• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Discrimination Against Celiacs?
0

32 posts in this topic

The link I will post below sums up the whole situation that's going on right now with Actress/Celiac Jennifer Esposito. If you haven't heard about it already in the news or online, I would urge you to read this. I believe it is discriminatory against celiacs and people with disabilitites in general and it should not be tolerated...

The link is a petition and I would strongly urge anyone to read it and sign it if they want to help get the right thing done. It doesn't take long and it is an important issue and has to do with all of us. Here it is:

http://www.change.org/petitions/cbs-television-get-jennifer-esposito-back-to-work-or-release-her-from-her-contract

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Thanks for posting this! I was absolutely appalled by the article - I signed and re-posted on Facebook to get more people to sign.

0

Share this post


Link to post
Share on other sites

I think there might be a bit more to that then what is being said about it.

0

Share this post


Link to post
Share on other sites

Thanks for posting this! I was absolutely appalled by the article - I signed and re-posted on Facebook to get more people to sign.

You're welcome. I was glad to post it because it angered me as well.

0

Share this post


Link to post
Share on other sites

If she's following a gluten-free diet, why would she be prone to "passing out"? I agree, there has got to be more to this.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I, personally would reserve an opinion until I know more facts. Many people here, who post consistantly, have full time jobs. Other than an unusual inconvienience, I have heard no complaints.

It would be pretty bad, if someone exploited our disorder for financial reasons. BUT, I will withhold my thoughts until more information appears.

0

Share this post


Link to post
Share on other sites

If she's following a gluten-free diet, why would she be prone to "passing out"?

Perhaps I am misinterpreting this statement - I have been as gluten-free as possible in the world we live in for over three and half years and still have serious health problems stemming from decades of undiagnosed celiac disease. From what I've read, Ms. Esposito was yet another of us that doctors misdiagnosed for years and she has made every attempt to heal by living gluten-free.

I am not saying there are not two sides to every story - just that if you have Celiac Disease - how can you assume another Celiac's diet would be responsible for a situation such as this - have you never been accidentally glutened? If so, count yourself fortunate.

0

Share this post


Link to post
Share on other sites

There are many articles out there, with more appearing all the time. What they all seem to have in common is that they are based on interviews or quotes from Jennifer Esposito. I have not seen anything that offers the story from the producer's perspective.

I know someone here in Canada who was diagnosed years ago, and has been gluten-free for at least seven years. She is still unable to work and is on full disability due to refractory celiac disease. Most of us fully recover on a strict gluten-free diet, but not everyone.

We don't know all the facts, so let's not pass judgement.

1

Share this post


Link to post
Share on other sites

Perhaps I am misinterpreting this statement - I have been as gluten-free as possible in the world we live in for over three and half years and still have serious health problems stemming from decades of undiagnosed celiac disease. From what I've read, Ms. Esposito was yet another of us that doctors misdiagnosed for years and she has made every attempt to heal by living gluten-free.

I am not saying there are not two sides to every story - just that if you have Celiac Disease - how can you assume another Celiac's diet would be responsible for a situation such as this - have you never been accidentally glutened? If so, count yourself fortunate.

I agree with this completely.

I’ve thought about it and Jennifer Esposito has had a very successful career so far. One must question why she would throw that away and risk her job on the show if this wasn’t a serious case of her being treated unfairly because of her celiac. She has even stated that CBS implied that she was not truly ill, and that it was a scheme to get a raise. To me, that alone is unacceptable and it shows the lack of awareness out there about this serious disease. Celiac disease is probably the only disease that you can tell somebody you have, and not know what type of response you will get from them. I bet that if this incident had to do with diabetes instead, there would NEVER have been any question about her actually having diabetes. It shows the level of ignorance out there when it comes to celiac, and that has to change. I would expect people, especially celiacs, to have some compassion for her in this situation.

0

Share this post


Link to post
Share on other sites

There was an excellent piece on Fox Files Sunday evening. It covered three different people who have celiac. Jennifer happens to be one who was mistreated and misdiagnosed by the medical community for pretty much her entire life. As we all know, healing is a process and even the least bit of CC can lead to serious complications. The piece focused on the struggles she's had through her life rather than the current issue which it only briefly touched on. Unfortunately I can't find the entire piece as a video, it was a half hour long, but if I do I'll post it. (BTW, it also had Dr. Fasano for those who are fans.)

