakland

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I've driven 2:15 each way to get to abused by Howie so take that!

HAHAHAHAHA!!! Oh this is hysterical. My hubs gets abused by Howie constantly.

He gives me hugs.

Great family, aren't they? Love em to death.

Fantastic!! hey, PM me next time you're going--I'll meet you there!

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@IrishHeart: That is awesome I hope my experience will be just as good. I am sure yhey can accomodate my corn free diet too. I am blessed I wouldnt have to drive an hour and a half. :-)

@Adalaide: yes, ours is supposed to be a bakery and cafè. I hope it survives in this city. I heard it is excellent so I cant wait.

@Sora: That must be great. I tell people I mist have been Italian in a previous lifetime. I love my noodles and pastas and pizza and....

@AGH: I wish we had a gluten free bakery where I live. I would die for some fresh gluten and corn free bread. I probably wouldnt take my celiac kid anywhere unless it was strictly glutenfree. i dont blame you.

@pshifrin: i hope you enjoy that long drive lol i cant stand just driving thirty minutes people make me mad and scare me to death with their wrecklessness, especially this time of the year.

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@pshifrin: i hope you enjoy that long drive lol i cant stand just driving thirty minutes people make me mad and scare me to death with their wrecklessness, especially this time of the year.

So long as they drive wrecklessly, and not recklessly, you will be all right :D

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That's great for Chat. I wish I could say the same for Memphis. In fact, we only have one gluten-free bakery and it is run out of someone's home. Have to preorder. But still it's nice to be able to get bread that I don't make myself.

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@mushroom: that made my day lol. i was at work getting yelled at by this woman because she was so hot she was about to die....kinda hard to focus when you got a senile woman screaming at you constantly or asking the same question 24 times for ten hours. honestly that is te worst torture i can think of. Much worse than water boarding. well that is my excuse and im sticking to it ;)

btw, i was just thinking that I must be getting pretty bad for a shroom head to fix my grammar.

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btw, i was just thinking that I must be getting pretty bad for a shroom head to fix my grammar.

No worries! Grammer-fixin' is one of my specialties. :lol:

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So long as they drive wrecklessly, and not recklessly, you will be all right :D

:lol: :lol:

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just so everyone knows I was just kidding nobody on here does magic mushrooms.

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just so everyone knows I was just kidding nobody on here does magic mushrooms.

Sez you. :ph34r:

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just so everyone knows I was just kidding nobody on here does magic mushrooms.

.....well, not since college

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Okay. They said it not me. ;)

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lol okay yeah i see. Really though, I am really hopeful that options will become more available as more people venture into that risky business. once people taste good food, they will keep coming. I hope quality will offset the costs.

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We NEED more totally gluten-free restaurants. We NEED franchises all over the country...no, the world. :)..If I had the cash, I'd do it. I would make it happen...I wish I could..and we would all eat safely

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The best we can do is when we have one pop up where we live, we support it as much as possible and eat out just because we can. That is the best part though, being able to eat out nonchalantly without fear. Some degree of normalcy.

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We used to have one but it was no good. The lady who owned it has actually moved to a new location and although I think she does still sell some savory items, it is mostly a bakery and I think they have only a couple of tables. I wouldn't go there if you paid me. She now also advertises that at least some of her things are dairy and egg free. But here's why I won't go there.

The first time we went there, my daughter saw chicken strips on the menu. It said that they were made without egg. She couldn't have egg. She ordered them. Then the owner came back to the table and asked about the egg. Said that the cook didn't know about the no egg thing and made them with egg. So she would have to order something else. Daughter was very upset. The service was super slow too.

On the way out, the owner told us of some individually wrapped items that she had for sale. Bought a brownie for my daughter and was assured there was no egg. When we got home, daughter ate the brownie and began getting sick to her stomach. Then after she threw up, I began to wonder.

We went back. I asked about the pizza. Wanted to make sure there was no egg. My egg intolerance hadn't been confirmed by the Dr. but I knew how sick they made me. I was told there was no egg. Fine. Ordered it. Then went to browse the refrigerated cases to see what she had for sale. And while I was there my friend saw me and came in. Got trapped in there for half an hour. The owner had tried to come back and tell me that I couldn't have the pizza because there was in fact egg in it. So once again our meal was super delayed! But... While we were looking at the refrigerated cases we saw a label for the brownies and they did have egg in them! Gah!

Also on that same day, she offered my mom a chocolate chip cookie for free to try out her new recipe. My mom mentioned that she couldn't have eggs either. The owner told her that there were no eggs in it. So as my mom was eating it, the owner came flying back to the table and shrieked for her to stop because it did have eggs in it. Thankfully my mom doesn't have a life threatening allergy to eggs but it made her sick a few hours later.

Then I asked her if she could make a cake for my daughter's birthday with no egg or dairy. She said that she could. I told her when I needed the cake and she said to stop in two days prior to remind her. Then when I did she pulled an attitude on me and said that she could not make a cake that would be good. Said she the only cake she could do would be lemon. Daughter wanted a cake, any cake so badly that she said would take the lemon. But then the owner said that no, she couldn't make us one.

The owner was also IMO rather nutty. She had her daughter working there too and they two of them were often fighting. And I saw her pull an attitude quite a lot with people.

So even though she now advertises at the other location that she can make things with no egg or dairy, I don't believe it.

There is another place in Seattle that is mainly a bakery but does do some savory items. I have never been there. My parents got a birthday cake for my daughter there twice. The problem? The only one they can do that is suitable for her is chocolate and she doesn't really like chocolate cake. The first cake we got was actually quite good and pretty much everyone liked it except for my daughter. But it was insanely expensive. Then we got another one the following year and it was horrible. All dried out. When you tried to cut it, it just crumbled. And the place was hard to get to. No parking. So not a place I could go since I am disabled.

A store here sold their wares and my daughter liked some of their stuff but then they stopped selling them. And for a time they were selling online. I wanted to get a shipment and then they stopped selling online. So they are very frustrating to me.

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Wow! that is so horrible and rediculous. I wonder if she even has a food intolerance of any kind because her restauraunt sounds to be extremely frivolous and careless, especially for one that is specifically marketed for people with allergies and so on. Im sorry but what an idiot! I cannot begin to imagine. I probably would have yelled and screamed at her about how careless her restaraunt is and how she is endangering lives right in the middle of tge restaraunt.

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Wow! that is so horrible and rediculous. I wonder if she even has a food intolerance of any kind because her restauraunt sounds to be extremely frivolous and careless, especially for one that is specifically marketed for people with allergies and so on. Im sorry but what an idiot! I cannot begin to imagine. I probably would have yelled and screamed at her about how careless her restaraunt is and how she is endangering lives right in the middle of tge restaraunt.

Her website claims that she has a problem with gluten but I don't think it mentions celiac.

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    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. 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If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
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