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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Sunny600

Two Questions

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Two questions:

1. Is it possible that (inadvertantly) eating (minute quanities) of gluten can cause migraine-like headaches and ZERO energy? I'm thinking I need to go see a doctor, because after years of no headaches at all and an abundance of energy, since going gluten-free, I've been getting terrible headaches, and getting laid out for days with no energy at all. But it ALWAYS happens after eating something that I didn't prepare myself. I'm being careful. Or rather, I'm trying to be careful, but I think there must be gluten in things that I think wouldn't have gluten, like sausages, or.....I don't know. I can't even think right now.

2. If, after going gluten free (it's been nine months for me), what does it MEAN that I seem to be quite sensitive to even minute amounts of gluten? If years of eating gluten only caused tolerable (though persistent) problems, now that I've eliminated it, after a period of several months of feelings gloriously well, now I seem to have reactions to all sorts of things. Isn't that worse for my body than what was going on before? I mean, if my system was so overwhelmed with gluten that it couldn't react properly, now that it's reacting, isn't that doing even MORE damage?

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I've been gluten-free for ten years now & I find I'm so much more sensitive to gluten now than the beginning....You are still healing being gluten-free for only 9 months. It can take several years for some people to heal.... You also need to become more aware of what you are eating. Become a label reader, hidden gluten is in loads of things....

example: some restaurants put pancake flour in scrambled eggs to make them more fluffy, who would ever guess that...

Plus have you had a good medical work-up done lately? B 12, Vit D, glucose, thyroid panel, metabolic panel & so on....

Another thought is are you reacting to other foods that maybe don't have gluten ie: milk/dairy, soy, corn.....

Hope you feel better soon....

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I didn't realize my migraines were caused by gluten until I went gluten-free. I used to get them for about 2 weeks of the month and now I'm down to just a few days. The two times that I did get glutened (in the first month or so) I ended up with a migraine that lasted a few days and I was tired, so I know for me that there is a definite link.

And yeah, many sausages have gluten filler in them. Not all, but many. :( I hope you are feeling better soon.

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Is it possible that (inadvertantly) eating (minute quanities) of gluten can cause migraine-like headaches and ZERO energy?

I live in a household of 5 and until I separated all gluten stuff - bought an island on wheels for their bread etc. and designated the rest of the kitchen gluten free - and also bought all my own bakeware, strainers, measuring cups, etc. I was sorta ill all the time. I had headaches & joint aches, not necessarily the big stomach issues I get if I ate gluten. One day I made gluten cookies and got flour in the air and my sinuses went poof! and I had a mega headache for half an hour - felt woozy. It was an eye opener ! And weird.... I think little amount accumulate and make you feel ill, then make you feel like a big gluten attack.

Yeah, & brain fog !

If, after going gluten free (it's been nine months for me), what does it MEAN that I seem to be quite sensitive to even minute amounts of gluten?

I have been gluten-free for 10 years & I am very sensitive. I no longer handle gluten at all- my kids do the baking and clean up (and not on my counters!). A tiny amount makes me miserable and out of it, a small amount makes me sick.

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I also get a migraine and never connected the two until about 2 months ago and everytime I review what I've had to eat it is from the potential of CC.

And yes, I will react to a crumb now. I even reacted very nastily to driving thru a barley field dust cloud during harvesting, I could taste it in my mouth.

In a way, I'm kinda thankful for the migraine because it let's me know that I have to stay 100% diligent with my food choices, like shared lines in a facility.

Living and learning.

Colleen

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