Found the show's full episodes web page. The show will be available in two weeks. So December 2.

http://www.foxnews.com/on-air/fox-files/full-episodes#p/1888684985001/v/1886747599001

Edited by Adalaide
0

Share this post


Link to post
Share on other sites

There are many articles out there, with more appearing all the time. What they all seem to have in common is that they are based on interviews or quotes from Jennifer Esposito. I have not seen anything that offers the story from the producer's perspective.

I know someone here in Canada who was diagnosed years ago, and has been gluten-free for at least seven years. She is still unable to work and is on full disability due to refractory celiac disease. Most of us fully recover on a strict gluten-free diet, but not everyone.

We don't know all the facts, so let's not pass judgement.

That's true but I also would not be so hasty to file a complaint about this either. She may or may not be being discriminated against but even if she is, we don't know that celiac is the cause.

0

Share this post


Link to post
Share on other sites

There was an excellent piece on Fox Files Sunday evening. It covered three different people who have celiac. Jennifer happens to be one who was mistreated and misdiagnosed by the medical community for pretty much her entire life. As we all know, healing is a process and even the least bit of CC can lead to serious complications. The piece focused on the struggles she's had through her life rather than the current issue which it only briefly touched on. Unfortunately I can't find the entire piece as a video, it was a half hour long, but if I do I'll post it. (BTW, it also had Dr. Fasano for those who are fans.)

Found the show's full episodes web page. The show will be available in two weeks. So December 2.

http://www.foxnews.c...v/1886747599001

I found out the segment is up on vimeo --->

1

Share this post


Link to post
Share on other sites

Thank you for that video....even if it was from the Fox Network :rolleyes:. Fasano does good work! He is an epic leader in our small world.

1

Share this post


Link to post
Share on other sites

That is the entire part of the show that matters. The first half of the show was something else entirely and is completely unrelated. It was good to see a piece that covered Jennifer Esposito that focused on her struggles and the disease and not on all the nonsense with CBS.

And yes, regardless of your feelings about Fox, it is a well done piece that doesn't fall into the nonsense that makes me want to bash my face on my desk like most of the pieces I see.

0

Share this post


Link to post
Share on other sites

I found out the segment is up on vimeo --->

Thank you for sharing this - I copied it to my FB with the following:

Finally...an accurate portrayal of Celiac Disease in the media rather than the more common commentary that repeatedly calls a very serious autoimmune disease "trendy" or a "fad weight loss diet" or that "gluten free is a dietary choice" -- I have never said these words before - Thank you Fox News.

0

Share this post


Link to post
Share on other sites

Perhaps I am misinterpreting this statement - I have been as gluten-free as possible in the world we live in for over three and half years and still have serious health problems stemming from decades of undiagnosed celiac disease. From what I've read, Ms. Esposito was yet another of us that doctors misdiagnosed for years and she has made every attempt to heal by living gluten-free.

I know someone here in Canada who was diagnosed years ago, and has been gluten-free for at least seven years. She is still unable to work and is on full disability due to refractory celiac disease. Most of us fully recover on a strict gluten-free diet, but not everyone.

We don't know all the facts, so let's not pass judgement.

Exactly!

I do not understand how someone can "assume" anything about her diet or if she is compliant or if she is trying to get more money (she isn't. She was interviewed about this subject and she said that was not the issue. She wanted to keep her job, but if she could not meet the demands of the schedule, she wanted them to let her out of her contract. .)

I do not understand how anyone with celiac can criticize anyone else with celiac, period.

If you know anything about this disease, you know it comes with consequences from going undiagnosed as long as she did.

And finally, some celiacs have OTHER issues develop, like microscopic colitis or pernicious anemia--- and this can cause weakness and feeling faint. I know 2 celiacs with these additional AI diseases and they are 100% dietary compliant.

Not everyone with complications from celiac is able to work full time. Those who can should rejoice at their good fortune --and refrain from passing judgement on those who cannot.

