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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

A Thank You To Dieticians

6 posts in this topic

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mushroom    1,205

Many of us on the forum have in the past, myself included, been somewhat scathing about the help rendered to celiacs by dieticians, and their lack of knowledge of the celiac diet in general.

Now, while I know there are many out there who are pretty useless, I wanted to single out for praise a couple of hospital dieticians who who were able to cater to my needs (with my husband's help) when I was not able to do so myself (being intubated and in an induced coma.) With my multiple food intolerances I had to be one of the toughest challenges they had faced. They managed to come up with a tube feeding formula (from reading the labels) that did not make me sick, and then when I was finally able to resume eating orally, the dietician worked out meal plans for every meal with me for every day I was in the hospital (all 21 of them) from what was on offer in the kitchen that day -- with a few additions and substitutions tossed in here and there, and she worked with the kitchen staff to make sure they understood how to prepare my food.

I later made a special trip back to the hospital to thank her, and she had a student trainee with her so I am sure that that young lady also got special training in gluten free (and other free).

This was in a hospital that has special diets for practically every condition you can imagine, EXCEPT gluten free. :blink:

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shadowicewolf    166

waaaait coma what when where :blink:

I hope you are doing better :)

At any rate, it can be a pain. I haven't had to stay in a hospital since i was a toddler (had flu really really bad).

I'm glad to see this :)

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Wow, that's amazing, so glad they were there for you at the right time.

I agree we need to mention good healthcare as well as bad.

Extra glad they managed to sort you out. This disease is unbelievable.

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GF Lover    201

Wow Mushroom, I hope you have recovered well. I agree with the kudos. Some are caring and knowledgeable. Just this last Wednesday, I was in the Hospital, the gal was bringing the tray cart in the room, another gal came right behind her her saying wait, wait. she grabbed the cart and apologized saying it wasn't double checked and was not gluten free. I had a new tray in 15 minutes from her personally. I was so impressed, I wanted to cry. She obviously took her job seriously and cared enough to run after my tray.

There are "Celiac heroes" as I call them and always thank them profusely. I'm so glad you went back to thank her. I'm sure you made her feel very good and feeling good is the goal.

Thank you for sharing that with us.


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GFinDC    609

Thanks for the positive story Shroomie! It's neat when people can make things work out for us. I hope you are recovering well.

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simon_n    0

Nice story! Hope you'll feel better soon!

My girlfriend is dietician and believe me, they focus on celiac disease, and other food intolerances, more than ever before. It will only get better :)

Nice you went to her again just to say thanks :) They love it and it makes them work even harder :D

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