This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Anybody have raised liver enzymes just before diagnosis. All my liver tests where fine except my ast level was very slightly raised. GP said it was of no concequence and is quite typical with celiacs before going gluten free. I have had celiacs now confirmed by blood test and biopsies. Just wondering if this is quite a normal thing.
My only symptom was slight nausea that lasted all day. I had a lot of mashed potato soup as it was easy on my insides (the mashed potatoes dissolve in the chicken broth). And I had smaller meals 6x per day. Easier on my insides to avoid very solid food. The nausea lessened and went mostly away in the first six months.
I still vote on removing dairy completely for 60 days. This could help in many ways Probiotics are helpful normally later on, but initially if she has damaged or leaky gut it could make the issues much worse. It works for some makes stuff worse for others. I keep going back to the dairy as it is common to cause a feeling of bloat, fullness, inflammation, leaky gut issues, etc. Try making or using nut based milks, heck one of my favorites and simplest ways is to blend a few tbsp of nut butter into water to make a nu milk drink. Your doing smoothies? Try adding 1/4-1/2 cup of almond butter to a water base blend it first to get your starter base milk. Adds a ton of good easy to digest calories if you use a nut butter, I love doing this with walnut butter, try it with her favorite nut butters. Kite Hill makes some good heavy almond based cheeses you can find in most stores. I have some coconut milk blended soup recipes if you wish make something easy to drink and get in some good fats. Have a butternut curry, pumpkin curry, and one tI even made that taste like pumpkin pie.
I posted a recipe the other day for a avocado icing, >.> You could make something up like this and she can just eat it by the spoon.
Hi, sorry to suggest removing yet another thing from the poor girl, but have you tried going completely milk free. So not just limiting lactose, but trialling a period with absolutely no dairy whatsoever?
Reason being, lactose intolerance is only one of the two possible milk issues, the other is casein intolerance. I spent a long time allowing myself small amounts if milk on basis that my stomach was ok, only to realise my issue was the casein not the lactose. That means complete avoidance.
May not be that, but a trial of completely avoiding it (substituting soya or almond based alternatives) would at least exclude it?
Best of luck to you both from all the way across the Atlantic
Awol touched on what I thought it could be, night numbness and cramps is often a magnesium issue, Also with gluten ataxia nephropathy is common causing numbness, tingling, or control loss. As you mention a constant I am thinking perhaps more of a deficiency,
Raven goes on another topic, I had a issue in my shoulder messing up and pain and numbness in my back/shoulder with numbness in my arm a while back from some muscle and nerve issues and had to have it worked on by a massage therapist, seems my muscles had healed wrong after working out and caused some issues, she was getting rolling, bands and large knots out of the area around my shoulder blade and neck for over 30mins.