• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Will My Children Be Celiac?
0

13 posts in this topic

I don't have any children yet but when I do I was just wondering what the odds are of them having celiac too?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I believe the current statistics show 1 in 22 - it depends on so many factors.

If you are curious, you could have yourself gene tested. I have a pair of one set of genes which means all of my children have at least one celiac gene. Even if your children inherit a celiac gene it does not mean they will develop Celiac Disease. About 30% of the population carry celiac genes - yet only an estimated 1% of the population develop Celiac Disease.

0

Share this post


Link to post
Share on other sites

My husband and son both have celiac. I think those odds are a bit off. It is genetic so you could walk around with it and never know until something triggers it.

0

Share this post


Link to post
Share on other sites

My husband and son both have celiac. I think those odds are a bit off. It is genetic so you could walk around with it and never know until something triggers it.

I agree with this as all of my kids and both grands have Celiac Disease or NCGI. But again, I have several copies of genes and my husband is a non-celiac carrier.

The point is that while many families have several celiacs, there are others with only one. Additionally, it seems more of us may be triggered by present day food supply than previous generations.

Personally, I think a Mom diagnosed before her children are born is in a wonderful position to provide the best possible food for her children - thus giving them the best shot for a long healthful life :)

0

Share this post


Link to post
Share on other sites

I think the studies are totally off on this. BOTH of my kids ended up having celiac. My mom has it, three of her siblings have it, I'm fairly positive that my brother's two kids have it, my sister's daughter has it--get my drift? Even though the official nonsense says that it's 1 out of 22 who get it, it seems a lot more common than that. If you have celiac, just make certain your household is gluten free. Your kids can eat gluten outside of the home....and if it ends up being a problem for them, then you'll have your answer.

1

Share this post


Link to post
Share on other sites
Ads by Google:


I was diagnosed at age 49... the only one in my small immediate family and my small extended family. About 4 years later, my second daughter was diagnosed at about age 28. Third daughter was diagnosed a few years later at age 27 and spent more than a year w/ the most severe symptoms and dietary restrictions I've ever heard of until she's been able to bring more foods back into her diet. First daughter was diagnosed 2 years ago... all in the family.

0

Share this post


Link to post
Share on other sites

Very interesting! How do I do a gene test?

I believe the current statistics show 1 in 22 - it depends on so many factors.

If you are curious, you could have yourself gene tested. I have a pair of one set of genes which means all of my children have at least one celiac gene. Even if your children inherit a celiac gene it does not mean they will develop Celiac Disease. About 30% of the population carry celiac genes - yet only an estimated 1% of the population develop Celiac Disease.

0

Share this post


Link to post
Share on other sites




Your doctor can order blood tests for Celiac genes. I've also seen folks on this board that have had it done through private companies.

There are drawbacks to gene testing

  • most U.S. doctors test for DQ2 and DQ8 only
  • there are other genes associated with Celiac Disease and NCGI
  • it is possible to have positive antibodies and/or positive biopsy without any of the associated genes

There are likely more drawbacks that I'm not thinking of right now.

As long as you are aware that these tests are only an indication rather than concrete information they can be worth while.

0

Share this post


Link to post
Share on other sites

The problem with gene testing is that 30-40 percent of Americans carry one or both celiac genes. Celiac occurs after it's been triggered, so you may carry the gene but never develop celiac. Therefore, to me the testing seems irrelevant.

0

Share this post


Link to post
Share on other sites

We found it helpful in my family as my kids were all testing negative - all with different symptoms -- my gene testing was an important piece of the puzzle for them. Honestly, it was my celiac doc suggested it when we were frustrated with the diagnosis process of my children. I never would have been tested without his suggestion.

Again - it is not conclusive information - but is another piece of the puzzle.

0

Share this post


Link to post
Share on other sites




Maybe. In my family, there are only a few of us diagnosed - me, two of my aunts, and one of my cousin's children. I don't have any kids and my parents are are not diagnosed as celiac (though my mother refuses to get tested, and it's her sisters who have it, so who knows). One celiac aunt has five children, none of whom are diagnosed celiac. The other aunt has two sons. One son doesn't have it; the other probably does but refuses to get tested - and his oldest son has celiac.

