Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Feeling A Little Sorry For Myself.


Mgyoung77

Recommended Posts

Mgyoung77 Apprentice

I have been gluten free right at a week now. I've had a pretty positive attitude towards having to give up gluten. I was thinking atleast I will feel better! Before I was told I had celiac, my hemoglobin was tested and it was very low. I immediately started iron supplements. I have been so tired and have had no enrgy. Completing the simple daily task I need to complete as a mom each day seem impossible. While I can somewhat tell a difference going gluten free, I still don't have nomenergy. Yesterday, my husband brought a bag of rolls and some brownies left over from work. he then went tomchurch and brout home a bag of turkey and a bag of stuffing home from our church thanksgiving dinner. I'm the only one in the housethatneats stuffing. I want to eat the turkey but I'm afraid of cross contamination. Then today, my daughter made Mac and cheese with tuna in it for lunch, one of my favorites. Now I have this strong urge to be "bad" and eat something I shouldn't have. I'm too tired to go the extra mile in preparing "safe foods" right now. Thank you for letting me vent.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

You could wait until after Thanksgiving to go 100% gluten-free. A few more days probably won't hurt much. But gluten might actually make you feel worse at this point too. Have you tried Tinkyada brand rice pasta? Tinkyada is fairly inexpensive and many people like it.

People are going to be eating gluten all around you for the rest of your life. The whole planet is overrun with gluten eaters. Mostly they are harmless, just a little annoying at times. It's the donut eaters you have to watch out for. Who can tell what kind of person would like to eat a piece of bread with a big hole in the middle of it? Strange people, you betcha.

When I started gluten-free I used to make large batches of rice and veggies and meat on the weekends. Froze most in small plastic bags. Every weekend I would make a different version. So I had a variety of easy to warm up meals in a few minutes. Later I used quinoa instead of rice or a mixture of both. You can also use buckwheat or amaranth, millet, nuts, dried fruit etc. Rice is actually not that good for you as it is just dead calories. Maybe try a version with chicken, coconut milk and cinnamon. Not bad stuff.

Super Easy Meal Ideas Anyone?

http://www.celiac.co...l-ideas-anyone/

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes

http://www.celiac.co...e-free-recipes/

Link to comment
Share on other sites
Lisa Mentor

I'm sorry you're feeling down. It IS hard in the begining and most everyone goes through a "mourning phase". I hope your family can get a good perspective about what you have to deal with.

I generally do all the cooking at home and it's always gluten free. Unless I have company for spaghetti or serve bread for my guests. My family knows the safety rules when they bring in gluten.

Alway, keep in mind that you're doing this so you can be healthy again and enjoy your life to the fullest. And don't deprive youself too much. Sounds like you're in need of a hot fudge sunday or something special to perk up your day.

It does get better. Stick with us...we'll get you though it. And welcome! :)

Link to comment
Share on other sites
Mgyoung77 Apprentice

Thank you so much for your encouraging words. I do not expect my family to always give up gluten. Any meal I cook will be gluten free though. My husband did bring me a Frosty. It was a nice unhealthy but safe treat.

Link to comment
Share on other sites
Skysmom03 Newbie

It can be very difficult for family members to understand the issues that can come about because of the gluten ingestion. Has he been to a drs appt with you or have you talked about the side effects and health implications with him? It will be an adjustment for your family as well so this will be something you will need to work at together. Start with telling him how it makes you feel when he brings those things home that you can't have.

Link to comment
Share on other sites
nvsmom Community Regular

(hugs) Those first weeks are HARD! And when you add in grumpiness and feeling poorly from withdrawl, it's just an overall bad time. :( Hang in there, it will get easier.

Link to comment
Share on other sites
txgal748 Apprentice

I was diagnosed in May and logically I was okay going gluten-free right away. The problem is when I realize I can no longer have something, like the other day I realized I could no longer have crab rangoons. Some things are harder than others but I do feel better. Just focus on the fact you will feel better soon. Have your vitamin levels checked also.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KrazyKick Newbie

You're not alone. I was very sad at first too being such a foodie. I have learned to make wonderful food I can safely enjoy and you will too. I found one thing to be very helpful when I was starting out. Instead of making lists of things I couldn't have I made a book of things I could have then learned all about them how to make them even better. Collected recipes and kept them in that book. Wrote down spontaious ideas of food combos that would work and so on. You will adapt! Be positive!

Link to comment
Share on other sites
love2travel Mentor

I was diagnosed in May and logically I was okay going gluten-free right away. The problem is when I realize I can no longer have something, like the other day I realized I could no longer have crab rangoons. Some things are harder than others but I do feel better. Just focus on the fact you will feel better soon. Have your vitamin levels checked also.

You are about to be happy - you CAN have crab ragoons, if you make them yourself. This is a great recipe. The author has a great book out that I have called "Gluten Free Asian". Many gluten-free cookbooks are very annoying and useless because all they say is use gluten-free soy sauce and gluten-free that. This book, however, gives you recipes for the good stuff that you really do need a recipe for, such as pot stickers that are delicious.

Open Original Shared Link

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
    • Tanner L
      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
×
×
  • Create New...