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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Vitamin B Injections: I Am Considering It.
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I am considering whether vitamin B injections would be right for me. First off, I read that a certain variety of vitamin B is the best. What is it?

Have injections been helpful to you?

I am planning to try sublingual B first. How do I tell it works and continually works. It seems that my vitamins the longer I take them, become intolerable to me. How can I tell the vitamin B injections work. I would like to have more than a subjective measurement as usual.

Diana

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You might try a holistic doc. The only "B" that I know for sure that allopathic docs inj is B12. Do you have low stomach acid? if you are over 40 it is more likely to not have enough, than to have too much. B12 sublingual, but also on an empty stomach, since most of it is swallowed in the saliva. I have a cast iron stomach, but even I can't do B-complex on an empty stomache. Good luck

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I had noticed halves of capsules coming through with powder still inside. I did a nutrient absorbption blood test. I have a vitamin B 12 high need I also need B 6 and B1. .. . It is a catch 22. One needs the vitamins to get the acid for digestion; one needs the acid to get the vitamins. Somehow, I have to break the cycle. . I have developed intolerances to nearly everything I eat I am trying to get a rotational diet going and am currently feeling better. My eyes are blood shot and have blackness under them.. I can't take the vitamins I had been taking because of my intolerance to rice.

Meats, nuts, legumes, vegetables, good fats, tiny bits of fruits and supplements. My variety includes about 50 various elements. I haven't had a sweet treat, besides fruit for 5 years, but for some crystalized ginger occassionally. Desperate people with a natural food bend do desperate things in order to get better like eating healthy.

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Hi Diana,

Have you tried Betaine HCL? If you have a stomach acid problem you can take Betaine HCL to help riase the acid level in your stomach.

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Hi Diana,

Have you tried Betaine HCL? If you have a stomach acid problem you can take Betaine HCL to help riase the acid level in your stomach.

Thanks, there is some in my supplements. But I did find out that I needed some pancreatic enzymes perhaps that will help.

Diana

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Hi Diana-

We found - upon recommendation from our holistic doc -- if we take enzymes before meals and Betaine HCL about a half our after the meal (he actually suggested an hour after, but we kept forgetting them) things digest a bit better. Perhaps you could take your supplements during your largest meal sandwiched between enzymes and HCL? It is a tricky thing to find the correct mix on a healing system.

Another thing that can help is to remove ALL supplements for a week and then add one at a time back in at a time - If your supplements are not helping or you are not digesting them - it's time to work on the timing a bit.

If rotation isn't working - perhaps give food combining a read - this can aid digestion.

Good Luck :)

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I tried a B-vitamin shot about a month ago. Cocktail of B12, B complex, folic acid, and some other nutrient that begins with "L" (cannot read my doc's handwriting). I did notice a slight improvement in energy (more pep). I also noticed when the shot wore off at about day 8 or day 9, right when my doctor said it would (tired earlier in the day). I am taking occasional B12 sublingual and B-complex tablet (ingest) when I remember to and these seem to help some. Good luck.

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I was taking B12 injections every month; now I have one every three months. Must check my levels - cannot take the sublingualsl.

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Thanks, something seems to be working. I quit eating buckwheat that was cross contaminated, started a rotational diet, began pancreatic enzymes, and got different vitamin B12. Dare I get a little gitty? Not yet.

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I now take B-12 injections twice a month...You want your B-12 level to be around 850...mine was under 400 Which by the way is within the ranges but I couldn't function...I do also take multi vits & mins, Vit D & so on. Just some of us only the injection helps...I was doing weekly & may have to go back to weekly injections to keep my level at 850... It's been a month of bi-monthly & my level is only 503