I think there is more celiac disease in my family then we know of - but since many of these relatives refuse to get testing done, it's hard to be sure. At any rate, it's not a done deal that your kids would get celiac. Even if they inherit celiac genes from you, they may never develop the disease - but at least they'll be aware of it and you'll know to keep an eye on them.

0

Share this post


Link to post
Share on other sites

Hi

Not much help - but I'm sure I have read somewhere that in Norway (or somewhere in Scandinavia :ph34r: ) due to the higher incidence of celiac it is now recommended that babies and young children are gluten free. This apparently gives you a better chance of tolerating gluten in later life!

My eldest brother has celiac, my other brother has had seizures and spaced out problems (celiac ?) but will have none of it!

Pretty sure my Dad has and lots of auto immune probs in his family and I think my mum had DH.

I think my son has celiac but at the moment he just won't wear it.

I have Irish ancestors.

May possibly be completely crazy, of course :ph34r: .

0

Share this post


Link to post
Share on other sites

Just thought I should point out that my paragraph about celiac in Scandinavia is not intended to be a fact.

Personally though, if I had a baby (too old by the way) I would not now give it any gluten and even when older believe that it should present very little of any diet.

Then again - I'm a pretty anti-gluten person.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,332
    • Total Posts
      935,533
  • Member Statistics

    • Total Members
      64,994
    • Most Online
      3,093

    Newest Member
    Daisy Charlize
    Joined
  • Popular Now

  • Topics

  • Posts

    • Started thinking the only cereal I allow in my house is Vans, they have a cinnamon one that is like a captain crunch with cinnamon, and a strawberry O type that I keep in stock for a friend that comes over sometimes and for my cousins littler girls who I end up babysitting sometimes. There was a coconut flake (corn flake knock) off I used to eat, but the company discontued it. There is a stuff called progranola from julians bakery made without grains that looks great but is a bit expensive at $9 a bag.
    • I would add your pharmacist to that that list and double check when getting a script filled that they checked to make sure it is safe. You will also need to tell any romatic partners as if they are gluten consumers they should brush their teeth before any kissing.
    • What you all are going through is normal. It took a long time for celiac to progress to the point where you were diagnosed and it takes time for the antibodies to resolve and for you to return to full health but you will. Eat as many whole foods as you can, stay away from oats and limit or delete dairy until you have healed for a while longer. Some of us will react to even gluten free oats so wait until you have been symptomless to try them out.  Sublingual B12 may help you heal a bit faster and do take a good gluten free vitamin. Be careful of the 'whole foods' vitamins as some will have barley or wheat grass in them. Eventually you will recognize when you get hit by CC, in my case I get a shift like I am falling sideways and an almost instant change in mood for the worse but it took a while to realize that was what was happening.  If you take any prescription meds do make sure that your pharmacist knows you are celiac and that they are checking all meds prescribed. If you haven't already do read the Newbie 101 thread at the top of the Coping section as it will have a lot of good information to keep you safe. Welcome to you all and I hope you heal quickly.
    • Did you take any vitamin D supplements when that tested low? Was anything done to correct the other deficiencies you had?  Do you take a multivitamin now?  I think correcting any vitamin and mineral deficiencies should be the first line of defense.   It's the simplest way of ruling out more sinister conditions.  Vitamin deficiency diseases can be mistaken for other diseases.  For example,  a deficiency in niacin (pellagra) can be mistaken for Celiac Disease. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html Cycling Lady broke vertebra in her neck throwing up.  She had anemia, a result of iron and B12 deficiencies.   I understand how you can just blow off the importance having adequate vitamin and mineral levels.  I did.  My doctor did, too. But when a friend suggested vitamin D deficiency might be causing my severe depression,  I begged my doctor to check my vitamin D level.  He ranted he couldn't make any money prescribing vitamins.  He finally agreed, but only because my insurance would pay for it and he could prescribe synthetic D2.  My level was six.  That's severely deficient.  He didn't bother with checking for other deficiencies.  I broke a leg, osteoporosis due to calcium deficiency.  That's lame.  I developed pellagra.  That's "slightly dead."  Then there was the BeriBeri episode with bouts of tachycardia. That's "almost dead." And from complications of vitamin A deficiency, I'm legally blind.  All within three years.  Yeah, sure, vitamins aren't so important.  Just ignore them, they'll go away.  Please rethink putting nutritional deficiencies on the back burner. Hope this helps. 😸
  • Upcoming Events