• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Mayasmum

My 6 Year Old Just Diagnosed - Question About Reflexes

Rate this topic

Recommended Posts

Phew! A place to get some answers!

My 6 year old had her celiac panel come back positive. We had been on a gluten-free/DF diet for 2-3 months when her test still came back positive.

We only found out because we were testing her D levels and allergy testing and our dr decided to do celiacs as well. T'was a bit of a shock.

She is seeing a chiro and when we had her consultation, he checked her reflexes and she did not have any at all in her knees. Two weeks later, still nothing.

Something deep in my gut is telling me this is important, and I am worried.

We are going to see a dietician tomorrow, but apart from that - not sure what our plan of action should be.

I would prefer not to do a biopsy if at all possible (I hate anesthetic and kids), our family practice doc agreed because her results were so positive.

My son (3) and I are eating some gluten again, he and I show quite a few symptoms, we are having the test at the end of the month, we are only eating 1 slice of bread a day, am hoping that is enough as the joint pain I have (and have had since bring 18 - no dx ever made, arthritis ruled out) is not fun, as is the brain fog.

So...reflexes? Any input please, and what else should I be asking for.

With thanks

Sarah

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Some people do not react to the knee reflex thing. I certainly don't (which doctors have said it was fine). I also have motorskill issues (i cannot, for example, skip, do anything that requires a lot of balence (such as a climbing up rocks and down them, or somewhat steep surfaces), i have to see going down stairs or else i loose my balance somewhat (weird huh?), etc). I also had a lot of issues when i was younger with walking and whatnot.

Also,, i have bad knees (they aren't aligned properly with my body, which i found out years ago). They ache when i walk to much or if i'm on concrete to long or if a storm is coming in. No arthritis, no nothing. I've had multiple xrays and have went through physical theraphy.

I thought i'd add that i don't remember them moving. My mom says they may have moved a smidge, but i don't ever remember it and i believe the doctor noted it as it was done.

Share this post


Link to post
Share on other sites

Thanks - I know she had reflexes before, which is why I am concerned. She had complained about her legs before, but her old dr put it down to growing pains.... :(

Share this post


Link to post
Share on other sites

Slow reflexes can also be a sign of hypothyroidism (Hashimoto's) which is more common amoungst celiacs than the regular population. To test thyroid function, request a TSH (should be near a 1), free T4 and free T3, and TPO ab (to see if there are antibodies attacking the thyroid).

Best of luck. I hope you find some answers.

Share this post


Link to post
Share on other sites

I think this can resolve on a gluten free diet and better absorbtion of vitamins, minerals, and fats.

So work with her doctor and definately explain what is going on, so further tests can be run.

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you - we met with a dietician today and are definitely going to run more blood tests to check her out a bit more. We had only run the celiacs panel and a CBC before.

Share this post


Link to post
Share on other sites

Hang in there! Previous posters alerted you to some really good additional information--especially the thyroid stuff. From what we are learning, it takes 6-12+ months for kiddos' bellies to heal and 12-36 months for adults to heal.

In our family, we had one 6 yr old who had a REALLY difficult first three months off of gluten. I don't really understand why, it just was very hard on her--lots and lots of belly aches--and some leg pain and then it all evaporated. Our other twin went from intense muscle/joint/bone aches with itching 2-3 x a week to about 1x a month. We happened to be at our (rockstar) cardiologist who asked how the girls are doing...I told him about the remaining aches and itching. He said, "Reduce her lectin intake and see how she does." (I had no idea what lectins even were). We've cut out tomato and bell peppers (of which we ate a lot of) and she has been 100% since.

The trickiest part of Celiac and all of this is that every individual is different. This forum is so excellent because so many people openly share their experiences. Take what works for you and your family! Wishing you as smooth a path as possible to full returned health for you and your kiddos!

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,426
    • Total Posts
      941,210
  • Member Statistics

    • Total Members
      66,352
    • Most Online
      3,093

    Newest Member
    AngelBaby420
    Joined
  • Popular Now

  • Topics

  • Posts

    • It's good to know it was of use, thanks for letting me know   All the best, Matt
    • Hi Matt,   Thank you very much for a thorough response. Your link seems to cover pretty much all the questions one might have in my current situation. I appreciate it.   Have a wonderful day, Lex
    • I am worried about the cost but I think having that test done would help me rule things out. Either way I need to see a G.I my issues are getting out of control.
    • Thank you for all the information. I am sorry for the late reply to everyone. I have been feeling worse and worse lately. Got the blood test results, it came back negative. Seeing a G.I specialist in three months (too long for me :/) I've been keeping a food diary and realize I feel worse after eating gluten. After the G.I I want to start the diet. I'm going to call him and see if I can get seen sooner. The bloodwork said theres no signs of inflammation and they don't suspect it to be autoimmune but they want me to do the diet anyway. I wish I had answers because my vision is getting worse, cramping, nerve pain and trips to the bathroom are amplifying. Meh. Also I have a vitamin d deficiency so I am taking d3 2000iu with vitamin b12. Thanks for the help! 
    • I'm sorry you are dealing with this. My son deals with food intolerances that are not identified by any biomarker as well. I hear the same response from doctors in that, "if the food makes him feel bad then it's probably best to avoid the food." (Thanks for your insight doc!) His symptoms are not dermatological though. His symptoms are mostly neurological and psychiatric with some bloating and mild digestive issues. He loses his mind quite literally if he digests gluten. Also develops what is known as a stereotypy, involuntary movement of hands. He is otherwise a normal child. We are unable to obtain any kind of diagnosis though.  I know you're avoiding a lot of foods right now, but don't get discouraged. It's just a way of life and you're doing the right thing. Right now we are avoiding foods such as soy, all types of grain, chocolate, dairy and nightshades. I have limited his iodine intake as well. I have personally found that gluten, iodine and soy cause intensely itchy blisters and joint pain for me. Perhaps have you tried cutting back on iodine intake?
  • Upcoming Events