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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Endoscopy X 2 - What A Day!
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5 posts in this topic

Hi All

Firstly, thanks for all the support as my endoscopy approached. I was booked in yesterday morning. Nurse explained everything and also offered me a new procedure which is to put the scope in via a nostril. Initially I was not in favour of it but when she said it meant less gagging and the ability to talk during the procedure I agreed. Unfortunately, the scope couldn't go down so they had to change tac and go down thru the throat. The throat spray worked its magic but I did find my body naturally trying to reject the scope. After the procedure the doc said 'You've done very well - now we've taken a couple of biopsies of the wee lump in your throat which we'll send away for investigation. Try not to worry they nearly always come back benign and it (the lump) is very small. Also there is some slight inflammation of your stomach lining."

I was absolutely stunned. I didn't know anything about this 'wee lump'. However, I held it together enough to say, 'OK. What about the ceoliac?' to which I was greeted with a completely blank look followed with, 'We weren't investigating ceoliac.' Very quickly followed with a look at my notes, profuse apologies and being told I could either have it done now or come back. So, given I was there and had no wish to return I had it done again! Once finished, more apologies and told that in terms of ceoliac things looked Ok but would need to wait for biopsy results. In the meantime keep eating gluten...

What a day! I'm trying not to panick about the 'wee lump' but I have to say that I spent most of the rest of yesterday in a daze!

Nicky

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Well, you certainly didn't get a straightforward one there. It is definitely odd having the throat spray. Sounds like you had a similar response to the tube. Thank goodness you asked about the celiac, it sounds like you wouldn't be in a hurry to go back.

It's hard to explain the spaced out thing, but sounds like you had it...

Good it is all done, hopefully you'll get some good news about the lump soon.

I wonder why they have you still on gluten - do you have more testing?

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Well, you certainly didn't get a straightforward one there. It is definitely odd having the throat spray. Sounds like you had a similar response to the tube. Thank goodness you asked about the celiac, it sounds like you wouldn't be in a hurry to go back.

It's hard to explain the spaced out thing, but sounds like you had it...

Good it is all done, hopefully you'll get some good news about the lump soon.

I wonder why they have you still on gluten - do you have more testing?

Hi and thanks.

I don't think the spray to numb the throat is unusual. I believe it's standard practise here. I'm not clear why still on gluten either - there was talk of needing to have a colonoscopy, so that might be why. The whole matter is rather bizarre I think. I guess I'm just going to have to wait and see what comes of the lump biopsies and the ceoliac biopsies but it's certainly not a procedure I am keen to repeat again without sedation.

Cheers

Nicky

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They may have mixed you up with another patient who has more than a 'wee' lump in their throat.

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Eek I had throat spray which was ok. It didn't hurt but wasn't fun. Drugs do odd things to me so rather put up with it.

All sounds very mixed up, make sure you get the right results.

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