1

Share this post


Link to post
Share on other sites

Thank you for sharing this - I copied it to my FB with the following:

Finally...an accurate portrayal of Celiac Disease in the media rather than the more common commentary that repeatedly calls a very serious autoimmune disease "trendy" or a "fad weight loss diet" or that "gluten free is a dietary choice" -- I have never said these words before - Thank you Fox News.

Beautifully said :)

0

Share this post


Link to post
Share on other sites

Exactly!

I do not understand how someone can "assume" anything about her diet or if she is compliant or if she is trying to get more money (she isn't. She was interviewed about this subject and she said that was not the issue. She wanted to keep her job, but if she could not meet the demands of the schedule, she wanted them to let her out of her contract. .)

I do not understand how anyone with celiac can criticize anyone else with celiac, period.

If you know anything about this disease, you know it comes with consequences from going undiagnosed as long as she did.

And finally, some celiacs have OTHER issues develop, like microscopic colitis or pernicious anemia--- and this can cause weakness and feeling faint. I know 2 celiacs with these additional AI diseases and they are 100% dietary compliant.

Not everyone with complications from celiac is able to work full time. Those who can should rejoice at their good fortune --and refrain from passing judgement on those who cannot.

I could not have said it better myself. I found it a little disheartening to see some of the previous posts, especially ones that are from Advanced Community Members. People who, by the very fact that they are on this site, should have a clearer understanding that gluten free doesn't automatically mean the problem is solved for all celiacs. I too can not understand how anyone with celiac can criticize another celiac...

0

Share this post


Link to post
Share on other sites

Me too.

When I read some of the stories here I am so grateful for my own improving health and that I caught it when I did.

I am a full time Mum now, but I am terrified at the prospect of working again. I could probably do 20 hours most weeks, but not on regular hours. The thought that if I was in the public eye my fellow celiacs would attack me is dreadful.

1

Share this post


Link to post
Share on other sites

I could not have said it better myself. I found it a little disheartening to see some of the previous posts, especially ones that are from Advanced Community Members. People who, by the very fact that they are on this site, should have a clearer understanding that gluten free doesn't automatically mean the problem is solved for all celiacs. I too can not understand how anyone with celiac can criticize another celiac...

Going gluten free is not a magic bullet that instantaneously heals everyone. When leading celiac specialists say" It could take 2 years or longer..." I think they are being realistic. Those of us who take longer and who have complications wish we could "hurry it up already". :)

but patience is essential.

0

Share this post


Link to post
Share on other sites

Me too.

When I read some of the stories here I am so grateful for my own improving health and that I caught it when I did.

I am a full time Mum now, but I am terrified at the prospect of working again. I could probably do 20 hours most weeks, but not on regular hours. The thought that if I was in the public eye my fellow celiacs would attack me is dreadful.

It is dreadful isn't it? That's why I started this thread and put the link to the petition right in my first post. In the end it is up to the person to decide whether to sign it, and in my opinion it couldn't hurt. I think it is important to help a fellow celiac who has been mistreated because of her condition. We can have a voice in this.

0

Share this post


Link to post
Share on other sites

We don't know all the facts, so let's not pass judgement.

I agree.

She is a highly paid actor and contracts are detailed. We don't know the facts and may never know. I don't know Jennifer's current state of health, or at the point of her dismissal .Nor do I know the reason for her dismissal by the networks. Do YOU know?

As I stated earlier (as an advanced member)....I'm witholding judgement.

0

Share this post


Link to post
Share on other sites

I agree.

She is a highly paid actor and contracts are detailed. We don't know the facts and may never know. I don't know Jennifer's current state of health, or at the point of her dismissal .Nor do I know the reason for her dismissal by the networks. Do YOU know?

As I stated earlier (as an advanced member)....I'm witholding judgement.

The problem is she was not dismissed by CBS. She has not been released from her contract to the show. She has stated both in print and in spoken word - she understands if they need to replace her, but release her from the contract so she can look for alternative work.

1

Share this post


Link to post
Share on other sites

Whatever the details, the problem I see is people judging what another celiac can or can't do with their own particular health issues.

The details with CBS and Jennifer are between them, unless they choose to share. How would you feel if the world was wading about in your business while you were in a bad phase of this 'difficult' (understatement) disease?

