• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

I am going to the doctor in a couple of days and wanted to know if when I have my blood work done is there one lab in the country better than another. I had heard that some of them do not do the celiac panel properly and others do a vast quantity of this test, plus the gene test.

Does anyone know where I should have my blood sent. Will a local lab draw the blood and then send it to another lab?

Thanks for the help

Robin

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I think you must have moved your request to another thread labeled Quest vs. Prometheus, but I'll put a copy of my reply here as well. We got caught without enough info at first, and I took my son who has type 1 diabetes in for a test without calling ahead. I asked them to use a lab recommended by a major celiac disease center, but they talked me into Quest. The results came back very quickly as negative, and I questioned them. My son reacted strongly to gluten as a baby and now is diabetic and ADHD. My husband is positive for celiac disease. I called the celiac disease center and they were definite that I should NOT use Quest. So I'm having his tests rerun right now and am waiting for the results. Although I'm getting the idea that the only results you can take seriously are the positive ones. A negative may or may not mean that you can eat gluten. I've spoken with so many people who had negative results, or even negative biopsies, and found they did so much better off gluten anyway. Research hasn't got the whole picture clear in that area.

**********

I called a well known Celiac Disease Program and specifically asked whether I should allow my son's dr to use Quest for his bloodwork. I received a firm negative, and Prometheus was highly recommended. This Center also lists Mayo Clinic and Specialty Labs as appropriate.

I also have spoken with a support group leader whose sister got a false negative from Quest and retested positive later.

I called Prometheus directly and spoke with customer service. They will send the transport kits to either the dr or patient, and will process the tests if specimens are returned with a dr's script and direct payment or (accepted) insurance info. They give a discount for cash forms of payment (20-25% I think). I remember that the Panel including Total IGA if needed was around $217 with cash discount.

It is important to call the dr ahead of time. He may not have an account with Prometheus, and some drs don't want to bother in that case because direct payment from the patient does not give their billing system a way to add their cut to the billed office visit amount. In that case, find a dr who has an account with Prometheus or who will work with you regarding payment options.

If you don't call ahead, your specimens will go to a lab with which the dr has an account. Once the blood is drawn, it's too late to specify.

Many regular labs may be licensed to do the test, but the results are very dependent on skilled operator procedures. Many techs haven't run enough tests yet to be that skilled. They may or may not run or read your test correctly. I got this info from a registered dietitian who works with a celiac disease program.

Prometheus Labs # is 888-423-5227.

Hope this helps,

Olive

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,926
    • Total Posts
      943,558
  • Member Statistics

    • Total Members
      67,178
    • Most Online
      3,093

    Newest Member
    ldh84
    Joined
  • Popular Now

  • Topics

  • Posts

    • Diagnosed at 57
    • Lex_, Again I am afraid Ennis_Tx is right here. Ennis_tx eats right and is eating all the right things and still has to take/supplement with Magnesium. The magnesium is a clue?  We need magnesium to make energy. I like to say as chlorophyll is to photosynthesis for the plant so is Magnesium for/to the Animal(s). Meaning we will run down without it. It is said "we waste away without enough Magnesium" Dr. Carolyn Dean wrote the book "The Magnesium Miracle" because people genuinely feel terrific when they take it. they are able to make energy again and function properly but the question remains  why? are we low in it the first place if we need it so much. Iron plays the same role in the blood/respiration but people still get IDA. It turns out low stomach acid limits our ability to absorb Magnesium and Iron. see this link about the role of gastric acid in Iron absorption. https://www.ncbi.nlm.nih.gov/pubmed/7286584/ How do we know this.  . . well it is has been studied and proven. look no further than the FDA box warning on PPI's entitled "FDA Drug Safety Communication: Low magnesium levels can be associated with long-term use of Proton Pump Inhibitor drugs (PPIs)" https://www.fda.gov/drugs/drugsafety/ucm245011.htm now this takes about 6 months of use to become low in magnesium but being low in stomach acid limits our ability to absorb Magnesium and why many people have to take it at 2x to 3x the RDA to get the desired effect. In fact the FDA says only stopping PPI's will reverses this condition.  Obviously  taking higher amount of Magnesium can help alleviate some of these symptom's but only raising the stomach acid will completely alleviate the condition. quoting "Although both patients' hypomagnesemia partially resolved with intravenous replacement, in both cases discontinuation of PPI treatment was necessary to stop ongoing symptoms and to stop magnesium loss." Hypomagnesimia is critically low Magnesiums akin to IDA. here is a thread about IDA and why this is so . . .  low stomach acid leads to low Iron levels. I think it will help explain why Celiac's often have to take Magnesium to help with their chronic fatigue symptom's. I hope this is helpful but when I helped my stomach acid levels my Magnesium begin to be better absorbed from the food I was eating. Nuts are good Magnesium sources especially Cashews and Almonds. So is chocolate hence Ennix_tx cocoa nibs etc. . . ***** this is not medical advice but I know taking Magnesium Citrate helped my energy levels. posterboy by the grace of God, 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things”        
    • Lots of people are diagnosed after 50 according to this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3227015/  
    • Smaller meals throughout the day should help. I had the same problem but if it keeps up you may need to see the doctor again and get surgery. Anti-acids may help out too. It's been about 10 years since I had mine. Good luck.
    • Nobody posted anything on my profile that I'm aware of but it wouldn't let me get into it. My email got hacked though right around the same time so I just figured it was connected. I'm not exactly Y2K ready. This is the first computer I ever bought and I still have a flip phone. Maybe it's not connected. Don't really know. 
  • Upcoming Events