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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Gene Test - One Step Closer
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3 posts in this topic

I asked my PCP if he could test me for the gene last month. He did it without any questions. If I had known it was going to be that easy I would have asked him months ago. This morning I found out I tested positive for one of the celiac genes. He told me (through his secretary) if I'm not having any GI symptoms there is no need to see a GI doctor. He apparentely has not a clue my GI symptoms are minimal but skin and balance is where it all shows up on me.

Needless to say, I was overjoyed to hear the news (am I crazy to say that?). While it isn't a defiinite diagnosis I am one step closer. The problem with me is that I am the kind that DOES need a DEFINITE diagnosis for various reasons and that is going to be pretty hard to get without ingesting lots of gluten which I am not willing to do.

I guess my chances that I actually do have celiac are 1 in 30 which still makes it a long shot but I plan on making an appt with the celiac specialist and I'll see what he has to say about all of this. At least now I feel I have something concrete to give to him.

Jane

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30% of the population (U.S?) has at least one gene. So while its entirely possible that you do not have it, it is also very possible you may develop it.

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Statistically wise it's a long shot that I have it but considering the rash I've had for almost a year (it's 95% gone after a flare up when I experimented with gluten in Sept/Oct) as well as other odd assorted problems throughout the years I think it is very possible. If it wasn't for the fear that a lot of gluten may posssibly give me vertigo I would do the gluten challenge in a heartbeat.

I have an appt in Jan with the celiac specialist. My plan is to eat a bit of gluten (a cookie or two a week) for about a month before the appt and maybe it will give me enough of a rash for a biopsy or at least for him to say it sure likes like dh to me. We'll see how it goes . . . .

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