• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

Hi guys I name is Andy and in 4 days I find out if I have Celiacs disease. I began showing symptoms about 5 or 6 months ago, and recently discovered my brother has Celiacs. I am currently in the process of having my blood tested, and I get the results this Friday.

Since the blood test I have been following a strict gluten/wheat free diet and already have some symptoms fading. This to me is my body's way of saying 'Yes you do have it'. At the moment I've gotta say I'm not having the best of time coping with what I'm no longer allowed to have!

I've joined this site today in an attempt to be able to talk to people who also have this condition just so I've got some support to hand. I hope to hear from people soon, and ill also post hear on Friday regardless of results.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Come on in Andy, glad you found us.

I am about 3 months in now, and it does start to make sense what you CAN eat.

Lots of people find a fairly simple diet to start works well, meat, fish, veg, fruit.

There are a ton of gluten-free foods out there, but maybe go a bit easy to start, and use these as treats rather than swap everything like for like. Try it and see what works.

Most people get loads of questions as they go, the folks here are amazing with answers.

Let us know how it goes. Great news you are getting some relief already gluten-free.

Share this post


Link to post
Share on other sites

Sorry to hear you've been unwell, but that's great to hear that you are already showing improvements on the gluten-free diet.

Those first weeks are pretty hard, especially if you go through a withdrawl of sorts which can make you feel pretty poorly on top of deprived. My advice would be to treat yourself to gluten-free treats over the next few weeks when you want them. I know it made me feel better (emotionally) to eat yogurt covered pretzels when I knew I couldn't eat a muffin, or some gluten-free cookies instead of oreos, M&M's instead of licorice... and I actually lost weight. LOL

I would also advise you to clean out your kitchen of as much gluteny stuff as you can. It makes cooking much simpler, and it's nice to know you can eat almost anything in your own home.

When your tests are in, you might want to check your vitamin and thyroid levels too. Many celiacs are low in vits and a bit malnourished. Vitamin D, B12, K, ferritin and calcium levels aregood to check... I think there are others... TSH and free T4, free T3 and TPO Ab are good to check; most doctors just check TSH but patients with thyroid issues (which are fairly common amoungst celiacs) often have a TSH that falls in the normal range so problems can be missed.

Good luck with the tests! :)

Share this post


Link to post
Share on other sites

Hey guys thanks for your messages.

Unfortunate I don't have my results yet, the doc said ill hear back in the next couple of weeks. Only thing she did say was that my cholesterol was kinda high, but apart from that there was nothing remarkable about my bloods. So ill guess ill have to wait and see about Celaics. I'm on a full wheat/gluten free diet at the moment, even got a mini cupboard of snacks and treats I'm allowed :-)

Share this post


Link to post
Share on other sites

Is your doctor recommending and endoscopy too? Remember you need to stay on gluten until after that if you are having one.

It is really worth posting your results here when you get them, lots of the folks are experienced enough to pick up bits doctors miss (though fingers crossed you have one of those good docs we occasionally hear about).

Also, there will be plenty of advice if you test negative but still want to try gluten-free. There's a lot of us about...

Mw

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,426
    • Total Posts
      941,210
  • Member Statistics

    • Total Members
      66,354
    • Most Online
      3,093

    Newest Member
    Madeline Smith
    Joined
  • Popular Now

  • Topics

  • Posts

    • It's good to know it was of use, thanks for letting me know   All the best, Matt
    • Hi Matt,   Thank you very much for a thorough response. Your link seems to cover pretty much all the questions one might have in my current situation. I appreciate it.   Have a wonderful day, Lex
    • I am worried about the cost but I think having that test done would help me rule things out. Either way I need to see a G.I my issues are getting out of control.
    • Thank you for all the information. I am sorry for the late reply to everyone. I have been feeling worse and worse lately. Got the blood test results, it came back negative. Seeing a G.I specialist in three months (too long for me :/) I've been keeping a food diary and realize I feel worse after eating gluten. After the G.I I want to start the diet. I'm going to call him and see if I can get seen sooner. The bloodwork said theres no signs of inflammation and they don't suspect it to be autoimmune but they want me to do the diet anyway. I wish I had answers because my vision is getting worse, cramping, nerve pain and trips to the bathroom are amplifying. Meh. Also I have a vitamin d deficiency so I am taking d3 2000iu with vitamin b12. Thanks for the help! 
    • I'm sorry you are dealing with this. My son deals with food intolerances that are not identified by any biomarker as well. I hear the same response from doctors in that, "if the food makes him feel bad then it's probably best to avoid the food." (Thanks for your insight doc!) His symptoms are not dermatological though. His symptoms are mostly neurological and psychiatric with some bloating and mild digestive issues. He loses his mind quite literally if he digests gluten. Also develops what is known as a stereotypy, involuntary movement of hands. He is otherwise a normal child. We are unable to obtain any kind of diagnosis though.  I know you're avoiding a lot of foods right now, but don't get discouraged. It's just a way of life and you're doing the right thing. Right now we are avoiding foods such as soy, all types of grain, chocolate, dairy and nightshades. I have limited his iodine intake as well. I have personally found that gluten, iodine and soy cause intensely itchy blisters and joint pain for me. Perhaps have you tried cutting back on iodine intake?
  • Upcoming Events