0

Share this post


Link to post
Share on other sites

I really don't know the answer to your question, Mindwarp, because it has never come up for me, but I suspect I would like to have someone back me up and say, hey, she needs some special dispensation so let her out of her contract since you are saying she cannot fulfill it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,397
    • Total Posts
      930,327
  • Member Statistics

    • Total Members
      63,814
    • Most Online
      3,093

    Newest Member
    MH0730
    Joined
  • Popular Now

  • Topics

  • Posts

    • I've given up on all those processed gluten free foods out there and have stuck to eating a whole foods diet. I have noticed such a huge, massive, difference in my energy, mood, sleep, and well being. Needless to say I've been doing a lot of cooking but have been leaving sugar out because I don't know the safe brands. I tried using Stevia in the raw but keep getting horrible headaches when I use it. I saw that the first ingredient is Dextrose so it's not "raw". Anyway, what are the safe brands out there as far as white and brown sugars go? I made saurkraut and pork chops last night and would've loved potato salad. Also while I'm on here, what about Mayo? What's safe? I saw Sir Kennsington was gluten-free Certified.
    • My Celiac disease presented as yours did: anemia, unexplained weight loss, aches and pains (due to vitamin and mineral deficiencies from malabsorption), the abdominal burning (whether I ate or not), decreased appetite, itching, the works. Plus I had a mood like a gorgon, which wasn't helped by my friends telling me "how slender!" I looked. My bones were basically all that was holding me up. I've had the blood panel too, which has proven very informative. I had a follow-up celiac panel after I'd been on the diet for over a year and it showed the diet was working. I also went through an anger phase because my (now former) doc (who is also my dad's doc and knows he has celiac AND knows we're related...) just wrote me a prescription for antidepressants, whereas I might have been spared years of feeling crappy (my late 30s!) if he'd just ordered a CBC and found the anemia. I'm a woman and I feel like sometimes whatever you say to a doc (even female docs!), all they hear is "psych symptoms". It really made me mad. But I've always pooped like a champ so I didn't exactly have typical symptoms either. Then I thought about how long it took my poor dad to get diagnosed (decades), which was before there was all this awareness, and I feel grateful for the fact that it took comparatively far less time for me to get my diagnosis and start feeling better. Don't worry about not finding stuff you like to eat: since gluten-free has become "the new thing" there are so many choices and the price has come down considerably since my dad got diagnosed (over 12 years ago). If your doc confirms celiac, then you'll be back on the (albeit gluten-free!) mac and cheese in no time, this time actually absorbing some of the mac and cheesy goodness! Feel better and take care.
    • If you are worried about your glycemic levels, then you should test with a glucose meter.  I have diabetes (insulin resistance/TD2) and rice and potatoes spike me like crazy!  I might as well consume ice cream!  But if you do not have diabetes, no worries!  
    • Thanks to both of you for your replies. I wasn't so much concerned about the arsenic (although that is an additional consideration) as I was about the glycemic level. I don't bake enough to make blending my own flour blends worthwhile, so I will definitely check out the links you provided, Ennis_TX. So far I'm tolerating oats and my gastro doc says I can keep eating them as long as they're certified GT. I just looked at some crackers I have for hummus and noticed their main ingredient is rice. I should probably just eat the hummus with veggies!
    • I agree with Ennis.  It sounds like she is getting access to gluten way too often to expect healing.   I had some pretty severe patches of intestinal damage when I was diagnosed.  Anemia was my symptom and I had no gut issues then.  So, just because she injests gluten and does not have some major symptoms right away, does not mean she is not building up antibodies.  Have those antibodies been re-tested to see if they are in the normal ranges now?  Missing patches of damage in the small intestine is possible.  Heck, the small intestine is the size of a tennis court (goggle it).  So easy to miss.  Also, your GI should have taken more than four samples?  How many were taken? (Forgive me, if I have forgotten.) Cross contamination in your house is real, especially if you have kids in the house.  Member Jebby, a preemie doctor who has celiac disease, was not getting well.  Turns out her four small and adorable children were glutening her.  She made her house gluten free.  Just something to consider.   You mentioned she had access to gluten at a party.  So, does that mean she caves in and eats it?  She needs to become a stakeholder in this diet.  
  • Upcoming Events