• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Going Back To Gi, Negative Blood Results, Is This It?
0

4 posts in this topic

Here are my test results

TISSUE TRANSGLUTAMINASE AB, IGA < 1 (Range: <4 no antibody detected)

IMMUNOGLOBULIN A 179 (Range: 81-463)

B-12 and folate were normal. Ferritin 37 (Range was 10-154)

Still leg cramps, eroding teeth and tummy rumbling, explosions, and fluffy stools (undigested food, not D).

Are more blood tests needed? I am worried that if an endoscopy is done it will show no damage.

Ideas?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


They didn't do enough...more tests are needed. The following list is what you want:

Tissue Transglutaminase IgG (TtG IgG)

Anti-Endomysial Antibodies (anti-EMA) You could ask for both IgG and IgA, though the IgG version is almost never done.

Deamidated Gliadin Peptides (DGP) Ask for BOTH versions...IgG and IgA

I'm not sure I'd go to the endoscopy with negative bloodwork, I chose not to do it thought I had one positive test (TtG IgG).

But, there are MANY here who have been blood-negative but turned out to have significant intestinal damage and are indeed celiac.

If you don't have a need for medically supported diagnosis you could see what happens on a good gluten-free trial of at least a month. If you symptoms abate, your body has told you what you need!

Best to you.

0

Share this post


Link to post
Share on other sites

They didn't do enough...more tests are needed. The following list is what you want:

Tissue Transglutaminase IgG (TtG IgG)

Anti-Endomysial Antibodies (anti-EMA) You could ask for both IgG and IgA, though the IgG version is almost never done.

Deamidated Gliadin Peptides (DGP) Ask for BOTH versions...IgG and IgA

I'm not sure I'd go to the endoscopy with negative bloodwork, I chose not to do it thought I had one positive test (TtG IgG).

But, there are MANY here who have been blood-negative but turned out to have significant intestinal damage and are indeed celiac.

If you don't have a need for medically supported diagnosis you could see what happens on a good gluten-free trial of at least a month. If you symptoms abate, your body has told you what you need!

Best to you.

Agggh. So frustrated my doc didn't run all those tests! He seems pretty confident on doing the biopsy to not only rule out celiac but other issues. I guess it is a good next step, right??!!???

0

Share this post


Link to post
Share on other sites

It is a good next step to let him see what's going on in there. I wouldn't hesitate on an endoscopy at all if I were you.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,029
    • Total Posts
      933,902
  • Member Statistics

    • Total Members
      64,594
    • Most Online
      3,093

    Newest Member
    Cynthia Walsh
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • Dr. Alessio Fasano from the University of Maryland's Celiac Research Center published a paper in Clinical and Developmental Immunology last month. It focused on a new drug developed by Dr. Fasano that has shown promising results in both animal and human trials. But is this the 'magic pill' that will cure celiac disease and gluten sensitivity? Let's take a look. View the full article
    • Thanks for this, ironictruth. I personally believe that should my dx be accurate, it's not recent; my complaints are pretty consistent and go back years. But the logistics of analysis and reporting methods are always at play and you've raised some great points that are helping me think through this a bit more. Regarding #4, I've been reading that IELs are typically found more towards the base of the villi and thin out towards the top, and that celiac can affect this distribution by making it look more uniform (because of more IELs present at the tip than usual).  What you say about blunting affecting that is interesting, but the Marsh classifications include both degree of atrophy/blunting and the IEL counts, no? So it must be possible to still gather info on IELs even when villi are blunted. I will have another endoscopy at some point to assess a change following the gluten-free diet, I think what I'll do it try and get the same blood work done that was initially positive somewhere along the line as well. If that all comes down, then I think I'll feel a little more certain that I'm in the right place diagnosis-wise.
    • Thank you guys! I am afraid to do the gluten challenge because eating gluten makes me bed ridden sick. I've read on different sites on how much you need to consume for 'X' amount of time, but is it really necessary to suffer that long? I want to make sure that I have plenty of time to consume gluten before going back to the doctor to be retested, though. It just seems like torture is all. I appreciate all of the support already! Thank you so much for the replys!
    • let's pray she won't get fooled again
    • Exactly!  It talks about moderation in meat consumption.  It never says we all need to go vegan.  
  • Upcoming Events