This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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Kareng, you bring up an interesting question. She sees a pediatric GI who diagnosed her with NCGI. She tested negative on blood work and biopsy was negative 3 years ago. She continued struggling with stomaches, vomiting, headaches, emotional behavior, fatigue or hyperactivity, constipation, etc. he thought for sure she was celiac 3 years ago but tested negative. When we returned for a follow up as the symptoms were increasing, he diagnosed the NCGI. I do have to say besides the snow cone incident, she has felt better the last 3 weeks than in a long time. Should I be looking for a second opinion? I just want her to feel better.
King Arthur makes my favorite gluten-free chocolate cake
do not try the store brand Walmart version of gluten-free Oreo style cookies... they are awful.
Have you read the noob section yet? Has some great info on how to buy things and organizing the kitchen, and what to get rid of.
There likely was no gluten in the snocone. But you might want to figure outj why she is NCGI. Maybe it's FODMAPS? Wheat is a high FODMAP food, but I think the snow cone is, too.
You don't store gluten, so you aren't cleansing yourself of it. Healing from Celiac damage does take time. Depending on why you think she is NCGI, she may not need much time to heal. It may just be a matter of getting her GI system regulated and working with the new normal diet
Thank you all so much for the help! And yes, we are very lucky that she does not have to worry as much about cross contamination as if she had celiac. Although I was shocked as to how sick she became the other day after eating a snow cone of all things! The gal did not think the syrup had gluten but within a half hour of eating it, my daughter had a severe stomachache with a headache followed by fatigue and crying off/on the rest of the day. We are also only a few weeks into this and understand the first few weeks to months of being gluten free can be hard as the body essentially is cleansed of gluten and heals. Anyway, Thank you all again for the advice and support! The information is wonderful!
I agree with what Peter said. Also, because he doesn't actually have Celiac, you may not need to be as extremely careful as a Celiac. That will make life much easier, especially when eating out or at parties, etc.