• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Having Guests Over
0

8 posts in this topic

We had a group of people over to watch football yesterday. They know about my wheat/gluten allergy and were told that they didn't need to bring any food or drinks and we would provide everything (Our house is 100% gluten free since I'm UBER sensitive. We've even switched our dogs/cats food and got rid of kitchen stuff that could have been contaminated when we moved into a new house). I knew there would be a 1-year old so i had gluten free crackers and puffy cracker things similar to what she eats at home only gluten free. When her mom went to give her crackers I asked if it was ok for me to get her gluten free ones instead. She looked at me like I had 8 heads!!! I just didn't want to run around scrubbing the whole house when the easy solution was just to have gluten free crackers. There was plenty of other stuff for the baby to eat as well (the mom was feeding her chips, chicken, dip, fruit, ect all that we had provided). The rest of the afternoon just felt so awkward.

Am I being too extreme in how gluten free we want the house to be? I just would like to have one place that is worry free where I can lick the walls if I want to without worrying about being sick, lol! Its to the point now that there are things that are marked "gluten free" but on shared equipment with wheat that i get the blistery rash, mouth sores, digestive issues, headaches, and everything else that goes with a glutening. I'm just feeling very socially awkward and like a freak. My boyfriend says if they don't understand (or tolerate) being gluten free in our home that we don't want or need to be friends with them anyways.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

Sounds like you NEED a safe gluten-free place at home.

I don't think that's unreasonable.

Maybe these particular folks need a bit more explaination about the extent you need to be gluten-free. With my Mum of small children head I might have been a bit thrown at you request, but mostly because of sleep deprivation and hormones. It might be that she felt daft/embarrased/ awkward at having forgotten or not understood.

Maybe you could broach it with her? 'I'm sorry it was awkward, I really enjoyed having folks over, can we find a way to make sure your baby gets what they need and I stay safe' kind of thing?

I guess you'll be able to tell from the reaction if you can invite them again.

It is brilliant you are making such an effort, please don't be put off by one awkward moment :)

0

Share this post


Link to post
Share on other sites

I babysit my cousin who is about 1 1/2. It is simple, he eats what I provide other than the fact that his mother brings a jug of milk for him. It is really simple. I do not want him running around while or after eating gluten touching MY STUFF! If his mother didn't like that she could find someone else who would babysit for the insanely cheap amount I do it for. I don't want gluten on my keyboard he sometimes touches when I get up to use the restroom. I don't want it on my furniture. I don't want to be paranoid about if I'm going to get sick or not every time I feed him lunch because I was making myself sick worrying before I instituted the no outside food policy.

I agree, if they don't like it, they don't have to come. My husband and I have a couple we invite over for dinner occasionally, and they bring their children. (I wouldn't ask them to find a babysitter for an autistic preschooler, I'm not evil even if I'm not a huge fan of kids.) They are extremely understanding, totally get why we can't trade off going to their house as well and frankly I think that is a relief to her. She doesn't need to be cooking for guests with kids to worry about and I love to cook for people.

You could always put a sign on your front door. "Allergen free house absolutely no outside food or drinks" and see how well that goes over. I've seen people with severe life threatening allergies do it.

0

Share this post


Link to post
Share on other sites

Thank you for all the reassurance! I've been sitting here today feeling like I was a jerk. I tried to explain why it was an issue and the possibility of contamination and I had about 6 people looking at me wide eyed and like I was crazy. The sign on the door is a great idea; I had not thought of doing that. Just like your keyboard Adalaide I was having visions of crumb covered remote controls!

0

Share this post


Link to post
Share on other sites
Ads by Google:


The last 2 years, we have hosted my husband's work gathering at our house. After work, drinks, cheese & crackers, & chocolate things. All gluten-free. My hub puts on the invitation something like this: Due to food allergies in our house, please do not bring any food. Something like that. It is quite common for people to bring food to parties around here. One time, someone forgot & brought a homemade cheeseball (gluten-free because the recipe has no gluten ingredients) and a box of Triscuits (POISON!). My hub stopped her. He asked her & then I about the cheese ball. I said that was fine (I didn't try it & we put it at the edge of the table so no one would slop it). He put the Poison Triscuits aside & she took them home.