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    • Thanks for all the input guys. Yeah I've had the vit/min panels and all that done and it was all normal. Regardless I've been supplementing with 1,000mcg sublingual B12 daily, 5,000iu sublingual D3 every few days, and since going keto, "ketovitals" which gives me some magnesium, potassium, sodium, and calcium. Also douse everything in pink sea salt and drink a ton of water. For months now I've tended to get at LEAST 10 hours of sleep per night... Usually. I still at times have terrible insomnia, which is what happened the other night, then had to get up early. Got a total of maybe 5 hours and still feeling it now 2 days later despite sleeping closer to 14 hours a night since. So Ennis, you mentioned about lectins, which I'm now reading about, and interestingly, certain things I don't do well with (usually uncooked veggies, aside from onions) seem to correspond to this. I even do fine with peas, but, I cook those. I'll have to start experimenting. The only part that gets me is that I'm reading grain-fed meats are high in lectins. I've read before that the supposed grain/grass fed difference is BS, and in fact the one thing that has never let me down through all of this is chicken, and I just buy the regular stuff for that. Can anyone confirm or debunk?
    • At 6. Months I was still recuperating for sure. Still had the dh but less of it, still had chronic pain in my abdomen but less of it, still constipated. I was in the stage of eating gluten-free processed foods, which was too much gluten for me, and keeping my symptoms active. In all actuality my C stopped a few months ago. I've been gluten-free for almost 10 years now.
    • 6 months for me stuff was still iffy. I was having bad days good days wtf days. Seemed like ANY change and my body threw a tantrum like a little kid. Yeah sleep patterns lol. I STILL CAN not change them I HAVE to go to bed at a certain time and WAKE at a certain time (9pm-4am)or my cycle goes all out of wack (also take a mid afternoon nap) , the entire day becomes ruined. Meals are the same way. There is this like 30-60mins window if I miss this shot my body goes all kinds of wonky. Mostly it become anemic and my got shuts down and constipation sets in. Always have to have hot fluids or this happens also.....no more cold drinks lol.

      EVEN if your levels are fine, supplementing is something many of us HAVE to do. For me I do not feel "Normal" unless I take my B-vitamins etc. Heck if i miss my magnesium supplement I block up, stop stomach emptying, get cramps, and generally vomit after day 2 if I eat anything. Supplementing is the new "Normal" for me.

      Still to this day food diary shows ups and downs with certain foods, I can not eat many foods, and others HAVE to be prepared in a certain way. heck up until recently I assumed it was a histamine issue or mast cell. Then I found some high histamine foods that should did not bother me go figure, then learned of something called Lectins and my prep methods that work with foods.....corresponds to lowering lectin content.....yeah SO I might have solved that mystery but am experimenting with it still.

      Health wise I am now doing much better and after 4 years found that "Perfect" diet plan for my body (at least for now). Putting on weight,  and trying to body build, still seems to yoyo with ups and days but less now.
    • Sorry to hear you are still suffering so. Have you had a vitamin and mineral panel done?  You should at least have your B12 levels checked. If they are not over 500 then try a subligual B12. That might help a bit.  I take a Stress B supplement but was able to drop the B12 after about 5 years. I know how hard it is to stick to a very regimented schedule as far as sleep goes. I suffer greatly if I don't retire and get up at the same time every day. I am trying to adjust my schedule a bit right now and paying for it. I have been going to sleep at 8pm and getting up at 4am now for a long time which cuts out any real social life.  The last few days I have stayed up till 9:30 or so and gotten up at 5:30 with a headache and generally feeling lousy.  I started getting up very early a few years ago so that I would still get enough sleep even if I have to be somewhere earlier than normal.  Is it possible to adjust your sleep schedule so that if needed you can be somewhere early and not have it mess up your system?  I try to wake at least 3 to 4 hours before I leave the house. It is amazing how much you can get done and how relaxed your beginning day is when you don't have to worry about having to get up early to accomodate an unusually early obligation. Please don't get discouraged. It can take a very long time to heal but for many of us we were ill for years before we finally got diagnosed. I hope you see more progress soon. Be patient with yourself as there are no instant fixes for us, unfortunately.
    • Celiac disease is a chronic digestive disorder in which gluten damages the small intestine. ... next to the dishes that are gluten-free, but how many Americans actually suffer from celiac disease, wheat allergy or gluten insensitivity? View the full article
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