Yes I realize Celiac is not a food allergy. It just makes it easier to understand.

0

Share this post


Link to post
Share on other sites

POISON!!! Oh gosh, every time I walk down the cracker aisle and every time I see a toddler at church all I can see in my head is those old Mr. Yuck stickers. I just picture those on the forehead of every toddler in encounter. I start to hyperventilate if toddlers get within like 3 feet of me and all I can think is GLUTEN BOMB! I'm quite sure the rest of the world would think I'm a complete freak. Little kids scare the hell out of me. :ph34r:

0

Share this post


Link to post
Share on other sites

I have no idea the details of how you handled it, but the basic idea? I think it's fine. I'm not that strict at my house, but I understand and support people who choose to be. As was said - your house, your rules. If the kid had (conflicting) allergies, I might have considered a little leeway, but otherwise, no. (And I say that as a parent of a toddler.)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,097
    • Total Posts
      928,886
  • Member Statistics

    • Total Members
      63,488
    • Most Online
      3,093

    Newest Member
    hayley oxley
    Joined
  • Popular Now

  • Topics

  • Posts

    • The follow up report to the colonoscopy can't diagnose, that would come from the dr/consultant. They're just flagging the high ttg and possible celiac to you and your Drs. Good practice all round  
    • I was just diagnosed a little over a month ago, so I'm not sure if I'm the best person to reply, but if I were you I would get the panel redrawn and make sure they include EMA and DGP.    I am a 24 year old female and had a similar (although not nearly as drawn out) situation about a year before my diagnosis. I had been having symptoms for several years with no answer, and went to another primary care doc who wanted to test me. I'm not sure if she ordered the wrong thing by mistake, or didn't know enough about it, but she ordered 1 test-- just the TTG IgG (instead of IgA) and it was positive. I was referred to a GI who said that test wasn't the best one, but he would do a biopsy anyway. It was negative so he said I didn't have celiac. I wish I had asked him to redo the whole panel back then, but I hadn't done enough research at that time. This past December I went to another doctor for the same problems, still trying to find an answer, and my blood work showed anemia and other vitamin deficiencies, so I asked her to run the full celiac panel and I was positive on everything. I went to a different GI to have the biopsy done it was positive (he said he would be very thorough so nothing was missed and took 11 biopsies).    Anyway, long story, but if I had pushed to have all the tests done and found the right doctor, I would have had my diagnosis a year earlier. Keep fighting until you get all the answers you need (and before you give up gluten for good). I've read some posts on this board of people who are only positive on the DGP. Its interesting that you had a high positive before and now its been low or negative, but I would think that has to mean something. 
    • Palvyre-  There are a lots of things that contribute to osteoporosis. I am wondering if you had your testosterone levels checked as well? There are many treatments for osteoporosis, depending on the cause. Fosamax (bisphosphanates) are certainly not the only ones! Hormones, Prolia, Forteo and there are several new ones ready to be approved by the FDA right now. If you haven't seen an endocrinologist, you could consider it. I figure it never hurts to ask a specialist a question.  They could say there's no extra treatment right now or they could know of something that was meant just for someone like you. My fourth grade teacher taught me there are never any dumb questions! Good luck!    
    • An antibody flare up will keep causing damage for weeks or months after a exposure even if you have no symptoms, I am sure someone else will show you the document ion on this on another post. My suggestion is invest in a testing kit or a Nima kit to test stuff if you have to. Pack some sealed nuts, seeds, dried fruits, bars, or a container of meal replacement shake for the trip. Nuts.com for nuts, Gerbs for dried fruit and seeds, and I would suggest kind, julian bakery, or many other bars, as for shakes pioneer labs makes a celiac shake, MRM makes some good shakes and there are several others.
    • Hi, I'm a young 20-something living a gluten-free life in the UK. Socialising can be very difficult as I don't like wine and don't trust the distillation process used on liqueurs such as Jack Daniels (previously my favourite option). Does anyone with a severe gluten sensitivity have any trusted mainstream brands of alcohol which are 100% gluten-free (aside from wine)? Preferably ones that can be found in a typical UK pub.  Thanks in advance!  
  • Upcoming Events